I’ve gotten over the guilt from family members & now while trying to find a long term care facility for mom, healthcare professionals are not talking that with me, pushing me for in home care or a daycare center Monday-Friday. They all say, the goal is to keep her out of LTC! Excuse me, do you put up with what I put up with daily? The nastiness, selfishness & ungratefulness? I don’t think so!!! Mom puts on s good act meeting with them & let’s lose on me while driving her home!!! Again, here we are with people that don’t understand nor really care. Thanks for letting me vent!!!
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I've also noticed that, at least in my area, hospitals seem desperate to get patients out from almost the moment they come in. Within hours of admission, someone will be stopping by to discuss the "discharge plan". Before any diagnosis, even. Before any plan of care, you're supposed to formulate a discharge plan. Oh, and if not ambulatory, they want to start physical therapy, to get you on your feet again, before they even figure out what's wrong with you. Jeez!!!!
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What they mean is "The best thing for Mom is be cared for at home." That's honest. Maybe that would be best for Mom. But Mom isn't the only one involved here. If Mom can stay at home without hijacking anybody else's life, that's one thing. But by the time these conversations start happening, that generally is not the case. Some major sacrifice by somebody else is required, even if Mom is a perfect angel. Which it sounds like your Mom is not.
Unfortunately, you need to push back against people who try to guilt you into sacrificing your own well-being for Mom's. She will adjust to life in a care facility. She'll get better care and more attention there. And you can get back to enjoying your own life.
Best of luck
Back tomorrow visiting LTC facilities, I will speak out this time, I have to. Thanks again for the encouragement.
The people who said 'the goal', well, it's their goal, not yours. You have a different goal. You're trying to have your mom taken care of by the professional because you can no longer do it. Go and reclaim your life.
When someone lays guilt on you, throw it back at them. Tell them to mind their own life, and that they don't know the stress you have because they don't walk in your shoes.
My parents had a primary geriatric doctor, and without asking me about my time frame, she knew right away how difficult it can be for a grown child to be a caregiver. She would schedule testing right then and there so I wouldn't need to take time off from work just to come back to the office.
And when I was in the exam room with my parents, whenever she would ask Mom or Dad a question, she would glace over at me to see if I was shaking my head "yes" or "no". Anything questionable, she would rephrase the question so my parents would have a better understanding.
Healthcare people need to understand that we, the grown child, are not professional caregivers. It's like going on a job interview with zero experience.
Now my MIL. TG the decision never had to be made where she was going. Yes, she came across the sweet little lady to everyone but her DILs. Even now my husbands cousin will say how sweet she was. Yes, as long as you did what she wanted u too. When she didn't get her own way, she got nasty. I think her boys just let her have her way. It was easier. Then they just did what they wanted. My DH new how to handle her. So did my SIL who had been the "girl next door". My other SIL fought her tooth and nail. MIL was not going to rule her roost. That was my SILs job. Me, we had one big blow up and my DH stood by me. I was always respectful and nice. We had some nice times but I had seen the nasty side.
You need to tell these people what Mom does behind closed doors. Take a witness. Stick by your guns. Tell them mentally and physically you can no longer take care of her. She needs a placement. Like said, get a generic doctor who knows what goes on with the elderly. Does Mom have money. Get the doctors order for 24/7 care and start looking for a nice LTC. If no money, apply for Medicaid. They give u 90 days to spend down any money she has. There is paperwork u need to provide. U need to find a bed for her within that time. Placing my Mom went easily thanks to the people at the LTC facility. Mom paid two months privately and transitioned right into Medicaid. If u can afford a lawyer, Medicaid allows you to use Moms money, it does make things run smoother. There's someone else who can help u make the right decisions. Its just that it cost 5K to retain one the both times I needed one. TG not out of my pocket.
When I was young, I used to cry when I got mad. Now, I get mad. Maybe you need to get really mad or cry. "I can't do this anymore".
my mom has Medicaid, looking for placement. Just frustrating that if I don’t find placement in 2 wks or place her in a M-F daycare program she loses her Medicaid status. They push & push this daycare &/or home care. How do I get people to really understand what the daily struggle is!!! We left a mtg Friday for the daycare & Mom was her pretend sweet stuff & tore into me while getting her in the car!!!! Ugh!!!! I’m seeing my Dr next week, I’m hoping he’ll listen & help me with Mon’s placement.
I’m mad & I cry a lot & can’t mentally or physically do it anymore!