Is there dementia literature out there that would help some of my other family members understand what my mother is going through?
Mother how has dementia. Some family members seem to think she is still able to make financial decisions and other things. I don’t think they understand
Jarkab, There are so many articles, and questions covering family members understanding a parent with dementia right here on the Aging Care forum. You have come to the right place.
In the search bar above, enter "helping siblings understand dementia".
Yes, Jarkab. You will want to focus on 'Executive function", which can be found online. Helping family members understand is harder and frustrating when they are in denial. You may find yourself labeled as the bad guy for your efforts.
If you are the primary caregiver, focusing on your mother's care will be challenging enough. imo. Still, maybe worth an effort to try to get siblings on board. imo.
What are the 7 executive functions? Executive function and self-regulation skills depend on three types of brain function: working memory, mental flexibility, and self-control. These functions are highly interrelated, and the successful application of executive function skills requires them to operate in coordination with each other.
Here is just one article: "Siblings in Denial About a Parent's Declining Health"
Jarkab, there probably is, and you might start by contacting the local Alzheimers' Assn. and also any associations specifically focused on other dementias.
There's also an excellent movie clip which I saw when the Alz. Assn. offered a free class titled "Creating Confident Caregivers." The movie was very, very informative, and enlightening, but also extremely painful emotionally. Some of us were in tears by the time the third segment began.
The movie focused on a small group of women in care, presumably AL, or a basic level of care (I don't recall at this time). The women performed various tasks, including making a sandwich. As time progressed, one of the women was unable to make a sandwich - she was unable to recall the function of a knife, or of mayonnaise, and couldn't untwist the tie on a loaf of bread.
It was SO illustrative, sad, and heartbreaking.
I don't remember the name of the movie, if there was one, but you could contact the Alz. Assn. in your area and ask about the CCC course, and if the movie is available. The CCC course I believe used to be available on DVD.
You could also ask the staff in the office of the physician who D'X'ed the dementia for literature references.
Some hospitals have community education classes. In my area, I've found that the Catholic hospitals have more classes than for profit ones. There might be a class on dementia generally, with handouts that you could get and share with the family.
I do think it's natural for people to be in denial about dementia, for various reasons, including the heightened focus on its breadth and scope.
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https://www.youtube.com/playlist?list=PLVl8vTLjje8ESAEvpjVoVTEK-_6X2jTdl
There are so many articles, and questions covering family members understanding a parent with dementia right here on the Aging Care forum.
You have come to the right place.
In the search bar above, enter
"helping siblings understand dementia".
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You will want to focus on 'Executive function", which can be found online.
Helping family members understand is harder and frustrating when they are in denial. You may find yourself labeled as the bad guy for your efforts.
If you are the primary caregiver, focusing on your mother's care will be challenging enough. imo. Still, maybe worth an effort to try to get siblings on board. imo.
What are the 7 executive functions?
Executive function and self-regulation skills depend on three types of brain function: working memory, mental flexibility, and self-control. These functions are highly interrelated, and the successful application of executive function skills requires them to operate in coordination with each other.
Here is just one article:
"Siblings in Denial About a Parent's Declining Health"
There's also an excellent movie clip which I saw when the Alz. Assn. offered a free class titled "Creating Confident Caregivers." The movie was very, very informative, and enlightening, but also extremely painful emotionally. Some of us were in tears by the time the third segment began.
The movie focused on a small group of women in care, presumably AL, or a basic level of care (I don't recall at this time). The women performed various tasks, including making a sandwich. As time progressed, one of the women was unable to make a sandwich - she was unable to recall the function of a knife, or of mayonnaise, and couldn't untwist the tie on a loaf of bread.
It was SO illustrative, sad, and heartbreaking.
I don't remember the name of the movie, if there was one, but you could contact the Alz. Assn. in your area and ask about the CCC course, and if the movie is available. The CCC course I believe used to be available on DVD.
You could also ask the staff in the office of the physician who D'X'ed the dementia for literature references.
Some hospitals have community education classes. In my area, I've found that the Catholic hospitals have more classes than for profit ones. There might be a class on dementia generally, with handouts that you could get and share with the family.
I do think it's natural for people to be in denial about dementia, for various reasons, including the heightened focus on its breadth and scope.