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Sunrose1 Asked June 2019

Should I let 82 yr old mom with later moderate dementia go with my sister on a trip for 2 weeks?

Our mother of 82 is in the later stages of the moderate stage of dementia and has paranoia. Mom was living in NY alone (family was close)until a little over a year ago when she fell on her bike and cracked 3 ribs so my brother that lives in NY brought her here and we decided she couldn’t live alone any longer. So now after a year of getting used to having her here she has a routine that works well for her and she is happy. Now my sister wants to take her for 2 weeks to Miami area and try a new diet on her take her to museums, parks, beach. I don’t think it is a good idea to interrupt her routine. She has a diet that is healthy. Takes a shower on certain days and loves to go to grocery stores at least 3 times a week to walk every isle even if she doesn’t need anything. Says it’s exercise and she might see something she needs. She buys her food and fixes it herself with assistance if needed. She’s very forgetful about everything and doesn’t remember hardly anything from the past. Does recognize her other children after she asks who they are. I feel she will get confused and more paranoid if she’s taken from her normal and I’ve read that taking her out of her element could make things worse. I told my sister it would be better if she just came here and take her out for a day instead of taking her away from her routine. I have learned a lot from this website and it has helped me adapt to having her here. I am disabled but not enough that I can’t care for her now. I can walk just have a lot of back pain. Since mom can walk and do her own thing pretty much it’s all good. Also I have taken her to grandkids (her great grands) Birthday parties and she just sits and doesn’t interact with anyone not even the children. She was miserable and just wanted to go home. Could I please get some input on this?

GIAGIA Jun 2019
No. Because of what you already know about her condition and how it affects her routine, then you have to make the decision based on the facts as they are. My mother had Alzheimers and a massive change of environment would throw everything off. Also, are you her POA? If not, that is something you should consider doing, but even if not, she is living and residing with you. You need to feel empowered to make only decisions that benefit your mother ...and yourself because you are her primary caregiver. You are fortunate that your mother has a level of independence but that can quickly change with stress and upset - it takes very little. A balance is required here. If your sis wants to come and stay a few days, then that's one thing, but this is asking for trouble.

Sunrose1 Jun 2019
Thank you all for replying to my question. It helped confirm my answer. Hope all of you have a blessed day!

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anonymous840695 Jun 2019
With paranoia, that's a tricky thing. People develop ideas of reference,i.e. that they are being followed, etc. The stress could really cause her to regress. I would caution against it. What about short day trips where she could return home quickly if she is feeling unsafe or unraveled?

JoAnn29 Jun 2019
My first reaction was, let her take her. She will see how Mom really is. Because, no matter what you say to some people, they do what they want.

Second reaction, please don't let her take her. My Mom was the same about birthday parties. She just sat. She went to Church every Sunday, could no longer enjoy that. Her stay anywhere was maybe an hour and she was ready to go. My Mom got overwhelmed very easily.

Maybe ur brother can talk to the sister and tell her he doesn't think its a good idea. Two weeks is a long time. I think sister is in LaLa land when it comes to Mom. Maybe a short visit with u will show her Mom is not capable of enjoying a 2 week vacation. They tire easily too.

golden23 Jun 2019
It seems your sis has little idea how Alz affects a person. Could you send her some links to articles about them needing a routine. personally. I think it would be a disaster, Does sis know that mum can't even manage her great grandkids birthday parties? Oh my!

Thinking ahead do you have plans for the future when mum's decline may mean caregiving is be too much for you? You need to protect your back.

NYDaughterInLaw Jun 2019
No, you should not let your sister take her mother to Miami. Your sister needs some educating about dementia and she can get that on this forum, through the Dementia Society of America, and by watching Teepa Snow videos on YouTube.

Removing your mother from her healthy routine will not end well for either your mother or sister. Who will be responsible if things go wrong in Miami?

Your idea - having your sister visit her mother in your home - is a good one and I would not budge from it.

Slekker Jun 2019
If her mental state is fragile, the answer is NO. I just saw a news piece on how a sudden change to dementia patient can induce delirium that does irreparable harm to their functioning brain.

notrydoyoda Jun 2019
"I feel she will get confused and more paranoid if she’s taken from her normal and I’ve read that taking her out of her element could make things worse. . . . Also I have taken her to grandkids (her great grands) Birthday parties and she just sits and doesn’t interact with anyone not even the children. She was miserable and just wanted to go home."

You have answered your own question with these statements. So yes, don't take her out of her element.

notrydoyoda Jun 2019
sorry, repeat answer, the first one did not seem to post.

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