My husband is the love of my life. The last 4-5 years have slowly uncovered memory loss that has him frequently not remembering things I've told him in the last 24 hours. He writes things down a lot, but if he doesn't he can't hold on to things like what I am doing. Last night I told him I was walking with my friend Jacq this afternoon. This morning I reminded him, he said he remembered. Then an hour or so later he asked where I was going again. I told him. Then as I was getting ready to go he said, "I can't remember what you're doing, tell me again." I admit, I got upset. That made him mad. He stayed mad all day and went to bed mad. This happens more and more. I just can't get used to losing him so slowly like this. He's 76, I'm 69. Will I ever get used to this?
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Now he has difficulty remembering from 24 hours prior. Then that too will close in to something that was said or took place only minutes prior. The person with Alzheimers can not learn, only we as loved ones/family/caregivers can learn and change as needed. No it is not easy but it can be a bit easier for you once you learn how to accept/handle it.
Years ago as my mother’s caregiver I learned in order for me to keep my sanity, I needed to adjust and not be surprised by anything. Training for taking care of my hubby now. My favorite saying is “That’s OK”.
Keep things calm. Get into their world. Take one day at a time. Stay calm. When asked the same question 10 times in a row, just make believe 10 different people walked into the room one by one and asked the same question, so you would think nothing of answering each one of them. Adapt. I do everything I can to keep everything simple. Conversation is next to nil, but what I say to my dear sweet husband of 60 years is simple. Amazing how we enjoy conversation about the birds, trees, sun, etc. That’s OK. Try to enjoy simple things together. Try not to be sad.
I look for blessings. So many things that we did together over the years. Things that we enjoyed together, even though he does not remember any of it. That’s OK. We live as if everything is normal, he seldom knows other than that and if he does, I calm him by saying, “That’s OK”. But also, Remember to take care of yourself.
I have found that my Mom and now my husband felt/feel my love for them. By my voice, holding their hand, etc. So don’t ever hesitate to give that love and kind words.
My mother has full blown dementia & lives in Memory Care. I find her forgetfulness to be frustrating, to tell you the truth. When my own DH forgets things I've told him, it drives me up the wall too. I keep my thoughts private, but I FEEL them nevertheless. My mother drives me nuts in general, so my frustration with her is nothing new. With my DH, it's FEAR that drives me to feel frustrated. Fear can make us act in ways we're not proud of.
I don't know that you'll ever 'get used to this', but you'll find work arounds. Ways of doing things that take his compromised cognizance into account. Learn all you can about cognitive decline and what to expect moving forward. I think we can often learn more from boards such as this than we can from the 'best Neurologists' in the world. Once they do the testing and write the prescriptions (if there are any to write), that's when their part is over with. But that's when WE are left with the daily grind of everyday life with a person who's lost his memory and ability to function normally. The tips we get here are more valuable than gold. There's nothing like talking to people who walk the walk to get the best ideas and information about how to cope with your new life.
Wishing you the best of luck. Sending you a hug and a prayer for peace.
This forum has been great, these last few days were really tough. Thanks again.
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You need to adapt to his reality. Don't tell him you already told him something -- he really don't remember. Just treat it like it's the first time he asked.
Few things will make you crazier than trying to force him back into "normal." It won't ever work, so try to relax and go with his flow.
Check out the Alzheimer's Assn. website, too, for useful info. They deal with all types of dementia, not just Alzheimer's.
Try to come to peace with this. Argument or losing it won't win the day. But accepting, talking about it, trying hard and approaching with humor the best we can may not help, but may make it a tiny bit easier. A tiny bit.
For example if you plan on meeting friends tomorrow at 2 PM for a walk don't mention it today. Tomorrow you can mention that you are going for a walk but just say "I am going to go for a walk today" if he asks when just say "after lunch" After lunch say you are going for a walk at 2.
If you wrote things down on a white board would that help him? Place the white board next to a clock. Either set the white board up like a weekly calendar or just make it for the day if 5 days would be more than he could handle.
Good luck to you. I hope you can find an Alzheimers support group, because our county here in Ohio offers none. Just depending on a few friends to talk to for helping me get through this.