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Mindgames Asked August 2021

How do you deal with the mean, hurtful side of dementia?

In the last 3 months my mother in law was diagnosed with dementia and stage 4 brain cancer and stage 4 lung cancer. She had a major stroke ten years ago and it left her wheelchair bound. She is quickly going down hill. Not sure exactly how much is dementia and how much is the brain cancer but she is so mean and hurtful to me and my husband. She accuses my husband of killing his two brothers ( he only has one brother) she berates us both constantly with every mean thing you could ever think of. Before all the recent health issues she was such a sweet kind person which makes all this even worse. I can see my husbands heart break every day. Any suggestions on how to handle this?

lealonnie1 Aug 2021
Your mother-in-law has stage 4 brain cancer & stage 4 lung cancer. Based on those 2 diagnoses alone, I'd get hospice involved immediately and make sure she's on pain medication to keep her totally comfortable. Her mean words are likely caused by agitation resulting from the brain cancer & dementia. Hospice is the kindest thing you can do for her right now, and withdraw radiation and any other treatments the doctors are saying are required. At this stage of the game, nothing is going to save her life and extending it is just a cruel thing to do. Keeping her comfortable and not agitated also means you and your DH get to (probably) hear a lot less mean & hurtful words coming out of her mouth. She has no idea what she's doing or saying at this point, since you say she has always been such a sweet and kind person before now.

Wishing you the best of luck with a difficult situation.
Mindgames Aug 2021
When this all started she was doing fine to start with. A little confusion here and there from the stroke. She came out and spent a few days with us and while she was here she had a seizure. We called an ambulance then came the dementia and cancer diagnoses. According to the doctors seizures are usually the first sign of brain cancer. She had one cancer at the top of her brain. My husband decided he would only do two rounds of the targeted radiation but no more given her age of 70 and her other health conditions. The first round got rid of the cancer, then three more popped up in her brain. She’s completed the second round and we get the results soon. All of this within a two month span. She goes for a follow up with the brain cancer doctor in two days so we will know more then. I’m sure hospice is in the near future as she can’t hardly swallow and barely eats anything
Geaton777 Aug 2021
Your husband needs to remind himself that her brain is broken from the dementia. It's the dementia saying those things. He knows full well his healthy mother would never say them. My 99-yr old aunt has mod/adv dementia and says all sorts of awful nonsense to me, and she helped raise me for 20 years. I just go back to my best memories of us together because that is the reality, not what dementia makes come out of her mouth now. It's hard. Maybe he can choose to walk out of the room or change the subject to the weather. Whatever it takes.

Has she been evaluated for hospice? She may not need it yet but it'll give you time to do a little research.
Mindgames Aug 2021
She has been referred for in home palliative care which for us doesn’t seem to be much help other then provide briefs and wipes for her toileting. We will know more when we find out the results of her brain cancer treatments. She can’t do chemo but is doing targeted radiation. If the radiation isn’t producing the right results she may need hospice care. I appreciate everyone’s advice. I’m hoping it can help us make it thru this sad crisis.

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JoAnn29 Aug 2021
How old is your MIL? Poor lady. She has been thru the wringer. You have to know, besides the dementia killing her brain, now she has brain cancer that what she says is not really aimed at you. Whether its the Dementia or the cancer, her brain is dying. She has no control over what she says or thinks. She doesn't realize what she has said.

Find out what the Psychiatrist can do. If the testing for cancer shows its not curable, I would call in Hospice. Yes, family still does most of the work. But you get an aide to bath her. A Nurse will check in every few days. She will get morphine to help with any pain. You can get respite for a few days.

MargaretMcKen Aug 2021
Mindgames, I wonder if a session (not a course) with a therapist could help your husband. Many people find it easier to accept advice from a ‘professional’ than from a family member. Your husband needs help to cope with his difficult mother, and it would help you if he was less upset.

willpower Aug 2021
That's a really really hard aspect of giving compassionate care to loved ones in the face of sweeping and shocking alterations of personality. Unfortunately, the only solace I see being granted here is her death, which appears like it is pretty imminent. Just know in your hearts that she is not herself and the sweet person you remember is still deep down inside of her. Choosing how you remember her is your gift now. I wish you strength and resilience.

LoveLea Aug 2021
Pray. Ignore. Forgive. It’s not her or the real her. It’s remnants of her sickness.
Cover99 Aug 2021
Are you sure about that?
Dizzerth Aug 2021
Remember the brain is a body part. It’s full of disease at this point. She has no idea what she’s doing and if she did she’d be the first one to be mortified by it. Try to remember her previous goodness as much as you can and remember her “computer has a virus”. After she passes try to remember all the good things she did in her life and let these sad memories fade.

KristineB Aug 2021
My brother was like that when he was dying from renal cell carcinoma.
He was on a morphine pump so I knew logically, he didn’t mean it.
I would walk outside, sit down on the parking lot curb, and bawl.
Its not easy, it still hurts our hearts, but their “social filter,” is gone.
My father was twice as awful.
I hope I don’t leave my life, mean. 😇

TouchMatters Aug 2021
Its a very difficult, heartbreaking situation.
Best to focus on COMPASSION and do this 'mind training' when not around MIL. To be ready to separate 'who she was and how her brain and body is now.
* Be ready to feel sadness, pain, hurt.
- Prepare ahead of time how to shift (compassion)
- Take a break - a walk for a couple of minutes - anything to interrupt the interactions if momentarily.
* Exercise - get the feelings out in healthy ways.
* Role play to deal with it before it is in real time.
* Agree with her - all the time. Do not set up ANY situation where there is arguing or correcting her. "I know how you feel" . . . "I wish I had a magic wand" . . . "I love you."
It hurts and moving through grief is the only way to move forward and not get stuck in the pain. It is not easy and my heart goes out to both of you.
NEVER FORGET. It is the changing brain 'talking' not the MIL you used to know.
Touch Matters / Gena

Llamalover47 Aug 2021
Mindgames: Imho, please know that your MIL cannot help what she verbalizes as she has a broken brain and cancer. Albeit difficult, do not take it to heart.

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