I am an only child doing my best to visit my mother every other day, cook for her, listen to her complain how lonely and miserable she is. She lives in her house, which is not fancy but nice. My mother doesn't have any grandkids, just a 56 year old daughter who is doing her best. I talk to her about going to a nice Assisted Living facility in our area. She doesn't want that. She looks out the window of her house and sees life moving forward, but since she had a small health issue last December, she has given up. Up until then, she was sooooo active. My father has been deceased for 15 years. I only stayed with her one night and that's the day he passed away at home. Very strong and independent (well, use to be). She has had so many loved ones and friends die, and I really never saw her cry. She never dwelt on things or too much of a worrier. If something happened, it would upset her and then move on. After she had that health scare last December (fainted with a bleeding ulcer we didn't know she had), she hasn't been the same. She doesn't go anywhere, but to the beauty parlor once a week. It takes her hours to do that. (not physically but in her head). She worries about everything. She use to love watching tv (soaps, Dancing with the Stars, etc). Nothing. Just kind of lays in the bed. I'm not a doctor, but I think she suffers from depression and an anxiety disorder. I have gotten her some meds when all of this started, but she will not take them. She says she will be a zombie. I have a wonderful husband, but I am not going to burden him with all of these details. When he sees her every several weeks, she said she looks good. She does. Truly, the problem is not physical. Sometimes, I just need to share this with someone who is experiencing similar things. My colleagues are all young so I really don't have any one to relate to. Thanks for the forum.
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To share: What I have learned so far is that I must remember that she now has an irreversible disease of the brain. With dementia, the executive function of the brain is broken and they CANNOT remember, cannot plan nor do complex things, and they CANNOT help themselves nor what they are doing, even though they desperately want to and may (or may not) know it is difficult or irritating to me/others. So they become stubborn, anxious, irritable, and push back against everything and everyone because they are trying to hold on to their independence and control as much and as long as they can. Many, including my mom, will not take medications. The reason is usually because they have seen other loved ones or friends who were over-medicated in assisted living and nursing home situations and don't want fall victim to that. Heartbreaking.
Tough love and /or reasoning does not work with dementia patients...they often cannot remember what they did, even a few minutes ago, nor what they are doing or why they are doing it. So many losses they are facing: often they are deeply depressed about having lost the dear family, friends and people they know and love. They also experience profound loss of their previous capabilities and abilities due to the disease they have, and as a result the try to hang on to as much control as possible. They no longer feel needed and that they are just "in the way" with nothing to live for.
I have determined that my job is to love her as she is now, be as involved with her as I can and allow her to do what she can and help with the rest that she cannot do. I do my utmost to treat her with respect, dignity, and honor... the same way I would want to be treated in a similar situation ("do unto others...") and try to work around these difficult issues with her as best I can. I have also realized that we are now in a different season of life and her personality is now different than the mom I knew as a child. But I believe we can still have a good relationship - just different now.
Here is a very good list that I received from CereScan.com/conditional/Alzheimers that has been very helpful to me. It is serving me well and I keep it posted by my phone as a reminder:
Living with Dementia:
1. Agree, never argue
2. Divert, never reason
3. Distract, never shame
4. Reassure, never lecture
5. Reminisce, never say "remember"
6. Repeat; never say "I told you"
7. Do what they CAN do, never say "you can't"
8. Ask, never demand
9. Encourage, never condescend
10. Reinforce, never force
I would also recommend reaching out to the Alzheimer's association in your area for someone to discuss available resources for your situation and various ways to handle it.
I am praying through it all every day, too. Day at a time...
Best wishes to you
Good Luck!
Don't give up😊
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Mom needs professional help. She needs meds and perhaps a social worker to speak with. She needs someone who knows how to challenge her wrong thinking in a healthy way.
At this point, you are enabling her misery. If she doesn't have dementia, getting up and leaving when she starts in on her tale of woe may shake her up. Insist she see her doctor.
I too am an only child who refuses to enable my mother in ANY way. Her drama & histrionics have been a huge burden for me my entire life (62 years) and I refuse to play into her antics anymore. I managed to get her on Wellbutrin back in 2011 when she refused to leave her apt after an illness b/c she felt 'ashamed' and like everyone was talking about her behind her back. The meds DID help quite a bit, but it's still been one thing after another since then. She's now 93 in January. I wound up moving both of my folks into Assisted Living in 2014 after dad broke a hip and rehab refused to release him back to independent living. That was THE best decision EVER, because dad passed in 2015 & now mother is taken care of and she has social stimulation, activities, etc.
In my mother's case, the ONLY thing that works is tough love from me. Anything else backfires and keeps me jumping through fiery hoops and getting nowhere. Like a hamster on a wheel.
Your mother may need some tough love too, since commiserating with her every day isn't helping. Get her to start taking her Rx or get her back to the doctor for another workup. Otherwise, stay away for a while & see if she comes around to your way of thinking.
Best of luck!
I think it might help to go back a bit and see if you can't find the end of the thread, so that you can start untangling things. What caused the ulcer?
It's often overenthusiastic use of over the counter painkillers. If so, then of course you need to ask... why did she need regular pain relief?
Meanwhile, bear in mind that your mother's having real problems, a reason why you and we should and do sympathise with her, does not mean you can solve them! Quite often you can't; and then although you still sympathise you definitely want to cut back hard on efforts and sacrifices that just won't help her.
Your mother is 88. There is a limit to how well and how happy you can expect her to be, you know.
And don't make the mistake of thinking that psychological and physical difficulties are distinct from one another. Very often they are tightly intertwined.
Since she was forced into contact with the medical profession last year (I'm guessing she's not habitually a fan?!), what have her doctors had to say about her health in general?
I witnessed this situation with my own Mother and it is very tough on them.
I fought the doctors re: putting DH on Zoloft until the day I saw him so depressed and his head hanging down from worries. The Zoloft helped him his last year on earth. I had no regrets as I had to allow the Zoloft to allow him to continue living his last year.
Good luck and remember, there is still hope.
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