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YoungCare Asked September 2020

How do we block toxic users?

I've just joined but I don't see a button to block users, just report them. Has anyone been able to do this?

JoAnn29 Sep 2020
I think she has left the group.

97yroldmom Sep 2020
YoungCare,

I did not say what you wrote below. Your comment is not correct. I did not Even know that you found my comment offensive until another forum member mentioned it in a PM.

After reading it, I took a little time to think about how best to respond to allow you to move past this drama. So I might not have even responded if you hadn’t written what you did on this post. So I’m glad you did.

I’m really sorry you are having such a tough time and my intention was only to offer help. I did notice the Young part of your name and that’s why I ask if you were the one that was 68? On this site we often refer to anyone in their 60s as being young to have such a serious condition. And your mom is young to have her problems. We sometimes have posters when filling out their bio, who somehow put their name and age in the space where the LO names and age goes. I was confused. I apologize. I should have taken the time to clarify your circumstance. And I do know that younger people are on SS etc. I have three grand nieces on it right now as their father died in an auto accident at 36 just this past January. I’m glad you have that help. I wasn’t doubting you were on Medicare. I’m not sure why that was mentioned. I knew that AAA offered help and advice to seniors and their caregivers. I hoped they might help you find respite for your mom.

And by the way Area Agency on Aging, which I recommended to you, also offers help for disabilities in some states if that applies. You can find them by searching for Area Agency on Aging along with your city and state.

Now about the hallucinations and dementia comments, I did not say that.
“Said with all due respect but it seems to me that your lack of restful sleep is affecting your ability to make lucid decisions.”

Turns out I do know a little about sleep deprivation and the problems it can cause. Here is a link that discusses the symptoms and affects of sleep deprivation. I think when you look it over, if you care to, you might find some interesting descriptions that could apply to you and, or mom.... one of which happens to be hallucinations although I did not say you have hallucinations, that was your word. My intention was to encourage you to value your own health. You asked for advice. To me, the bottom line was you need sleep.

https://www.verywellmind.com/an-overview-of-chronic-sleep-deprivation-4770156

You have given me a lot to think about and I’m sorry I didn’t see your post until you had stewed on it for so long. I have found myself getting very upset over things before. It’s not a pleasant feeling. I hope this bit of clarification can help you reframe my comments in a more favorable light. I wish you nothing but peace and restful sleep.
MargaretMcKen Sep 2020
Dear 97etc, Yikes! Please don’t worry, you’ve done nothing wrong. Your posts are helpful, and you are certainly not going to be removed from the forum. Your kindness in responding is a lesson for all of us.

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BurntCaregiver Sep 2020
The forum here is different then Facebook. People can vent here in a safe space to people who know exactly what they're going through. There's a lot of good advice offered to, gleaned from people who are rich in experience from being elderly caregivers. Sometimes the people here might tell it rough, but they usually tell it true.

MargaretMcKen Sep 2020
I’m not a Facebook user on principle, so perhaps I’ve got this wrong, but it has seemed to me that on Facebook everyone looks wonderful and tells all their friends how wonderful they are too. This site is really different, with people often saying that you’re not being realistic, just accept that your ideas won’t work etc etc. Unpalatable perhaps, but not toxic (ie seriously poisonous). Perhaps it’s just a matter of adjusting to the difference. Another option is to say in your question that you just want to 'vent', which should give you sympathy but not suggestions.
AlvaDeer Sep 2020
Hee! I give advise to the venters, too. Heaven knows how many have blocked me on FB. It's the arts and crafts for me; I absolutely love it. But when politics trips in the door I make excellent use of the block button. It's a delight! I agree; I don't find people on Forum to be toxic.
AlvaDeer Sep 2020
Ah. another Facebook user!! Welcome. Don't you LOVE that little block button. I block them because I simply cannot stop "going there". Recently Cali here told me that if someone annoys me so much (he did) perhaps I should consider, when I see his name, moving on (I don't). THAT annoyed me, too! But she was absolutely right.
There is no magic block button here, but we can make a practice of first looking at the poster's name, then scrolling down if we have already had a bad day and don't want it to be worse. And if a person is mean and inappropriate, there is a report button. The admins are active and fast.
You will find with time you recognize the approach of so many here. It will kind of be like Uncle Ned at Thankgiving dinner. Dreaded, but on some level kind of fun. Or you will see a name and know you are getting gentle, kind, and good advice. Then there are people I admire more than I can say. Always level and kind and with brilliant information. Igloo comes to mind. Mr. Bill however he spells it. Mstrbill? So many others. There are those who talk too much (I hold the current championship buckle for that one).
Young Care, stick around. I don't think you will find many who are "toxic" here. You may find some you don't like at all, but then that is honestly real life. And there is such great and valuable information here. I used this site for care topics and advice and comfort when I fell down the rabbit hole of dementia in the family, of care I had not a clue how to do. It was such a help to me. I hope it will be to you. Welcome!

Countrymouse Sep 2020
If a forum member is posting on the forum, you can't block them. Speaking for myself, I wouldn't even want to. It isn't healthy only ever to listen to views you approve of.

You can prevent people sending you messages - you can switch messages off in your profile section - but it is better to report anything offensive or abusive to the moderators. In more years than I care to count I have had no more such messages than I can count on one hand: most of them I've just deleted, one or two I felt I did have to report and they were dealt with immediately and effectively.

JoAnn29 Sep 2020
No, u can't block here like on Facebook. This is a forum and as such, you are going to find some members who seem blunt in how they approach things. We have our Trolls too. I have been here for a while as have some others. You learn to work around the personality. You take what you need from the group and leave the rest.

I skimmed thru ur first post. I really didn't see where anyone was rude just up front. You are dealing with a desease that is very unpredictable. Mom can no longer be reasoned with. She also cannot process what is being said to her. Or comprehend. Short term memory is the first to go. So no matter how many times you try to make her understand, she doesn't.

I would contact her doctor and see if there is something that can be given to help her sleep. They become like small children and get their days and nights mixed up. My Mom used to wake up about 3am thinking it was time to get up. I would show her it was still dark and she would go back to bed. Living in a split level and her being in the bottom level, I had to gate her in so she wouldn't come up the stairs at night. I had it high enough she was not able to climb over it.

I understand you want to keep Mom with you as long as you can. But there will come a time when caring for her will be too much. In the meantime, depending on her income maybe you can apply for Medicaid "in home" care. It may get you an aide for a few hours a day. Time you can do something for yourself, like nap or just get out.
worriedinCali Sep 2020
Joann the Offending comment was posted by 97yearoldmom.
seems to be either a huge misunderstand or a ginormous overreaction because 97yearoldmom did nothing wrong, her comment wasn’t an attack.
AnnReid Sep 2020
Wide range of personalities, wide range of prior experiences, wide range of access to information, wide range of support of all kinds- family, community, financial.....

The common thread is dealing with an often in expected situation, knowing that whether we agree or disagree, we’re ALL dealing with stressful, discouraging, exhausting, life changing puzzles.

Even in disagreement, when we open this link, we know someone will read what write, and GET IT.

If you have time YoungCare, read a few responses from a few of the threads that apply to your situations. It doesn’t take to long to figure out who you’ll usually want to pass by and who will make observations that will resonate with your own situation.

Some of us feel comfortable enough to challenge each other when something rubs us the wrong way, and also to comment when something extra helpful gets posted, but however helpful OR snarky or toxic a post appears, the common thread is pretty solidly based on having each other’s backs and lifting each other up.

Feel welcome here. You never know when YOUR comment will be JUST what someone else needed.

MargaretMcKen Sep 2020
One of the benefits of this site is that you get a range of views. Thank heavens, politics is off the agenda, but religion is going strong. People of different faiths, or of no religious faith, may well think that some posts are ‘toxic’ because they don’t agree with them. Some posters clearly want everyone to respond that they are doing the right thing, and reckon that challenging views are ‘toxic’. However even posts that are really quite offensive can have something to offer. I spend a fair bit of time on the site, and I don’t often see posts that I would call ‘toxic’. What has upset you so much?
YoungCare Sep 2020
I'm not upset, I'm stressed out. But I do know the difference when someone says maybe you are the one who has dementia or implies that you're lying -that it isn't innocent. I wish it was FB, then we could block obvious negative/trolling people. I don't mind a different opinion or straight forward comments.
I couldn't find any buttons or anything so that's why I posted.
elaine1962 Sep 2020
Aging care site is very helpful. I have been on this site for one year and everyone on here has been very helpful. There is a lot of wisdom here and people are willing to share their experiences with each other. People care on here. I am in a much better place now than I was a year ago.

Dont give up on the site. Everyone has a lot to offer. If it doesn’t pertain to you, you don’t have to take their advice.

gladimhere Sep 2020
No you cannot block people on this site. Only option is to ignore their posts. And don't let them get to you. At times you will find that you need a thick skins just as you do with caregiving.
YoungCare Sep 2020
Thick skin is good on the interwebs. Trolls are everywhere. I think having moderators is better, so when someone is consistently showing bad behavior, they can be warned or banned. Lots of forums have that.

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