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Grieving1918 Asked June 2018

My 92 year old dad has LBD. He goes through periods of not being able to keep food down. At 92, will LBD speed up his decline?

Grieving1918 Jun 2018
As with any form of dementia, I think I want concrete answers and sadly they don't exist. Everyone is different, I just hate to see my Dad go through this disease. That's why I wonder if anyone out there is having a similar experience with a father/husband. I read so much about women, but next to nothing about men. You'd be surprised how much doctors don't know about LBD. At first my Dad was diagnosed with Alzheimer's. Not much was matching up with his symptoms until I started looking around at other types of dementia. Also Timothy Hudson , a researcher, has a lot of information on his site. I think my dad's doctor just thinks my dad is old and sees him once a year unless it's an emergency. Specialist are few and far between, over-loaded with patients I'm sure.

jeannegibbs Jun 2018
A man who is 92 years old now can, on average, expect to live to 96. Of course, you dad is not "average." With no health problems he might die at 93 or live to 100. Both of those would count as part of the average.

He has had LBD 4 years already. If he has the disease the "average" of 8 years, then he can expect to live to 96.

But those are all statistical averages, and I really don't see any way to get a more detailed and specific answer tailored to your dad. His physician is probably the best source of guesses, er estimates.

BTW, is your dad involved in a research program? My husband was. The knowledge of the researcher was excellent!

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Grieving1918 Jun 2018
As far as I can tell, my dad has had LBD since 2014- about 4 years. Yes, my question was with dementia (LBD), could this effect his years left to live since he's already 92. I had a researcher tell me that with LBD, age isn't as much of a factor in longevity as with Alzheimer's disease. Just wondering if anyone had more information from experience of how long this will go on for. At the moment, my Dad can't keep food down, has trouble with balance, has the "masked face" appearance, fidgets, and plays with his tongue a lot. But this will usually pass in a week or so and he'll start to do better for awhile and will keep his food down, thus the LBD rollercoaster. Any experience with this? Thanks-

jeannegibbs Jun 2018
I'm not sure I understand your question. "Speed up his decline" compared to if he didn't have dementia? Yes, probably.

How long has Dad had LBD? Is it moderate? Severe? What are his predominant LBD symptoms?

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