My wife, over the past year, has had several strokes which have caused macular degeneration and vision disability. She's 74, I'm 76. We live at least 400 miles from what family we have left. Her condition is complicated by diabetes and other ailments. I'm the only caregiver and I don't see that changing. She been in rehab but refuses to go back, and if she goes to a nursing home she will consider that to be the ultimate betrayal. But she's angry, belligerent, and has a nasty mouth. Basically, she's feeling useless because she's going blind and is taking it out on me. My cooking doesn't please her - actually nothing does. She's also paranoid, thinking any minute the state will come and take her away. In this current climate with covid-19, I actually think her going to a home would be a death sentence in more way than one. She already doesn't trust doctors (although there she does have a point). Right now I'm not sure there is a solution, I'm just trying to cope. No question, just feel like venting at the moment.
8 Answers
Helpful Newest
First Oldest
First
It is probably not the whole story that her birth mother ‘abandoned’ her. Back then the Catholic homes here for single pregnant women didn’t allow any choice to keep the baby. Although the nuns ran most of the local facilities, it certainly wasn’t encouraged anywhere, and there was no supporting parent benefit. Many women who gave up their babies have spent a life time regretting it, and weeping on the baby’s birthday. As a baby, does she really remember being “shoved in a dark room and left alone to cry”? It seems unlikely that her memories would go back that far – the adoptions happened quite quickly. Feeling like “a piece of meat hung on a hook” is her feeling, clearly not based on anything sensible, and quite frankly she needs to exercise a bit more self control.
I’m not surprised that your “problem is coping with it”. It might be a very good idea for your wife to get counseling, and for you to make it clear that she needs to be more helpful and rational. Sympathy clearly isn't turning her behavior around.
Well, at least that’s a different viewpoint for you! Think about it, Mr Nice Guy.
ADVERTISEMENT
Still, it's frustrating and venting here helps me get stuff off my chest. One thing I've been curious about is this hemp that's all the rage, that it might help her calm down.
Tony Stewart
Do you think you can count on her to help you get the house in order or will you need to consider finding someone else?
Check with the Lions Club. They do a lot of work with sight impaired people. Search for other options. Does she need a new laptop or a program?
You can only do so much so don't let ANYONE guilt you into doing more than you're comfortable doing. Boundaries. Not always easy to set but you need to think about where they need to be. What needs to happen in your world to make things easier for YOU? To reduce your stress? Make you able to work smarter, not harder? Get creative.
The house itself is in shambles because I've been devoting most of my time to my wife. Now I've got two ladies griping at me because I'm not doing enough. meanwhile my wife wants a new laptop with voice activated software. Everyone seems to think I'm made of money and should be able to keep up with things better.
Having a wife with all of these health issues and then complaining all the time is just too much to cope with, for anyone, and I don't blame you for venting. I suggest you hire in-home help immediately so you can get out of the house every day and have some you time, away from everything. If your wife doesn't like it, well, sorry honey but MY life is just as important as YOUR life. Sometimes, care givers get all caught up thinking that the only person who matters is the one with the ailments. What about the one without the ailments?? There are TWO people here to consider, so please don't lose yourself in the process of caring for your wife. You matter too, just as much as she does. If you go down from burn out, what then? Then there will be NO other choice but to place her in Skilled Nursing, so think of it that way.
Wishing you the best of luck making some decisions about how to take some of YOUR life back, dear man.
Yes, caregivers count too. We SHOULD NOT put all our energy and focus onto our LO, even if they TRY to demand that we do so. Just NOT healthy. Or necessary.
Please, get some assistance at home. Have them do cooking, cleaning, spending time with your wife so you can sneak out, etc. Just kidding about the sneaking part but you do need to get out sometimes. Being stuck home being a caregiver gets old and you guys are still pretty young so this could go on for a long time.
Have you been in touch with any organizations that deal with blindness? There are lots of great resources and tools that help them navigate the world. Even a seeing eye dog might be really helpful to give her some independence and some companionship.
Vent any time you need to!!!
You need some help. If not for her sake but for yours. Get someone in to help you out.. Tell her the help is for you. Gradually the person you hire can start doing some things for your wife. You tell her you have to run to the store, the next time be gone a little longer. Build up to a day out.
A caregiver will know how to handle a bad attitude, often they can take a bit more than a relative.
Vent all you like..that is what this forum is all about. Hang in there, you know you are doing the best you can for your wife.