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Shelle Asked August 2021

Has anyone felt freedom as I do finding a very compassionate AL for a narcissistic parent w dementia? I am finally off anxiety meds!

This is for those who are contemplating caregiving. I have verbal support of family and he has a veterans and secondary small retirement + SS.Not anywhere near wealthy. It has been a long process of proactive reasoning and planning to get him living in a safe place. My heart aches for those who have no way out.
Each situation is unique. As heartless as it sounds, Covid lockdown gave me time to think about me, my husband and our children n grands. We sold our home and moved closer to them, an easy 75 minute drive away. I plan visits 2-3 times a month and we FaceTime all without him knowing. He has previously made unsound decisions which have left me no choice to take control, with a durable POA, to keep my sanity. If you foresee a similar situation, I caution you. Get a POA! Don’t let guilt or past promises get in the way of living a healthy life.

Isthisrealyreal Aug 2021
Shelle, well done!

Your story serves to remind others that they do have choices and taking care at the expense of your own well being is NOT the only way.

BurntCaregiver Aug 2021
I have no way out and I am profoundly ashamed of myself because I've been in elder homecare for almost 25 years and allowed myself to fall into the trap that I've warned family caregivers about for years. I've become the "solution" for my mother's care needs and the convenient choice for everyone.
Yep, I got 'Voluntold' and now I'm stuck in a huge, steaming pile of misery, negativity, and drudgery with no way to shovel myself out.
I'm sharing in your joy right now that you were able to find a good, safe place for your father where he will be properly looked after. You don't sound heartless either. The Covid lockdown gave a lot of caregivers a bit of respite that they otherwise would never have had. It even gave me a little bit because my mother wasn't able to add any new doctors to her already Lourve-sized collection of them and her current collection weren't seeing patients in person. Unnecessary doctor's appointments are my mother's favorite social activity. They give her a new audience to complain to. So this meant I got a break from what was prior to Covid lockdown nearly daily doctor's appointments of some kind. I'm happy for you that you got out from under the heavy and miserable burden of elder caregiving.
JoAnn29 Aug 2021
Like I said my Mom was easy but I stopped a lot of those visits. The Specialist were needed at one time but when Mom became stable and/or the problem didn't worsen, I let her PCP handle it.

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JoAnn29 Aug 2021
Yes, after having my Mom for 20 months. She was easy to care for but the Dementia did me in. I don't do well with the inconsistency Dementia brings. Not knowing from day to day how someone is going to act or react. Being responsible for everything. Moms, her bills her house which was an albatross. When I placed her in an AL, it was so nice. Yes, I still was responsible for things but I wasn't "on duty" 24/7.

The first night she was gone I had the best full nights sleep.
BurntCaregiver Aug 2021
Good for you, JoAnn 29. I'm sharing your happiness too.
sjplegacy Aug 2021
Good for you, Shelle, in realizing what your caregiving limits were, and doing the research to find a wonderful facility for your parent. I didn't necessarily find freedom in placing my wife in MC at the time, although now that you mention it, I realize I did feel the freedom to restart my life. Relief was the principle emotion I felt at the time. Thanks for your post and alerting others to the importance of POAs.

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