She will ask me the same question over and over dozens of times and if I am not present she will call me 40 to 50 times a day. She will not stay home and has a "I don't want to be alone" problem. Attention span is maybe five minutes or less, and she cannot tell time or apply time to appointments. If a care giver is supposed to be there at 9 am, she starts calling that person as soon as she gets up, like 6 am. Cannot do "wait" at all. Her only reference to time is RIGHT NOW. Is all this common or does she have other issues?
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Much of what you describe could be related to dementia but could be a host of other problems also. She really needs to be evaluated.
Make sure she gets a urine test in the doctors office. Many times a U.T.I. (urinary tract infection) can cause strange mental symptoms.
She began to mix up and make up words. Helicopter became hellimacopter. Motorcycle was motormasucker. She couldn't give her birthdate for ID.
She became a silent background, would not converse. Date, time, place, had no meaning. She was once a people lover. Then suddenly other people did not matter and she would be angry with someone for no reason. In 2010, she knew that she was broken and gave her aikido gear to the dojo, her radio equipment to the hot air balloonists, voluntarily stopped driving.
In 2011 she asked who our daughter was.
In 2013 she forgot who I am.
In 2015, she was diagnosed with a combination of Frontotemporal FTD variants.
https://www.nia.nih.gov/health/types-frontotemporal-disorders\
She is now an autistic 2 year old. Physically healthy and hyperactive.
Her brain does not interpret input and she can't comprehend language.
She is physically capable, but she has to be hand fed and hydrated.
If not redirected, she will bump into walls and fall over objects.
Her eyes work, but the brain does not interpret.
She is enraged at restraint, constraint, redirecting touch and loud voices.
I have cared for her since 2006, retired early from my career in 2013.
Christy requires 24/7 supervision.
There are no facilities capable and Alzheimer's medications not only do not work, but have adverse affect with FTD.
https://memory.ucsf.edu/treatments-stays/medications-dementia
Do not allow medications until FTD is ruled out. Christy was given Donepezil in 2014 before her diagnosis.
It further reduced her cognition and bent her over for no physical reason.
A legendary 2nd degree aikido blackbelt, she used to stand erect, aware and would glide as she walked. Now she is still stooped over.
There are no facilities that can care for her.
Family left careers and homes in other states to relocate nearby as caregivers.
From 2006 until 2014 even university doctors did not know.
It was just by chance that I was on the phone with a social worker who's husband had suffered and died with FTD.
The lady recognized Christy's whining and growling in the background and exclaimed,
"OMG! That is FTD! My husband died from that. She is miserable and afraid, you must get her help. My husband became violent and I could no longer care for him. He did not survive long in the facility,"
Once I had the term, FTD, the university doctors recognized it, but it was too late to stop the affects of the meds.
This journey has been long and intense, with more to come.
The artlcles on FTD have evolved over the years and I would assume that I am the most experienced as spouse and caregiver for 13 years.
Christy is prone to seizures as her brain is attempting to reconnect. There is no mediciation for FTD seizures, but we found something that stops the seizures, immediately.
The medicine also affords her several hours of quality life, for us also.
She can actually be a hoot, and we laugh much.
It has been 13 years and I can do this for another lifetime.
https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia/frontotemporal-dementia
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Did these symptoms pop up suddenly?
It is possible to have a mini-stroke, or TIA (transient ischemic attack), and not experience symptoms at the time ... but after-effects may show up quickly after.
To confirm or eliminate this possibility, your wife will need a CT and/or MRI scan. Cognitive testing is needed, as well.
Stroke/TIA after-effects *may* fade over time. I wish I could offer guarantees, but I cannot.
I've been there, or adjacent to there ... and ... I wish you both well! Please keep us posted.
My Mom is moderate/severe dementia..Presents with the aforementioned..Now, tells me she eats bland casserole every day(not so!🙂), nurses don’t wake her for dinner, calls me 12+ times a day..
Easier said then done BUT, pls try to give yourself respite time..I learned the hard way, this will take a toll on your health, and compromise your patience level & strength for caregiving..Hugs & prayers to you & your wife.🤗🙏🏻
If she were "mildly affected" then she possibly would be living in her own home in stead of mine.
I suggest for you to 1. Watch Teepa Snow on YouTube. She is an excellent speaker on dementia and working with dementia patients. I worship this woman and wish someone had told me about her from the beginning.
2. Read the book 36 hour day.
Dementia is not something you want to be surprised by. The symptoms can be hard to cope with. Time to read up.
Keep up your good work but make it a tad bit easier with a little research.
Now go watch Teepa.
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