My dad has had end stage COPD since 2015 and lived with me this whole time. I've been through numerous hospital and ICU stays with him and a few times he was even on the vent. All that to say this time feels different. I am so terrified this is the end because he just seems so weak and tired and his body just seems like it can't take much more. He was brought in via ambulance because he couldn't breath and thought he was having a heart attack. They did a heart cath and told me he's in severe heart failure with 15% heart function. He ended up in ICU on a bipap. The next morning he seemed quite a bit better and even the day after that he seemed as if he was headed towards recovery but as soon as they moved him out of ICU he started to nosedive. He got worse over the next 4 to 5 days and now he's back in ICU. I went from having hope because it looked like it was getting better to being terrified this is it. I'm just so scared because him and I had a close bond while I was growing up and young adult. It wasn't until he got diagnosed with COPD and had to move in with my husband and I that my relationship with him went south due to me not being able to cope with some things he did and didn't do as a single father growing up but also because I don't think I could truly accept he had an irreversible disease...I took my anger and frustration out on him many times and said hurtful things and I've felt guilty over it before but now the guilt is really building up and I'm just full of regret and angry at myself that my dad may be leaving this world soon and that's how I treated him. I feel like the worst daughter ever. I've been with him almost every day he's been in there. I'll hold his hand and try to talk but most of the time he's too tired to talk or doesn't say much and the guilt just eats at me. I cry while he sleeps because I feel so awful but also scared because the reality of my daddy not being here soon is setting in. I want to say I'm sorry but anytime I bring up anything remotely personal or emotional he gets worked up and that's not good for his heart right now. He's in heart failure but also dealing with tachycardia and very low blood pressure so I don't want to stress him out. What do I do? Bring it up or leave it unsaid? I feel like I'm bothering him too much lately because I'm struggling emotionally and yearning for closure all the while forgetting that he's going through a lot and his body is very weak and when I step back from myself and recognize his physical and emotional state I question if I should even bring any of this up because it's probably too upsetting for him and the last thing I want to do is make this worse on him. I'm sorry this is so long. I'm just scared to lose him and I took for granted all the opportunities I had to make things better with him. I just hope he knows when he leave s this world how much I really loved him.
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What your dad does know is that you took him into your home for all these years, were with him through his multiple health crises, and you're there with him now. He's no dummy -- he knows you love him.
This exact moment isn't about you and your conscience, though. Don't stress him further by burdening him with your regrets. Smile at him, talk gently to him, and tell him you love him. He'd probably like to say some things, too, but since he can't, it isn't fair to assume he doesn't love and forgive you, too.
Later, get some therapy if this is too much for you to handle on your own.
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It’s perfectly normal to get short tempered sometimes as a caregiver…& you seemed hands on …living with you & husband. I don’t advise you to bring up anything emotional in past …just hold his hand.
just this morning (my mother’s private pay caregiver day off) my mother tells me how ugly I am…so I get upset …& walk away to get away from her for a few minutes…she is 94 with dementia…& sometimes says very hurtful things…I also have to manage her meds for agitation. I got her much calmer than she was a couple of weeks ago…but it’s still stressful.
So don’t feel guilty as every caregiver gets stressed out…some adult children don’t lift one finger & you did so much more.
Praying for you 🙏🏼 …
Hugs 🤗
You may not be ready to let your father go but know that his end of life is soon; if he is suffering, he may feel it is time to go and he may be waiting for you to say it's ok to go. Sit with him and be at peace, hold his hand and continue to let him know you love him (in your mind let the past wrongs go and feel the peace descent).
I'm sorry and hope you, your father and your family are blessed with peace, grace and love.
i have no regrets for being there at the end, I still feel guilt for thinking "thank you Lord for taking him, he wouldnt want to live like this".
Staying strong for my step-mom has been my priority, and I can't cry!
Your dad knows you love him so just be with him now. Let him be. If he doesn't want to be cooperative with the nursing staff, involve hospice for comfort care now. No point in furthering his pain or anguish but to keep him calm and worry free from now on. Your only goal is to see to it that he's relaxed and pain free.
Wishing you peace and strength at this difficult time.
Don’t think for even a moment that your dad doesn’t forgive you. My dad saw me as his ‘sweet little girl’ until the day that he died. I was a woman in my 40’s when he died. He loved me all my life, even when I wasn’t perfect! No one is perfect!
So, I will tell you one last time, ‘Forgive yourself.’
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