I have tried to let her know that the things she is seeing are not real and sometimes she agrees, however, the situation is escalating. She is becoming more and more agitated about the people she sees. Last week I had to write a letter to the "woman" she sees to "evict" her from the property and inform her that she will face legal action for trespassing. Now she wants me to take the letter to the property manager and have maintenance come and check the locks. I fear that this only gets worse. She has not been diagnosed with Alzheimer's or Dementia. Please advise...
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It is dangerous to make assumptions, and easy to make certain - which leaves absolutely no excuse for not testing.
Many elders who seem otherwise cognitively intact don't recognize themselves in the mirror. (I'm 72 and usually am shocked to see 'my mother' first thing in the morning when I'm half asleep). In the early stages of a dementia process -- when folks are still capable in many other respects -- people can be frightened about that 'stranger' and not realize they're seeing a reflection, much less that it's themselves.
You can cover the mirrors with a piece of cloth, or soap them up. If you can replace them with a framed picture about the same size some people won't even notice. This may successfully 'evict' the 'stranger' she is afraid of.
It may also be wise to look for other symptoms and causes. Is she eating appropriately? getting enough protein, vitamin B, etc? Is something disturbing her sleep (like, say, a neighbor's new yard light)? And definitely rule out a UTI. It's amazing how much a UTI after 70 or so can look exactly like dementia or delirium ... and the person seem 'miraculously recovered' after 48 hours of treatment.
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What is Lewy Body? I have wanted my mother to go to a neurologist for years!
There is also a book called I'm Not Sick I Don't Need Help by Dr. Xavier Amador. It deals with schizophrenia and not dementia but the tips on how to handle delusions might be helpful.
Best of luck going forward.
I remember hearing about the mirrors trick (covering them) 30 years ago. My grandmother was suffering from anxiety with “those people in there” & it was suggested by an elderly friend because it worked with her own grandmother 40 years prior.
Hugs to you.....this is so very hard.
Also, isolation contributes to the hallucinations. It might be time to discuss an assisted living arrangement so that your mother is around others during the day and a loved one at night.
As already mentioned here in other posts - infections are one possible cause.
And, certain medications can cause/exacerbate hallucinations in susceptible people. In Lewy Body Disease or Parkinson's with Lewy bodies, Neuroleptics and Anticholinergics are two classes of possibly, (and often!), offending drugs.
Lewy Body Disease does not present very often, with cognitive impairment and dementia until the very advanced stages, and sometimes there's no obvious dementia - but fluctuation of cognition presents. Hallucinations will often be present in early LBD.
You may know all this (but still, many health professionals don't,) so to your question as to how to manage the hallucinations present for whatever reason -- yes, you go along with the person; reassure them as often as it takes, that these visions they ARE seeing ARE harmless, but, you'll take take care of them. When things settle down, sometimes a day or so later, (but you do definitely need to gauge the receptiveness and mood), you can slowly bring them to realise themselves ... not by denying any visions, nor make any referance to theirs! - but work into conversation that you recall times you had visions when you had a fever or whatever.... A technique I used that worked - so well in fact that the LO was reassuring another LO in time... Amazing to witness!
It's all about reassurance.
Do hope this helps - also comforting to know that if the person has Lewy, the hallucinations become much less frightening as time goes by. Usually visions of little children ....
Take care yourself -- LBD is very hard on primary carer, too. It of course in your LOs case may not also be LBD....
God bless
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