Asked to leave assisted living. What are my rights here?

Assisted Living facilities cannot provide the same level of care that a Skilled Nursing Facility can. However, they’re correct when they say they cannot prevent falls. There can be a room full of aides, nurses and therapists and somehow, some way, a Senior will still find a way to fall. My mom did. But, she would take off without her walker, too Does your mom do this? Can you explain to her that she shouldn’t?

I would start searching now for Skilled Nursing for her. To battle her current facility would most likely prove fruitless. It will be time-consuming and probably won’t have a good result for you. If she’s anxious, maybe speak with her doctor about a low-dose anti-anxiety Med for her. This is a lousy situation for all of you.

It's so hard. I also had to move my Dad from his beloved AL when his falls were too frequent. But instead of a NH, I found him a residential board and care facility that could provide much closer supervision. They allowed chair and bed alarms which the AL would not allow. He is doing much better there, and the cost was very similar to what he was paying at the AL with all the services, at the B&C everything is just included in the price. So shop around, and because the B&C is privately owned and not a big chain like the AL, I was able to negotiate the price. The downside is that the B&C, the residents don't have the mental capacity to interact as my dads needs some socialization, so I take him back to the AL to visit his old friends frequently. Good luck!

You may add a 24-hour caregiver which may satisfy the ALF.

It is true, state regulations prohibit ALFs from keeping residents beyond board and care. This is a state regulation (supported by national regulations) which is protective against intentional or unintentional neglect. ALFs do not have the level of skilled professionals nor the staff ratios to care for those who truly meet skilled nursing care acuity levels. This is why it is called a continuum of care.

To avoid transfer trauma, involve your mom in the decision as much as possible.

Good luck.
Donna

She may require the level of care that a SNF (Skilled Nursing Facility) would offer, I am surprised that they are refusing her.
Talk to both the social worker where she currently is as well as the Social Worker from Hospice they both should be able to help you find a place for your mom.

I honestly don’t think you have any rights if it is an assisted living home because those are for people that just need some assistance in getting by like giving them meds, etc. Unfortunately it does sound like your mother belongs in a nursing home. If she is on hospice that means she doesn’t have long to live. My brother was on hospice for a very short time but he stayed at home because his wife was there 24/7 and he had nurses or nurses aids in every day for the short time he lived. He was diagnosed on a Monday and died the next Wednesday. He was 66.
You don’t mention how old she is and this will sound cruel but maybe it is better she goes. My aunt and uncle both had late stage Parkinson’s and lived at the same nursing home. They were like babies physically. They couldn’t do anything but lay there. They couldn’t speak or feed themselves. I think it was worse them being in that shape. Your mother must not be as bad as them because there was no way they could have gotten out of bed or even sit up on their own. It is a sad time of life but hopefully she had a good life. Just spend as much time with her as you can.

Have you checked into the cost of care homes? My mom was kicked out of memory care, she needed more care than they could provide. She was on hospice at the time and they recommended a care home that they worked with regularly. None of us want to have to deal with moving a loved one as it many times causes further decline.

The move from memory care to care home was a good one, overall, for mom. The caregiver/resident ratio was lower and yes, a better fit for mom's needs. The cost? Care home, small privately owned, was a couple thousand lower a month than memory care, a larger nation-wide company. Don't be afraid of the change, it could actually work out better for mom.

My mom passed after being in the care home for five months. She had been at memory care for about a year and a half. It was sad that we did not know about care home availability in mom's area. It may have been a better choice from the beginning.

And yes, falls did still happen. There is no way to stop them.

I'm in NJ but an certified as an assisted living administrator. Here we have definite rules about the services we can provide to our residents. We can not provide NH level of care. My issue is that I don't think this is brought to the attention of resident and families during the initial tours and admission process. The famous (or perhaps I should say infamous) line of " see, your mother can age here" should have an addendum that says as long as she doesn't require a lot of help with ADL's, isn't bedridden for more than 14 days, blah, blah, blah. Some families might then opt (and be able to afford) for a CCRC (Continuum Care Retirement Community) which has all levels of care from complete independence to skilled nursing and rehabilitation on the same campus. A resident might have to change buildings but they could see their friends for lunch and dinner. Of course, CCRCs generally require an up front entry fee (often in excess of 150K) and have a more expensive monthly charge for this reason. They also tend to have slightly more staff (for faster daytime service at least) and most have chefs or chefs in training - ergo--- the is as good as an AL.
The nursing homes are quite correct in stating that they can not totally prevent falls. We used to be able to use walkers (almost like the ones you can buy for kids just learning to walk) for our dementia patients who were going to move regardless of what you put on them. Watched a resident manage to tip it right over. She was giggling as we all dashed to set her right side up. Has your MD or the PT come up with the cause of the latest spate of falls? Is it just the progression of the Parkinson's? Is she able to successfully use a walker or a rollator? Not sure if that would help- just a thought. Maybe a classy wheelchair - preferably with a classy seatbelt (they always try to get up and out of those while forgetting to set the brakes).
Best of luck to you in this difficult situation.

There is a major difference between Assisted Living and Skilled Nursing. Staffing is one difference. It’s unfair for those in AL to have one resident who requires more care. This takes away from time spent caring for other AL residents. Yes, a person could fall anywhere but there is more staffing and oversight in a SNF. When a higher level of care is required, a move to a SNF is necessary, otherwise AL’s would have too many residents needing more care than can be provided for them. This would defeat the purpose of “assisted” living.

Assisted Living Facilities has to issue a 30-day written notice if they are going to discharge a resident. That discharge can be appealed.

I live in Missouri. In Missouri there are two levels of Assisted Living Facilities (ALF), there are ALF I and ALF II. In an ALF I a resident has to be able to make a "pathway to safety" (if there's an emergency such as a fire they must be able to get out if the ALF with minimal assistance within 5 minutes or less). In a ALF II the resident does not have to be able to make the "pathway to safety" and can "age in place" including having hospice services. I don't know if your state has the different levels of ALF's but it is worth checking.

As far as falls goes that can be a deal breaker for many ALF's. You said the skilled home told you that they can't keep her from falling either, true but they are staffed at a higher level than the ALF's so there would be more oversight for your loved one which may mean less falls.

You could contact an Elder Law Attorney for represent you in the appeal process. You may want to contact your local Long-term Care Ombudsman Office, they can file the appeal for you at no cost but you may still want a attorney to represent you at the hearing. The Ombudsman will also know if the discharge notice is legal, in my experience most discharge notices I saw did not meet the legal requirements which I was able to use to by my clients more time to decide what they wanted to do.

I wish you the best, let us know what happens.

After a bout with pneumonia & a stay in rehab, the ALF mom lived at for 4+ years would not take her back due to advancing dementia & too many falls with broken bones they were unaware of. She fell under the radar........was able to get herself back UP after a few falls and didn't call for help, so nobody knew. After a CT scan in the hospital, it turned out she had 3 broken ribs & several broken bones in her sternum in various stages of healing, all from falls we knew nothing about. Mother is devious. Anyway, the ALF agreed to take her into their Memory Care (MC) Unit across the parking lot, which is $2K a month more but staffed more like a nursing home in that the ratio of caregivers to residents is MUCH better than the ALF. Mom fell again today at MC, but that's ok........they expect it. She has bed and chair alarms so when she tries to transfer alone, the alarm goes off and help comes in right away. Is this type of scenario an option for you? I do know that ALFs are indeed bound by certain rules that we agreed to when we signed up.........the main goal is to keep our folks safe and when they can't do that, the folks need to move on. The other thing I wanted to mention is you can hire an advisor who looks around at different ALFs FOR you, to determine which ones will take higher risk patients. Morningstar here in Colorado is one of the ALFs that takes such patients, such as 2-person transfer residents. The rates, unfortunately, are similar to SNFs; the man I spoke with pays $8500 a month for his dad at the SNF at the gold-level of care.

You are correct in that the folks DO take a step down every time they're moved. But in the end, what choices do you have? If the ALF says they can't keep her, then you have to move her, one way or another. If they DO have a MC unit, however, that may be your best bet.

Best of luck, I know how hard this whole mess really IS!