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Roxanne64 Asked January 2019

Do very vivid dreams in the elderly always mean Lewy body dementia?

My dad is almost 94. Ever since my mom passed away almost 5 yrs ago he has been having more & more vivid dreams. This past week it has gotten much worse. He picked up the tv control (fell asleep in his chair) & threw it hard, just missing his tv. Then even though he opened his eyes, he said he was trying to throw the rock into the hole. He slowly came to & was in a daze, then realized what he had done. Just last night he was saying there was a man in front of him that wanted a ride to another town. Then a woman appeared in front of him but he couldn't make out who she was. I forgot at this point to ask my brother, who was w/him if his eyes were open or closed. But later he came to, like before & was dazed for a bit. He says he can't sleep good at night so he sleeps during the day a lot. He doesn't seem depressed but I know since he can't get around like he used to & get outside it brings him down. I know he misses mom so much. My brother or I are with him 4 to 5 hrs every day. More me than my brother. I'm terrified it could be Lewy Body Dementia. My dad would go into a severe panic if it turned out to be that. If he ends up in a nursing home he would go into severe depression.

Betsysue2002 Jan 2019
I had nightmares when i was taking metro-something. I dont remember the true full name. I was in my late 60s ? early 70s ? I dont think age matters when you deal with meds if thats what his problem is.

kgaither Jan 2019
I'm so sorry, I know it's scary for your dad and you when the hallucinations start. Both my mom and my uncle started seeing things when their eyes were closed after they each had minor strokes. My mom had an amazing memory and capacity in knowing what was going on around her up until her 3rd stroke which took her a week later. But she had 2 mild strokes that the doctors couldn't even diagnose by CAT scans, but we as a family could tell because it was the times when she couldn't remember where the bathroom was at my home. Or is she had already taken her medicines, eaten breakfast, etc. Within about a week, she would then be back to normal. She knew what was going on again. But the hallucinations were still there. She said she would see people up at the ceiling along the wall. Or she thought someone was going to attack her. Or someone had taken her dog when he was in another room. After she died, I started to help take care of my uncle who I adored. He had no idea he'd had a prior small stroke. But they found it when they did a CAT scan on him. And he was telling me about the hallucinations he was having. They really scared him. But I told him mom had the very same thing after her 2 mild strokes and it helped to ease his fear that it was a common occurrence after strokes.
And yes, we were also told it might be a UTI, but that wasn't the case with either one of them because they were both tested and the results were negative. I wish you all the luck in the world. It's so hard being responsible for someone elses well being. And it's tiring and there are so many times you want to just run away, but when he's gone one day, you will feel better knowing you were there for him.

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Llamalover47 Jan 2019
Check his medication list. Some medications can manifest into bad hallucinogenic thoughts and actions. Also night terrors can be a part of it.

Teresa914 Jan 2019
MY mom fell last year and had Alzheimer's like symptoms. I called ems and they said her mind was altered. Turned out she had a UTI. My mom still has hallucinations and 'see s' people. It would probably scare the crap out of me if it weren't for the fact that I've had experience helping with a neighbor who had Alzheimer's years ago. And Zoloft helps, too.

Lucydavis Jan 2019
often times patients are misdiagnosed with dementia, Maybe it's their heart medication or some other type of medication that is producing Symptoms of dementia. find the cause before assuming that it's dementia and pumping people full of pills which cause side effects. https://www.scientificamerican.com/article/its-not-dementia-its-your-heart-medication/
maybe it's poor digestion? lupus? Sjogren's ? autoimmune? cholesterol medications affect the myelin sheath on nerve cells? Do some research. why the sudden increase in dementia and alzheimer's? why the increase in flu shots? what are the ingredients in flu shots? the Doctor should know the CAUSE of each person's "dementia".

NYDaughterInLaw Jan 2019
There are people who are taking no drugs who still have nightmares and night terrors. Stress and/or anxiety often have something to do with it. Remember that not everything is a disorder. Your dad is 94. He is old and his wife is gone. He may be processing his own fears about death and dying.

The brain is a very powerful organ and we hardly understand it. Modern neurology is only scratching the surface of the brain, its health, why we sleep, brain disorders, and brain diseases.

RayLinStephens Jan 2019
NO!

Benedryl caused dreams that were vivid for my DH, and he was hallucinating. The doctor told me that seniors, especially people in their 90's often cannot take Benedryl for that very reason.

BTW, my Dh, 96, was taking the Benedryl to stop his constant itching.

lindabf Jan 2019
Along with these good answers, remember there is no way to determine with 100% accuracy whether it is Lewy Bodies except a post-mortem autopsy. My Mom had enough of the symptoms that I decided to “act as if” it were Lewy Body and see what impact it had. That worked well enough that I’m sure it was that, even though we didn’t have an autopsy done. The big deal is to not give Alzheimer’s medication if it is Lewy (or, I would say, if you are reasonably sure it might be Lewy). The other thing I did that worked re the hallucinations and/or vivid dreaming was that I didn’t tell her it wasn’t real. I just told her that unfortunately, I could not see what she was seeing, but if she would tell me what to do to help, I’d be glad to do it. So, if she saw a huge bug on the carpet across the room, she would describe it to me, direct me to it, then 1 of 2 things would happen: (1) It would have disappeared by the time I got to the right place; or (2) I could (according to her instruction) either pick it up in a Kleenex or towel and take it outside or just squash it and throw it away. With the people who came and went, I’d say I must have missed their visit and I hope it was a pleasant one for her. If she wanted to know whether they’d be back for dinner, I’d tell her they weren’t sure, but would see her again whenever they could. So in a nutshell, try your best to enter their reality because it’s less scary when you are there with them. It’s a waste of energy to tell someone that their vivid experience is “not real”; just tell them it is not something you seem able to access, but you’re willing to help if they will describe it to you. Seemed to work most of the time. She stopped “going wild” and started responding much more calmly. (It wasn’t the hallucinations or dreams that upset her, turns out. It was my insistence that they weren’t real that got her going because, of course, she “knew” better.)

janlee Jan 2019
My 89 year old mom got these whenever she took anything with codeine in it. To this day she insists that they were real. Check meds.

Laurellel Jan 2019
Good answers here. I'll just add that sleep deprivation because of frequent urge to urinate has brought on vivid dreams with my Dad who has FTD (Frontotemporal Dementia). I am hoping the urologist will be able to help with that! He wakes up to urinate every 45 minutes to an hour! His PCP and I think it is caused by his BPH. The lack of sleep is really getting to me, so what can it be doing to my poor 86-year-old Dad? He insists the dreams are real and gets angry if I try to explain he was just dreaming.

As others have mentioned, it could be a UTI or side effect from medication, too. Hope you and his doctors can sort it out and cure this. I know it is a hard thing to live with for both patient and caregiver.

YsLadyMN Jan 2019
In addition to the other replies, see if he's on a statin drug (cholesterol) and be suspicious of it. At that age I'd personally stop it. Common side effects are vivid dreams and muscle cramps. I can barely tolerate taking them... no dimentia here. But it worries me there may be a link.

Jarsting Jan 2019
My MIL had something very similar and we realized some of the versions were from the TV shows. We used the parental channels to get rid of the more violent shows. Now that she is in memory care the only TV they have is for the evening movie.

anonymous594015 Jan 2019
Get your dad to a doctor and try to find out why this is happening. Apparently it is common in dementia but people have also been known to hallucinate if they don't get enough REM sleep or have a bad medication reaction- so get a diagnosis and work from there.

Dementia sucks. But you and he will deal with it if that's what it is. There's lots of support here for you. Try not to worry about what it might be. Worry does nothing but rob pleasure from today. It doesn't change the future one bit.

KAWnurse Jan 2019
This acting out during sleep is called a parasomnia. It is a sleep disorder which does occur with dementia. While the frequency is more common with Lewy Bodies dementia, it can occur with all types of dementia. Such experiences can occur during the day during napping as well as night. My mother experiences them quite commonly and these often involved grabbing for an animal or small child. She is unaware of them generally.

JoAnn29 Jan 2019
Do the dreams scare him? If so it could be night terrors. This happens with people who have Dementia. As tacy said, it could be a UTI or a med. He needs to see his doctor.

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