My mother is in hospice care but seems like she is no where close to really dying. I took a leave of absence to take care of her thinking that she was going to live a short amount of time. That was 5 months ago. Five months of no income. She deteriorates to the point where I think there is no return, but then she bounces right back like a rubber ball. She has had several rebounds and they are killing me. I feel like I am on a roller coaster that will never end. I love my mom but I am SO ready for her to die, just so I can have my life back. I feel like there is no end in sight. How can I retrain my thoughts to be positive instead of feeling like I'm in total despair?
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Rehab 14.. As my Dad and i were leaving day 14 to get mom home ...my dad had sudden numbness as we were leaving and i called 911. He was in icu 5 days. I got mom home and my sister came. A neighbor helped me get her home and her husband went with my dad. My sister came snd stayed 14 days. We had to learn to use the peg...which is tube to care for mom...Dad learned a virus must have attacked his heart 10 to 15 yrs ago without him knowing and all these yrs...only a third of his heart has been alive. That virus killed all but a third of his heart and he never had one symptom or weakness for all these yrs until a gentle warning sign recently. They put a defib vest on him and he has worn it 60 days. He is a sweet man and helps me a lot...He has a defib implanted in two weeks. Dad is amazing. How can it be?? He played avid golf for yrs...GOD IS GOOD. I spent 4 days in a row last week bathing mom multiple times daily due to diarhea from meds. It got difficult...because it got everrrywhere.....Day 4...i burst into tears. Mom looked up and said..."I will pray for you." That melted my heart. She was the verrry best mom ever. She took good care of me when i had rheumatic fever at 7 yrs. I had a moment of grief and i stood there looking at my sweet mom and the poop and my sweet daddy with his heart monitor and i realized i was grieving for them and for me. I said..."Lord...thank u for my precious parents." I wiped my tears...hugged them and realized i needed to get out and start exercising again...but u get so drained and talk yourself out of it. I do get out some and eat out...but i find nothing works better than walking 20 min a day...outside and at the gym. I keep it simple. I also realized this is just one small season of my moms life...Mom has to have assistance walking and eating. I journal often...walk daily and take drives...I find peace in just keeping life simple and quiet within right now. I pray a lot and pray for others...in my prayer journal. I.paint and draw...because i started a new hobby in doing so. The sweetest part of our day is when we tuck mom in each night. Dad kneels and prays on one side of her bed and I kneel and pray on the other. Then mom prays. It is a beaautiful time and sight. Dont leave God out of your sorrow. Rather than me feeling my life has been taken from me...i see my present season as a new calling. A teacher for 31 yrs and youth leader in ministry 2 yrs...after retirement and now, at 55 yrs..care giver for my precious folks in thrir season of greatest need and love. I fight depression and grief...myself...i miss my life!!! But...i see it as a season of quiet trust and soul.searching and service. I have monents i feel despair...and my sister named those "sinking spells" and we will tell each other we are having a sinking spell and step away a few hrs and renew. I keep a gratitude jourmal as well...which may be a drawing or news clippng some days. My sister is 4 hrs away. I am here by myself. She cones asneeded
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My mom has dementia and we are on year 8 with no end in sight. She is physically healthy otherwise. Watching the end of someone's life drag on and on is hard...especially if they have no quality of life, it does make you pray for it to end. I'm sorry you are dealing with this and I hope you can figure out some way to return to work or at the very least get someone to relieve you for part of the day so you can catch a break.
I was so burnt out during my mom's care I couldn't even fathom doing much else. A neighboring city may have well been on the moon. I would look out windows and see planes fly and feel imprisoned. I never let the parent know how bad I truly feel. Now, I am at least researching other cities and places, , places we may want to go someday if we are not too old by then. Some days I am hopeful, some days I am really depressed, I get through this by learning about places and watching sports, doing little things and grabbing any moment for myself if and when I can, even if it is just a good cup of coffee or tea. Compartmentalize...one day at a time and keep believing there is a door at the back of this dark room and one day it will open and our parent will find peace from the rough times of decline.
Difficult times are like a truth serum. We get to (unfortunately) see people for who they are. All those “Good Time Charleys” are not worth your time.
I truly believe that the goodness and kindness you are showing by taking care of your parent will pay off a thousandfold.
Karma is real and you will find great happiness when you are a great person who does the right thing.
Great advice you give.
Depression and loneliness are cousins. Loneliness is treated by getting together with others - especially where you can feel useful. Depression is darker and a little harder to treat. Treating depression takes many forms with varying degrees of success - medications, light therapy, exercise, cognitive behavioral therapy. Start with treating yourself for loneliness and if that doesn't help... see your doctor.
1. We basically had to force her to sign on with a CDPAP, so that I could get paid a small sum to enable me to hire help so I could get a break once a week. ( she said I shouldn't get paid to care for my own mother). She is bedridden and can't be left alone. This also affects my husband since we both gave up the life we had and feel chained to the house. Now we go out for 6 hours every Wed. And the aid also does 1 of her showers on Monday.
2. My husband starts dinner while I walk on the treadmill for 30 min. A day.
3. A friend is trying to come on tue. So I can go to bible study.
Keep your chin up and try to build some breaks into your day.