Mom agreed to assisted living. Everything was paid for and set up. Furniture moved. Even Pictures hung on the wall. An hour before she was to go there, the nurse of the facility told her she would meet with her in the morning to discuss her medication management. At that moment mom called it off. She refuses to go now because her medications will be managed. I'm quite aware my mom has an addiction problem ...Thats why we chose to go to assisted living. Now I'm out over $6000. I live overseas. Friends did the moving. I can't ask them to move it back. I don't want to ...because the same stuff of repeated hospital visits for "anxiety," falls, and depression are going to continue. I'm at a loss. I don't know what to do. Is it time to step back and let her go it alone?
She blames us all for pushing her, even though she was excited for the last weeks until it came up about the meds. She is now living in her condo which has no bed, an uncomfortable pull out sofa and no clothes (all at the facility) not even a coffee pot. But she said she prefers this to having her meds managed.
I'm at a loss... Any thoughts welcome.
Only child...no other family
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ONE pain pill at some point in the day is probably not covering her pain well. Prozac is taken everyday, or it's pointless. An occasional Xanax is not a problem. A LOT of people take something to help them sleep. Without good sleep, chronic pain becomes the overarching theme in your life.
What she NEEDS is a pain management dr. who will listen and compassionately treat her. Then, when she feels she can ask for and receive the meds she NEEDS to keep comfortable--I bet she sings a different tune about moving.
Until you have lived with chronic pain-- the kind that NEVER goes away, but is simply managed so you have a semblance of QOL, she isn't going to be amenable to letting someone else handle her meds.
There are MANY different 'cocktails' of meds mom can take to relieve her aches and pains. Just labeling her a drug addict doesn't help and is super offensive to those of us who DO have to take something daily to manage pain.
Just my opinion. And personal experience.
We have a poster here, Dorker, whose dad has chronic pain and is in end stage cancer. His demented wife INSISTED that he was abusing Oxycontin. Dorker believed her.
It comes to pass that dad is hospitalized and in rehab and Dorker mentions this "addiction" to the staff at all of the places. The medical professionals see NO issue with the number of pills that this elderly man is taking.
Pain is a frightful thing. I know that you are far away and that that makes this whole situation terribly fraught. If you have a label of "addict" from a qualified medical professional, then so be it. But taking 3 pain pills a day does not an addict make.
She has decided to stay in her home now.
She was reported to the authorities after the last time she was in the hospital that she should not live alone. They called me and I told them we organised assisted living. Now I need to call them to update.
In home care is not an option financially. We have a Long term care insurance that she chose but only covers ALF or nursing.
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Step back, call APS (or have a friend do it). Do not sign as "responsible party" for any of her care, unless you are signing for her her POA.
Have you tried showing her that you understand her reluctance, her fears, her grieving over loss of youth, health, vigour, independence? When we're young we have doors opening, paths to choose from, future possibilities that are exciting and almost unlimited. As we grow older our options narrow, and most of our lives are behind us.
When older people rudely rail against those who try to care for them, it is not you they are against, it is the hard things of life, and of getting older, that bug them. Of course in an ideal world they would not take it out on their carers. But some personalities do that.
We can fight their personality and resent them (easily done, hands up!) or we can figure out how best to help them manage their emotions and behaviour.
It sounds in this case like your mum has clearly stated exactly what she does not want - to have someone else control her medications. I understand that! It is likely that there are other areas where she fears that others will be increasingly controlling her life. Her choices are already limited by time and health.
1) Show her that you understand, and care about, her feelings about all the changes. Specifically mention the meds and ask what about it worries her.
2) Ask some questions to find out how she is feeing about other things.
3) Work through with her all the upcoming changes, and ensure she does not feel all control is being taken away. Work out some things she can have a say in and make it clear you will honour those.
Can't she forgo the medication management is it's for chronic pain? If she's on a lot of other stuff, maybe all they'll 'manage' is that and let her get her other meds on her own.
As a chronic pain patient myself, I would hate to have someone standing over me, telling me what I can and can't have, and when.
One of my clients in ElderCare had Parkinsons's. Her meds for Parkinson's were very carefully metered out. Her pain pills were on her nightstand and used as she needed them.
Shes supposed to have 1 a day of the pain med...she takes up to 3 that I know of and runs out ahead of the prescription and ends up in the hospital going through withdrawl which she translates as Im dying. Multiple times. Its a circle that continuously happens and is happening more and more often.
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