We had successfully transitioned mom to an ALF on December 1. She loved the community and was settling in nicely. She fell on December 9 and has been in rehab since.
She tested positive for Covid December 23 and has been in quarantine for the past 14 days. She appears to be coming out of that, thankfully.
She has a pattern of calling multiple times during the night — usually starting around 10:30 PM. I wake up in the morning to find six or more “missed calls“ and voicemails. I had to shut my phone off to be able to sleep.
The troubling thing is that she has no concept of time. She often forgets where she is. Sometimes I think she might be “sleep calling“ and gets stuck in that loop, auto calling every 30 minutes or so until she finally falls asleep. She doesn’t remember making the calls the next day.
Worse, the voicemails she leaves make me feel awful. They’re often cries for help — “call someone to get me some water”, “no one is coming to help me”, “please get me out of here”.
I can’t bear to listen to them, and I don’t know what to do.
She’s likely going to be in rehab for another month before she returns to AL. Now that she’s past quarantine, she will begin a fairly aggressive PT and OT schedule to help her recover from the fall. I’m hoping that will help remedy the problem, as she’ll be physically and mentally fatigued by the time she goes to bed.
Any suggestions in the meantime? I’m really worn out over this.
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Have you been able to contact the nursing staff and/or social worker about her overall physical condition and it’s potential impact on her sleep/wake cycles? Does her night time care staff know and address her disrupted sleep and her subsequent phone calls to you?
For example, might there be issues with overnight blood sugar levels, might she be restless because of pain from the fall?
Also ask if there are psychological/psychiatric services available. My LO is carefully watched for sleep issues and small doses of melatonin and other sleep aids have been very helpful to her.
As hard as it may be to consider, YOUR NEED for restorative sleep is JUST AS IMPORTANT to your mom as it is to you. You have obviously been an active conscientious caregiver, and you need to have confidence that her care staff is doing all they can so that your mom gets a good rest too.
You may have to consider requesting that her phone be taken from her at bedtime and returned early in the morning to see if that helps her to develop a better sleep/wake pattern.
Hope you are both enjoying better rest very soon.
I thought taking her phone at night might not be a bad idea anyway, because she’s clearly keeping her roommate awake.
I have stopped listening to the voicemails and will continue to keep my phone shut off at night.
If you want to ensure documenting - for example, if you want to keep track of the times she is calling in case there are concerns about staffing or about her mental state - you can note down the individual times of the calls before you delete them.
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My mom has been at two assisted living facilities & in and out of rehab a few times. You are paying them to care for your mom. They need to communicate with you what’s going on. Also, many of these facilities are understaffed, especially at night.
It may be that she’s getting good care but I would urge you to find out what’s going on at the facility.
I wish you and your mom peace of mind.
you might even see if something like Trazadone given at night would help her sleep and lessen this anxiety. It helped my dad
The thing to remember is that the patient is probably scared and in unfamiliar surroundings. At night, whoever is on duty is probably down at one end of the hall and not checking patients often, if at all. There are all types of patients there—the lady across the hall from my fiance would scream and moan all night long! It's no wonder that he would awaken and be terrified.
He was also suffering from the delirium that often temporarily follows prolonged anesthesia, and who knows what medicines he was on that might have contributed.
Bottom line: Try to contact the night nurse on duty and ask her to go check your mom and reassure her.
I tried to do that and discovered to my horror that the only line into the rehab facility rang the front desk, which of course was closed at night. If you can't reach anyone at night, I urge you to contact the corporate headquarters and complain forcefully. There needs to be an after-hours phone number that will reach a person who is there! A patient could be having a bonafide emergency, called you to tell you, and there would be no way to let the night nurse know.
Try to get some rest during the day and try picking up the phone while you're still awake at night. Reassure your mom that you care about her very much but ask her not to call you any more because you need your sleep. And find a way to tell the facility that they need to check on her more frequently.
I would let the rehab know that she is not fully understanding how she can contact them for her immediate needs and ask them to help her with that.
I have seen people in rehab that were left with no water, so I wouldn't ignore her but, make the facility do everything possible to ensure that she is being cared for in the best way. Speaking to the DON or someone in their social services department can ensure that the simple things are getting done.
One thing that really helped me not feel bad about turning my phone off was that I knew the facility would contact me if anything happened that needed me.
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