Dad is getting VERY agitated about "going home" He and Mom live in their home. I have been here 24/7 for a year and a half. This has happened from time to time, during the last 6 months. However, he has NEVER gotten angry and it has never lasted this long (3 days). His primary doctor wrote this prescription today. I have not given it to him yet?
Thanks in advance for your consult!
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I found out that the doctor lowered my mom's dose for her resperidol morning dose. She is staying awake more during the day now. They told me today that she had a bad night and was up all night! But she was awake during the day telling stories and singing. I wish I could see her when she like that. She is no longer agitated and no more of the bad behaviors. I can finally rest more easier now.
Fregflyer stated what I heard from my support group. They are a talking about their childhood house. I learned this is called Sundowning. My mom use to take all her clothes out of her drawers at night like she was packing to go home.
I did talk to the psychiatrist about this infront of my mom. We wanted her to also talk about whatever she wanted to so we could help her. This was at the beginning of her disease. She would cry because she did not want to be that way. She needed to cry and we would hug her afterwards.
I am so happy to hear your dad is sleeping better now. Did you ever get a proper diagnosis of what type of dementia he has? I was told this is important so you know the right medicine he needs for him.
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After I've asked a question, and you kind folks have responded, do each of you get notice of further posts to this question? For example, I'm going post an update here. Will the same people who responded see my post - "Let us know what you do."
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The doctor prescribed .5mg Risperidone, 1/2 tablet to start. Dad has always been VERY sensitive to medications. The first two days, (start Jan. 4) all the delusions disappeared. He was happier. He no longer wanted to "go home". Then delusions began creeping in again- not so badly. Doctor suggested giving him the other 1/2 tablet of Risperidone at supper. (He also takes clonazepam to sleep-workds great, and we have Valium for times that agitation "breaksthrough".) We would get in the car, he would direct me home, which turned out to be a circle back to the house. Then, my sister started talking to him on the phone about driving (4hours) to her house to be with "family". That scenario got all wrapped up in his "going home" story in his head. Then he no longer told me how to get home, he started asking me where it was. It took me a while to figure out what he was talking about. Other distractions, (new physical therapist, veteran visitor) worked there way into his story. Last night (Jan 14) was the worst. He was worried about people around the house, some kind of ramp between the buildings, not safe here, etc. It took an hour and a half for a valium to calm him to be able to sleep. He awoke late morning, (I let them sleep in) happy, hungry and seemingly "back to normal".
So, with that said, we have an appointment with the doctor tomorrow. And that is hard for me, to talk about all this in front of him.
-Do you talk about this in front of doctor? I've always written a short description, but sometimes I think I should just say it aloud.
-Could the Risperidone be an agent to INCREASE the delusions, hallucinations, agitation?
Thank you for your support!
One more helpful resource off the LBD.org website to help with medication. This helped me.
lbda.org/sites/default/files/medication_glossary_2015.pdf
I know each patient reacts differently, but just wanted you to have this information. This is what I gave to all of the nursing home doctors and nurses. It helped me understand whT medicine they wanted to give my mom. She is also in a later stage of her LBD now. Your loved ones may not be this far advanced.
Good luck and best wishes.
Now that he is on a higher dose, he is going through the grogginess and napping a lot again. He is also fighting a bad cold and cough. I don't like that it adds to the dizziness that he has had since a fall and concussion four years ago, and he went through the delirium tremens in the hospital due to being an alcoholic which probably didn't help.
As far as he knows, the Risperidone is only to help him sleep because he probably wouldn't take it if he knew that it was also for behavioral issues. He has always been very narcissistic and I don't know if any med could really make his behavior more tolerable. It remains to be seen.
alzconnected.org/discussion.aspx
Please note a person who has Alzheimer's/Dementia, when they say they want to "go home", they are usually referring to their childhood home.