Mom has been diagnosed with dementia and has been living alone. Doctors and family are concerned about her ability to continue living on her own due to progressive cognitive decline, not paying bills, memory loss, experiencing hallucinations etc.
Mom has been very obstinate about anything wrong with herself, and insists we butt out of her business. Luckily when first noticed changes with her I got a POA and became joint on her bank accounts.
Tried introducing mom to a few Assisted Living facilities, she was assessed as more in need of Memory Care which was outside our budget and mom was adamant not like people in those places. Fast forward we found a board and care home that felt like she would still be able to have a semblance of life she could be comfortable with. Mom has met with caregiver a few times and seemed receptive to moving in. Now we are at moving day (Saturday) and mom says she never agreed to a move, and she’s not going anywhere. I am stressing how to get through this. I do have POA and doctors written assessment she has dementia and is no longer capable of making financial or care decisions on her own. Any suggestions?
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Kudos for having your POA in place...
that’s a huge accomplishment to have in place already.
As a patient, my mother is completely non-compliant... in her words, she can self diagnose just fine since ‘she used to be in the medical field’ (not true) and she knows what’s best for her body. Nonetheless, she wants to see every specialist she can. But when she has needed something, I have to be there. That ‘presence’ comes at a tsunamic emotional and physical cost to a caregiver if left unchecked.
First, I agree with having either a primary care or pharmacist review current meds. I don’t think doctors generally take a concerted look at meds often enough, particularly when specialists intervene by adding/changing meds for specific ailments and not thinking through conflicts. This could have helped with the transition to assisted living.
If your elderly parent is diabetic, I can’t emphasize enough the importance of monitoring sugar levels and regular control of insulin. My mother insisted that she could manage it on her own, and she absolutely could not. But she also refused to let anyone help. This took a long while for me to help her get a handle on, but looking back it’s probably helped the most. She’s now in a nursing home, and she’s lost a lot of extra fluid and weight and at 89 looks better than she has looked and felt in the past 5 years.
Lastly, I want to clarify some of the comments made re: moving day. I don’t think the strategy of ‘stop talking her into it’ is quite the right message.... but I think that I understand the intent. My mom did exactly the same thing prior to moving to assisted living. She didn’t want to go, right on moving day. In response, I was very direct but calm: I reminded her that she picked this location and that she has made the decision, and that we had both gone through a lot of planning for the move. I also reminded her that while her living with me over the years was fine, I couldn’t provide the level of care that she needed anymore. I still got the rebuttals and guilt trips, but I anchored to my logic with her every time I responded. It’s not easy, but it’s necessary. And as I prepare, today, to visit her in the nursing home (rated one of best in state), I just prepare myself for the next rebuttal and guilt trip. Like one respondent said - just know, there is nothing that you will ever do from this point going forward that will ever make them truly happy. This is part of the aging process, and the more we can accept that as caregivers for our parents, the more progress we can provide for all - we help our parents move on, we help ourselves move on, and we have the best chance (not guarantee, but chance) of maintaining that parental bond as best as we humanly can.
None of what I said above is easy. I am living proof, for my caregiving experiences have been life altering in every way. But I am finally at a point where I know how to move forward for myself and live more for me and not just for others.
Best of luck!
It isn't all perfect. I have to keep an eye on her and she does have episodes of "bad behavior" - but I know she is safe, gets her meds, gets food and is with people who know how to take care of people with dementia.
Good luck! This forum was my help (and the wonderful people at the community who told me "I" would be ok!)
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I finally got my mom in assisted living after a bad fall. Straight from the hospital. Dad had dementia so I had to use a bit of trickery. I’d take him to have lunch and dinner with mom then on about the 4 day of this told him I needed him to stay and help mom for a while. He bought that but we had several weeks of hell and back with dad trying to find his car and go home. It took about 3 months for him to start forgetting about the car and home and he finally settled in.
Have Mom’s room set up with some some of her favorite, familiar things. Be positive about the move. Mom will be furious and try to lay many guilt trips on you. Enlist the help of the staff. They’ve done this many times before. Follow their advice about visiting. Keep in mind that you are doing this to keep her safe and cared for. It is not easy. This whole process of dealing with dementia in a loved one is not easy. But, unfortunately, it’s a fact of life. No doubt it stinks, but it has to be. Good luck and come back often.
And everything Joy said.
The original one was horrible, but she was a danger to herself and others, so DHS stepped in and I had the legal power to make it happen. After the first 6 weeks, she was ready for a move to the next facility where she was for nearly two years until she was ready to leave that one when they wouldn't take care of safety issues, and I was concerned for her well-being there. The next one was okay for about a year until the A & B occurred. So...been there, done that numerous times. Doesn't make it easier, but things change and it has to happen to assure safety for the person affected and their family/friends/neighbors.
Totally agree— ultimately the right move that works for her is best for all. The challenge is guiding our elderly parents through the process and it is not easy.
Thanks for sharing!
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