At one time I was going over and staying at her house while she bathed but now when I suggest it she tells me she's already had one. She has NO short term memory so even if she had she wouldn't remember. My daughter and I are discussing hiring a home health person to come in once a week to make her take a bath, change sheets, and clean out her refrigerator because she gets angry if we suggest doing it. Any ideas on how we should go about this and what to do about brushing her teeth every day?
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I am actually horrified that she is living alone and you are giving her broken brain the decision making authority.
If someone can't move in, like today, you need to find a facility. She is a complete danger to herself and this is really a negligent approach. There are a thousand pitfalls in a home for someone that has no short term memory and other things going on, which you would not know about because she can't tell you. Alzheimer's robs more then short term memory, people lose the ability of doing things, they can't remember how to brush their teeth, they can't remember what the toilet looks like, they may or may not eat or drink, medication, forget it dangerous and should be managed by someone else.
Please don't let another day go by without putting a plan together to get your mom the care she desperately needs.
1. Teeth - check the toothbrush & toothpaste. Brush will be wet. If you keep the Past a certain way you will know if it's been moved or squeezed.
2. Bathing - Towel will be wet, same with bar of soap. Again be very observant. Hang a clean towel for her or fold a certain way. You will see if it's been moved.
3. Clothes - Put clean clothes out
4. Body - Seniors only need to shower etc. 2-3 time a week. Yes, they must keep botton are clean daily. That trick is keeping Wipes by the toilet.
The most important thing with your question is be very observant. You will get alot of clues from that.
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Tell her you and she are going out for a ride if you think she'll resist going.
This behavior could also be from depression.
Has you mom had a medical work-up recently?
Do what you need to do. Expect resistance (and anger). Be psychologically and emotionally prepared.
Dementia, from the point of view of the person inflicted, means they experience new situations, people, changes very differently than "we" do. Read Teepa Snow's website - about bathing. Teepa is the country's leading expert on dementia. (Whether you mom is diagnosed with it or not, it is one of the signs - not wanting to bath.)
Tell them you want her to feel like she is getting “spa treatments.”
Unfortunately bathing is a big problem. She thinks she showers daily but its more like once a week. She gets nasty when I try to make her shower. The UTI's have been a problem. She absolutely refuses outside help.
Sometimes I resort to bribing her. Like, after you shower, we can meet so and so for lunch. Sometimes I suggest bringing her coffee upstairs to the bathroom so she doesn't have to navigate stairs twice. I have not even attempted the teeth issue. She has dentures so I guess she takes them out to clean occasionally. I have the supplies there. So sad for her.
She would not let me help her with bath, personal care.
I have hired an agency to send an aide in four hours a day weekdays. The side cleans her up in the morning, gives her a shower, gets her dressed, walks her, talks to her, etc.
I can handle the house. I can't be hit and punched while caring for her. So while my siblings balk at the cost, this is a Godsend.
And I get a few hours out of the house, which helps me.
As ShenaD pointed out, if you don't live there, you really have no idea what she does or doesn't do! I discovered after we took mom's car away and had to provide food or trips to grocery that she wasn't cooking anymore. She was eating mainly frozen dinners and packaged foods like graham crackers and fruit cups! Even her beloved muffins, which she would cut in half and freeze for later were not being eaten, as she'd forget she had them. Worse, she resorted to cutting up grocery bags to wrap them up although she had more than enough plastic wrap, tin foil and freezer baggies!!! If I didn't leave enough trash bags in the bottom of the trash can, she'd use grocery bags there too (much too small!) She would ask for more paper towels, TP, plastic wrap, etc and stash them away and forget she had any!!
Our mom lived alone and wasn't close enough to visit daily (more like every other week.) She also had short-term memory issues, mainly repetitive questions or statements (the first inkling I had, but in retrospect there were some other minor subtle "clues".) However, once you really get involved you realize it is worse than suspected (see above!)
We also tried the home aides, with plans to let her stay in her own place as long as possible. It can't hurt to try, but be aware that all too often they will reject this "help." We started with 3 days/week, 1 hour (the minimum offered) and all they had to do was check she took her meds and ensure she was okay. One was definitely more "industrious" and would sweep the kitchen and/or clean up the bathroom. Mom would get embarrassed or something and either try to get her to stop or would contribute. I didn't really care what they did for the hour, so long as the meds were checked (used a timed locked dispenser) and she was okay. We upped this to 5 days/week, but in about 2 months or less she refused to let them in! That ended that plan.
Time for plan B. It took us time to find a place we liked, and the one we chose was still in the rebuild phase, so we had to limp along and wait. Moving her was another challenge!
Is it possible for one of you to stay there for a week, maybe alternate you and your daughter so it covers 2 weeks? Then you will have a much better idea what her real needs are. Use an excuse, maybe like you're having work done and need a place to stay for a week. Don't offer to help or do things she doesn't seem to be able to right away, just monitor (of course you can work together on making meals, cleaning or whatever, just don't take over - you need to see what she can and can't do.)
Once you have a better idea of what all her needs are, you can look into hiring someone, but be prepared for refusal. If you are lucky, she will be okay with help. As others noted, neither you nor the aides can force her to do anything, but if the aides are any good, they can coax some people to accept some help. If she is like some and refuses help/aides, you will have to start planning for another solution (AL or MC.) Mom's self-image/perception was certainly out of whack - she and your mom might THINK they had bathed, brushed, cooked or what have you, but in reality it was weeks ago! Mom considered herself fine, independent, etc. and would tell you or anyone else she was, but she wasn't. Even now I had to resort to cutting the size tag out of new clothes, because she wouldn't consider like/dislike, she would look at the size tag (Oh, that is too big, I usually wear a medium!)
Towards the latter part of her living alone, we had some cameras installed, to monitor the door and downstairs area - observing to be sure no one gets in, she didn't wander and could see now and then she was okay - while watching the video clips, I noted she started wearing the same clothes over and over, even up to 6 days one week! This was NOT her norm...
As to bathing - put something in her towel as it is hung up & if it still there she hasn't used it - maybe a wash cloth or a sock so that it looks like it was hidden when the towel was folded
Then when you have your information you can either drop the issue or go on to the next phase - if you think you want to hire someone & you are paying for it then give it a gift [which it basically is] with a card etc for whatever occation you can find
My stepfather forgot how to brush his teeth about midway thru Alzheimer’s. My mother has vascular dementia and refused to shower at home pretty early on. I think she was afraid of falling but now at the ALF (with more advanced dementia) claims she can do it and has never needed help( not true lol)
I didn’t notice your location but 24/7 in home health care in my area is double cost of a very nice ALF .
Truthfully, there comes a time when their judgement is so faulty you can’t allow them to make the decision. Imo safety is much more important than pride.
Sounds like dementia:(
Just my 2 cents!
We had it for my Dad and later for my DH and I was always thankful to have an extra pair of eyes on them.
I fear for you and your mom that significant changes are coming, sooner rather than later. As much as possible, plan now to get ahead of them. Because when the time comes, you may be in a state of panic to be able to be helpful. Good luck to you.
You can't force them all that will create is resentment as much as I hate to have to say it this way truth be told you have to kind of get down to a child like level and make them believe they're doing it is all their idea, hopefully just leading them will cause them to deal with it otherwise it maybe time to have mom Evaluated by her Doctor I'm getting ready to go through that with my mom and it's taken me awhile to get her to understand the Evaluation doesn't mean she's leaving her home, I'll still be here to take care of her, for me it's mostly legal issues I want to avoid down the road, and even more importantly there maybe medication that could help, that Evaluation process is the beginning and it really needs to be done when any question of mental health is being raised.
Um. What do you mean by "fine," then? And how long is it since you noticed this falling off in her ability to care for herself?
My mom was extremely modest and for a long time would not allow me to help her bathe. Of course I had safety bars installed, mat in tub, etc and I listened for her but after awhile when I noticed her struggling more with everything. I insisted that she allowed me to help her bathe.
Now I have respite care help out too. She got used to having help and now truly appreciates it.
It’s hard for them to give up their independence. Also, that generation is extremely modest so they are initially embarrassed by having someone else help with private matters.
Hygiene is important. You don’t want her to get a UTI.
Now, will your Mom allow "strangers" into the house? That seems to be a common battle. My Mom would refused. Dad, on the other hand, would be holding the door open for the caregivers to come in to help him. Hope your Mom is the latter.
As for your Mom bushing her teeth, that's tough. Sometimes we need to pick our battles, and teeth bushing is usually down the list. Can Mom eat apples? That's nature's tooth brush.