The residence where she lives gives us news from her and even post pictures on a private Instagram. She seems happy and very active.
Impossible to communicate with her though by any means because she’s deaf and almost blind and she was beginning to be unsure who we were the last time we saw her.
She’s the happiest when she believes that tomorrow (it’s always tomorrow) she’ll return with her parents in her native village.
How to cope if she doesn’t recognize us and what to do with her, what to say?
I prefer to know and be prepared to avoid awkward moments that could make everyone unhappy and mostly her.
Thank you
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Tips on Coping When a Loved One Does Not Recognize You
Acknowledge the Loss: As with other grieving processes, it's okay, and often necessary, to let yourself grieve this decline in your loved one. You don't have to be stoic, even if you've read up on what to expect and you know the change is coming.
Remind Him: If you sense he doesn't recall your name or who you are, simply remind him once by saying, "We haven't seen each other in a while. I'm your nephew Sam."
Give Credit Where Credit Is Due: Remind yourself that this is due to the disease process and not a choice by your loved one. It's the Alzheimer's disease, vascular dementia, Lewy body dementia, or other types of dementia that should take the credit/responsibility for the loss of ability in your loved one. When he remembers your sister's name and not yours, try not to take it personally, even if it hurts your feelings. Blame the disease.
Respond Gently: When your loved one doesn't remember you, your goal is to decrease his anxiety or worries, not increase them by pointing out that you've been married to him for 50 years and asking why he doesn't love you anymore. Instead, you can try to change the subject or sing a favorite song with him.
Validation Therapy: If your wife continually refers to you as her father, ask her to tell you about her dad, what she misses about him, what he looked like, what he did as a job, and what she loved about him. Give her the opportunity to share her memories of him, rather than try to force the issue and make her identify and remember you.
Photos and Videos: Show your loved one older pictures of family and friends to reminisce together. It's likely that she will remember more from long ago and this exercise may sometimes trigger her to recall more recent items as well.
Seek Medical Help: If your loved one's inability to recognize or remember others is making her (NOT you) feel anxious and frequently distressed, if her paranoia is affecting her eating or sleeping, or if she is fearful of you to the point of becoming dangerous to herself or others around her, call her physician. There may be appropriate medications or other treatments that can address the cause of these behaviors and decrease her distress. While a physician won't be able to reverse her dementia, medical treatment can improve the quality of life for both of you.
A Word From Verywell
Some research has found that the positive feelings after a visit with someone living with dementia remain long past their memory of that particular visit. Remember that if dementia causes your loved one to not be able to recognize you, spending time with him can still be beneficial and uplifting to both of you.
Obviously, the photos & videos won't work if she's nearly blind.......but stories could be substituted for photos in that case, I would think.
Here is a link to another site with some useful info on the subject:
https://www.rehabmart.com/post/my-parent-doesnt-recognize-me-anymore-a-caregivers-guide-to-coping-with-alzheimers
Such a tough situation many of us (me included) are facing with this virus and not being able to see our loved ones in care communities. I do believe they are all suffering even more cognitive decline as a result, making us feel even MORE helpless as a result. Sending prayers for strength and hope as you navigate this difficult time.
I appreciated how to react when mom take me for her mom (validation therapy)or to use stories of fond memories. I know that to work!
Good also to remind me that the pleasure she will take of our presence doesn’t depend on her memory!
And that to succeed in being gentle I must let myself grieve first of all...
Thank you! God bless you!
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This is a difficult situation at the best of times and the pandemic has made it so much worse but we are all here for you and each other. God bless you.
My mother used to asked me when I came into her room, "Did you speak to Mama?" (She was referring to her own mother who had died 40 years ago). The first time it happened, I was shocked to death. But I asked her, "Oh. Is she here?" My mother would say, "Yes. She's right up there". And she would point to a corner in the ceiling. It brought her comfort thinking her mother was there with us. I would look up and say, "Hello". And my mother was happy with that. One time right in front of me she told somebody she never had any children. WELL SHE HAD ME!!!!!!!! It hurt my feelings, but you will learn to accept it. The last six months she lived she thought I was her sister. I just played the role. She had six sisters. Did she pick the nicest one to be me? Nope. She picked the mean one nobody got along with! That made me laugh.
Bless you. I hope this has been helpful for you.
Unfortunately there is no telling how our loved ones will react once we are able to reconnect with them!
Love and patience!
God bless!
I talked to my Dad went out and bought his last ice cream and he quickly asked where’s the cake? So much for memory lost. 😑. He heard I love you Dad, Willie, and was fed by me one last time. If it had not been for the knockout gas given and he was at home his racing heart would’ve subsided on his own but at 89, the lawyer asked me, “What good is he?” “What can he do”?
I didn’t want to scream. but my mind just travelled back to all the joy he brought in our lives and the goodies he brought from the bakeries over the years. The stories he told. What a fine man, Husband, Father, Brother, Uncle, Maternal Blackfoot Indian, business owner, Deacon, outstanding son, community activist and voter. Only education precluded him from being a statesman. Education should not have been what disqualified him. His heart and head was superiorily compassionate.
So, remind your Mom, and say “thank you”, for all you did by being actively involved with us. We love you immensely and immeasurably worlds without end. Forever and ever. Sing a song she loved. Tell a story. Hold her hand! Reminisce of treasures unreplaceable money could not buy. Do you remember that time Mom.. just keep talking and singing and praying. It’ll work wonders!
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