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sydneybritt87 Asked December 2020

Mom moved to hospice facility. Does anyone have experience with this?

Mom has been on hospice for 9 months now for end stage CHF. She’s had a few really good weeks since Thanksgiving but took a turn for the worst a few days ago (extremely labored breathing, swelling, fever). She was moved to the hospice facility. They started an IV of morphine and she’s also getting Ativan and haldol around the clock. The past two days she’s been mostly sedated. Today has been completely different...eyes open, talking, still not eating though. I’m not sure what to expect next. Does anyone have any experience with this? I’m afraid she’s going to be sent home and the oral meds will fail again and we’ll be right back where we were a few days ago. Any words of advice would be appreciated. Thanks in advance.

Shane1124 Dec 2020
Take this day by day. Unfortunately my feeling is that your dear mother won’t be returning home.
Instead of worrying about that give her love and attention and enjoy the time you have left together.
I am sorry you are going through this - it is very very hard.

funkygrandma59 Dec 2020
Hospice wouldn't have moved your mom to their facility if they didn't think the end is near. They can better asses what's going on with her now, than any of us can. She might be having a bit of "rally" as folks that are dying often do, and the fact that she's not eating might be a telltale sign as well. Ask the hospice nurses as many questions that you need to. That's what they're there for. Do they know everything? No, but they will try and put your mind at ease, best they can. And only God knows the day and time that He will take your mother home, so just do your best to spend as much time as you can with her and make sure you say everything that needs to be said before she passes. Praying for God's peace to be with you in the days ahead.

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AlvaDeer Dec 2020
I would speak with your hospice caregivers regarding what you are experiencing. They know the condition of the patient. We could only be guessing. It is not unusual for people to have some moments of wakefulness and lucidity shortly before death. Hospice will let you know what the medical ramifications are of what you are seeing. I am wishing you all good luck, and peace for your dear Mom.

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