I've been caring for my aunt's 88-year-old mother (we'll call her "A") since April. She's almost completely wheelchair bound (she's able to stand long enough to transfer to and from a bedside commode, her bed, and her recliner with some assistance) due to arthritis in her knees. Other than that and high blood pressure, she's physically healthy. Her cognitive faculties are fully intact (no dementia), but her behavior is starting to make me feel crazy, and I'm worried I'm going to snap.
She's extremely dramatic. She bursts into tears at the slightest thing: an ant on the kitchen counter, forgetting to put something on the grocery list, a slight power flicker during a thunderstorm. And she's constantly making the most annoying noises: she'll make random whimpering sounds throughout the day (at first I'd ask her if she was okay and she always said yes; now I don't respond), but the big show she puts on is when she's being transferred. She starts panting, whining, gasping, grunting, and just having the biggest fuss. It's like nails on a chalkboard to me. Initially I tried to comfort her because I figured it was bad anxiety. Now I've realized it's all an act for attention.
"A" is able to transfer herself to and from her bed and the portable commode during the night and her afternoon naps without assistance, and when she's alone, she does this without a fuss. I know this because I've been outside her door, heard complete silence, then entered her room to see her lowering herself onto the toilet. And the second I step into the room, the theatrics start. Also, she doesn't make these sounds in front of certain friends of hers, or in front of random strangers who come in to fix the A/C or pest control or whatever.
I figured that if I ignored these undesirable behaviors, she'd stop. But she's still going strong. I can't voice my concerns or frustrations with her because she'll throw a tantrum and lash out. She honestly acts like a three-year-old and it drives me nuts because she's fully aware of what she's doing. She will scream and yell at people when she doesn't get her way. Yelling is a huge trigger for me, as I have PTSD from abuse, so I tiptoe around "A" to avoid setting her off.
Then there's the incessant complaining and negativity. Nothing's ever good enough for her. Everything is AWFUL and she's just waiting to die. Despite the fact that all of her needs are being met, she thinks her life is oh-so-terrible. I bend over backwards to please her and it's just never good enough (food's too cold; I gave her the wrong color washcloth, I gave her a teaspoon instead of a tablespoon, etc).
I've tried discussing these issues with my aunt ("A"'s daughter), but not a whole lot is being done (my aunt lives hundreds of miles away and can only visit occasionally). I literally care for "A" around the clock… the only time I have off is Fridays, from 9:00am to 6:00pm, when a substitute caregiver comes in. That's it. I live in "A"'s house rent-free and get paid $200 a week in exchange. The main problem is my family's lack of money for other caregivers. I moved in with "A" not only to ease that financial burden on my family, but also because I was fleeing a toxic relationship and had nowhere else to go. I'm currently searching for a job that will allow me to get away during the day and hopefully save up enough to get my own place and move out. But I feel so guilty because my family is in such a financial bind. I hate that I feel so intensely angry at "A", because I know she's genuinely unhappy. But she's very stubborn and resists all suggestions to help (such as increasing her pain medications, seeing a therapist, etc). If this were dementia, I'd be less irritated. But honestly she's in control of her actions and knows exactly what she's doing. I am sympathetic to her situation and do care about her, but I'm honestly close to my breaking point. Any advice is much appreciated.
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DITCH THE GUILT!!
You are being paid peanuts to be on call 24/7 and to take abuse too. Your family is abusing you by making you feel you are 'necessary' for aunty to abuse.
OF COURSE aunt's daughter doesn't have time to discuss this--if she does, she'd maybe actually have to step up and DO something, and sending a little check is so much easier.
It is good that you escaped a toxic relationship--into another one. Not as bad, I warrant, but you, my dear, are certainly being abused here.
The fact aunty can move herself and function when not being observed speaks volumes.
Keep looking for the job and saving every cent you can to get out of there.
PTSD is nothing silly or unusual to deal with. I do. It's awful. Triggers that get me going will start a panic attack and I am just too darn old for it anymore. Can you afford some therapy? Are you on meds to help deal with flashbacks? As long as you live with this toxic woman, you're not going to heal.
Oh, and your FAMILY'S financial woes are NOT your problem. The main problem ISN'T the family's lack of money, it's that they don't see a problem. You're there, problem solved.
May I ask how old you are? And what kind of job you are looking for? Do you have friends to lean on during the transitional period of leaving the aunt's care?
Get your ducks in a row and give notice that as of XXX day you will NOT be available to work for them. And follow through.
Believe me, you're tougher than you think.
{{HUGS}}
Yeah, the money issue is definitely less than ideal. It's just that the cost of living is so high where I live with this woman, and her insurance (Medicare, I believe) won't pay enough for a professional caregiver. My aunt is trying to get more benefits, but the process has been so slow.
I do feel trapped, but not nearly as trapped as I was before (living with a jealous, manipulative, controlling partner). I'm not expecting "A" to be a happy ball of joy; the aging process seems like a slow torture! But to constantly moan and cry about things and then not be willing to make an effort to improve them - that gets me (for example, she'll cry about her knee pain, but refuses to take more than Tylenol even though her doctor has offered something a little stronger). I feel bad that she's obviously hurting and unhappy, but I myself used to suffer from terrible depression, and I made it a point not to talk about my misery 24/7.
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1st off if she can transfer with no help, stop helping her transfer. Leave the area when she needs to transfer. No audience, no performance.
2nd if she starts the whining, you can whine back. It stops young children almost 100% of the time. It is the wrong response and they just don't know what to make of it.
Your family can not pay you based on how expensive rent is where you moved to be her caregiver. They need to pay you at least minimum wage for 40 hours weekly through a payroll service so that you are contributing to your retirement by paying into social security.
I used to work with a woman that was a whining, negative difficult human to be around, one day I had had enough and I asked her if she wanted some bread and cheese with that? She was clueless so I asked her if she wanted some bread and cheese with her whine. She didn't whine around me much after that, but I asked her every time she did. I shocked her enough to change her attention seeking, nail scratching behavior.
Best of luck. I so understand how it makes life difficult and the days so very looooooooonnnnnnngggg.
But it sounds like you're being abused still... by this woman and by other family members who figure you're the best person to put up with this woman's craziness. They're using you as their dumping ground for all the crap they don't want to do, and just because they (barely) pay you doesn't negate their dumping on you.
I think by now you know you deserve better and can do better. Make your goal to get yourself out of this situation. You have a lot of life ahead and it can be so much better!
It's hard to think of this situation as being abusive because it's not like "A" hits me. She's not physically violent. And as long as she gets her way and isn't challenged, she's relatively kind (just very, very whiny and negative).
I try to view this situation as a means to an end. I know I need to leave eventually for graduate school (starting next fall). The issue is that I don't have the means to move out just yet. Hence why I'm looking desperately for a new job!
It sounds like to me Aunts Mom is on the boarder of Dementia or she has a problem family isn't aware of. A person in their right mind does not get upset over the things you listed.
You do what you need to do for you.
I don't think it's dementia; her memory seems fine. My aunt said that she's always been a negative, whiny person. Based on my background in psychology, I'm thinking it's an untreated, undiagnosed personality disorder (likely histrionic or borderline).
Thank you for your response!
Make plans to get out of there asap and don't look back. Good luck!
Plan a move out date......
Give 2 week notice and move out on that day.
In the interm get yourself a pair of noise canceling headphones and wear them or use earbuds and listen to an audio book or music.
No sense on walking on eggshells if she doesn't care how she comes across to you. By the way, there are excellent books out there on how to create boundaries. I'm thinking you've had some issues with this as you stated. So if you can't afford a therapist, get a book or two and practice this essential part of self love and self care.
And you are obviously not cut out for caring for someone like this and that is OK. Not everyone is. So don't feel badly that you aren't. If some family member asks why you're leaving or tries to guilt you into staying, just tell them bluntly "I found this isn't by calling." End of story and leave it hanging there. Repeat the phrase as necessary. No need to go into ANY further details.