My father and I tag team taking care of my 82 yo grandmother he works full time and I’m a full time college student. Her health has been declining over the past few years and is to be expected (just what happens when we get old) but for the most part she is independent. She can take care of her personal needs, her finances (although not very well because she isn’t able to help with financial responsibilities for our household) she drives herself to and from where she has to go (Doctor appts, friends, church ect, and has little to no responsibilities except what she wants to do) Over the past 2-3 years we have had a communication issue ( she insists that she isn’t told the “happenings” of our lives but, she is told what she needs to know.) We also hear the same comments when she doesn’t remember something. “I didn’t know, nobody told me” and if she is question or respond to in any way that goes against her we receive “ I can’t wait til I die, then everyone will be happier” OR “Nobody loves/cares/respects me” OR “Maybe I should just move out then you and your father can have your house back and be happier” OR “I’m so tired of all this ‘fighting’ and if it doesn’t stop I’m leaving” (the ‘fighting’ is actually boundaries set that she can’t cross and family conversations about what is going on with her (IE: if you can’t say something nice don’t say anything at all, what we can do to make her happier, why she has to be so negative about ... fill in the blank.) About a 2 ago ish it was suggested that she is tested for Dementia (which she took as we said she's crazy) She continues to forget, say rude and hurtful things, have mood swings, act over dramatic if she is asked to do something, and make herself the victim of every situation and ends up using me as her scapegoat. After her last big blow up about how “we gang up on her” it was suggested that she get tested. She again took it as she is crazy (it was explained that the habitual forgetfulness is a concern) I am truly at a lost of what to do. I’m ready for her to die so I can move the heck on with my life. (And don’t care how insensitive that sounds) I have tried everything I can humanly think of to help her Physically, Emotionally, and Mentally. She either refuses my help or says “nobody ever offers to help me” if I don’t. Would also like to add we treat her very well and 99% of the time we don’t say anything to her about her behavior. What are we not seeing or doing. Thank you for all your responses.
30 Answers
Helpful Newest
First Oldest
First
It's a long tough road, I know. I had to place mom in a memory care facility after 5 years in Assisted living....shes 92. Your grandma can have many years of life left, and you and dad need to decide how they will be best lived. And how your resentment can be minimized in the process. There are many ways to be a caregiver, and it's sometimes best to do it from a distance. You can go back to being a granddaughter instead of a full time caregiver. Best of luck
Is anyone looking at this from grandma's point of view?
This is her house. Her son moves in. Then his daughter moves in. I don't, myself, doubt that the son and the OP believe they're being helpful and respectful and tactful, but to grandma all these hints and suggestions must feel a lot like gaslighting. I'm not surprised the woman's getting paranoid. Thinks you're talking about her behind her back - oh, wait, you are! Next she'll be imagining that you want to put her away in a home, or can't wait for her to die. So that you can move the heck on with your life.
Gracex3, I think you should talk to your father about *what* is going on with the finances, the property, and the plans for your grandmother's future care. I can't imagine - in fact I think you say this - that you want to be there much longer. So what *about* the household income, your name on the title, how your grandmother's care is going to continue in future? And what's more, he needs to talk to *her* about it. Not in a "mustn't upset mother" way, but in a dollars and cents way.
You are going to be trapped in the worst possible position, where you have responsibility but no authority, and where the person who does have authority - your father - is sticking his head in the sand and hoping to muddle through by dumping half of the problem on you. And YOU will be made to feel guilty if you leave him to it. Oh, wait (again) - you already do.
You are a full-time student with a service record. When you complete your course, you will be in a great position to move out and get on with your life. That is what you should be planning to do. How your father then handles his mother's care is for him and her to sort out.
As for your concern about her dementia. You have described how angry and defensive she gets when it's suggested; and you've described how you've reassured her that there are new medical advancements - there are? Do tell - but what you haven't done is describe anything that suggests that she has dementia. The conflicts that arise are just as easily explained by the stress of intergenerational living. For example, you say:
"she insists that she isn’t told the “happenings” of our lives but, she is told what she needs to know"
Well, perhaps she disagrees with your view of what she needs to know. Perhaps she likes to be kept more generally informed about what's going on in her house, and the comings and goings of the people who live there. Or perhaps she's losing her marbles, poor old dear.
Don't misunderstand me. I realise you can't describe her medical history if she won't share it with you; and for all I know she may be showing symptoms of dementia every minute of the day. All I'm saying is that you haven't told us anything that makes me think so.
I know that you are going to think I am unkind, harsh and failing to understand how stressful this is. Actually, I do wholly sympathise, but not only with you. The situation is incredibly difficult for all of you - but she's old, and she's got fibromyalgia, and she's not looking forward to a new career and a new home.
Talk to your father. He needs to do better.
It also occurs to me that just as it seems he doesn't like to tell his mother things that might upset her, he might not like to tell you things that you might not like. The conversation you need to have is about practical facts and figures, and not whose fault anything is.
ADVERTISEMENT
It is very difficult to listen to her accusations when you are trying your best to help her. The first thing is to try to not argue with her. It is so hard to not stand up for yourself and to just go along with untruths. "I'm sorry you think that" is a good phrase to use that doesn't really mean you agree. Walk away from her when you feel you can't deal with what she says. Try writing down important information on a dry erase board (say it's for all three of you) so she can't say she wasn't told about household goings on. She wants to be in control of her life and she isn't. Anger is an easier emotion to get to than fear, so she uses anger to cope. Don't use it back. Breathe.
I realize this sounds harsh, but I have an very alert 89 year-old mother who gave me a dose of reality by explaining that I needed to let her live until she dies. WOW! LIVE until we die. Isn't that what we all want?
I have a mom as complicated and difficult as this, and my only answer is to get, get, get people in any way I can so she has to at least lean on and put up with other people as well as me. I can’t be the target all the time, it’s toxic.
Don't try to argue with her - about testing you have rephrase this as a small regular test so that she can continue to drive [which is on the table now too] as she is 82 .... 'because we want you to continue with your outings'
Look up therapeutic lying on this site as you may need to learn the art - always stay as close to the truth as possible so there is less for you to remember - I did this with my mom ... so if she asked how much money she had I always used an amount that wasn't 'even' like $186,800.00 which sounds more accurate that $185,000.00 because you never know when they will twig onto something
It's very, very hard but reply to her comments quietly and calmly. The 'nobody loves me' thing can be responded to with 'of course we do - do you love us?' Even if she says no, keep your cool and give her 'Well, that makes me sad'. An inappropriate comment about someone can be handled with 'it makes me sad when you talk mean about someone'. -- But listen carefully to things that you and your dad say. Do either of you talk about others in front of her?
It takes a little while to break a cycle of being mad (at whatever) and talking mean. You may never fix it 100%, but maybe you can mellow it out a little.
Respect.
Respect her enough to charge her rent.
Think about it.
Dementia causes agitation and anxiety which causes frustration due to “ losing control” . It gets to a point you have to just do it because they don’t have the basic judgement . If they were independent it’s going to be a war every time. This is where my mother is. She was already a narcissist so now add in the dementia and🙄. Yesterday it was 1/2 an hour of complaining on the way to the dr. I think I’m “a big shot “ so I make medical decisions she wants to make all the while telling the dr she has never fallen ( fell and broke her hip 5 months ago) is 5’7”( was 5’5” her entire adult life 5’4” now ) and she works full time and lives alone with her cat( retired almost 30 yrs ago and lives in an assisted living facility with her cat) . Sometimes you have to just take it with a grain of salt, change the subject and try to see the humorous side of it.
This is off topic but you made me smile ... I’m glad to hear you are “a big shot” since I am a “know it all” and nobody really likes a “ know it all “ according to mom .... one of these days I’m going to ask her if no one likes a know it all then why does she ask me 753 questions hourly ..
This forum is a gift to my sanity and thank you for tonight’s I’m not alone out here moment !!!