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Rgraham99 Asked September 2021

My grandma is in hospice and I don’t live in the same country. I came home to say goodbye since I was told she had 2-5 days to live. Advice?

I have now been here for 17 days and she is still with us. She was living at home up until she was admitted to hospital on August 10 for vomiting and pain. She had a colostomy surgery in June and I returned to Canada to help with that and stayed for 4 weeks. I went back to the US on July 17..and on August 12 got a call from my brother that she was back in the hospital and had been given 2-5 days to live. The month that I had spent with her and my other family members was amazing. My gramma got to meet my son for the first time (because of Covid she hadn’t met him) who was 9 months old and it was so amazing to watch they together. They immediately shared a bond just like I have with her. Everyone in my family said that she only wanted to colostomy surgery so she could hold on until she could meet my son and see me again. She had known I was planning to visit prior to her finding out that she needed the colostomy surgery. Also- sorry I feel like this post is all over the place because I'm crying as I type this and my thoughts are scattered. So basically they told us she had 2-5 days to live so my husband and I got ourselves organized and left the country the next morning and drove up here. So now my husband left 9 days ago to go back to work/ and I couldn’t bring myself to leave. So I’ve now been here 17 days and I just exist here until my baby wakes up from his nap and I can drive into town to see her. Because I don’t live here anymore I have no job no friends nothing to distract me. If it wasn’t for my baby I would have lost my mind by now. I have been really struggling mentally with anticipatory grief, and also being alone here in my grammas house. I have decided for my own mental health I need to go home- but the guilt is immense. I wanted to be here with her when she passes…or at least if I wasn’t there when she passed away I wanted to be able to drive 25 mins to the hospital to see her. But I also cannot afford to be off work any longer. I’m also dealing with my mother who is a narcissist and is here every other week. She tells me everyone grieves differently which is totally understandable- but she has asked me every other day why I am still here, and has said things like “life goes on” and is packing my grammas things up already and I feel really alone and very misunderstood by her and my brother- who lives 2 hours away and hasn’t been here more then 24 hours since my gramma was admitted.
My gramma has been like a mom to me - so this feels like I am losing a parent. My gramma is the person who understands me the most. Because my husband left with our car, and there are no remotely reasonable one way tickets home- I am getting dropped off at the US border and my father is meeting me there and we will drive together back to Wisconsin. I am scheduled to meet him on Friday morning. The knowledge that tomorrow is my last day with my gramma is incomprehensible to me. I guess what I’m asking everyone here is- how do I reconcile with my decision to go back home? What can I tell myself to comfort myself knowing that when she passes I won’t be here? And am I making the right decision to return home to my husband and job vs running out of money to stay here to be with my grams in her final days? I’m sorry that was so long but it feels good to get it all out. Thank you

Isthisrealyreal Sep 2021
What Countrymouse asked.

My dad was hospitalized, told he was actively dying, made all the phone calls, etc. A week later he is up and getting rehabilitation. He lived another 3 years.

I want you to be aware, some times people leaving this life want to do it on their terms. Some want a room full of people, others want to know the ones being left behind are settled in their lives and some want to be completely alone to save their loved ones the last image of them being a dead body.

If you can communicate with grandma tell her how torn you are about leaving and that your heart will be with her. She's lived a long time and seen more then you can imagine, she will understand.

I am so sorry that you are losing your grandma and having to make this difficulty choice. Death is difficult for those left behind.
Rgraham99 Sep 2021
Thank you for the response! Yes it’s hard to know if she would want me to be here or not for her final moments. I do know that she wouldn’t want me to be abandoning my own responsibilities at home to be here. That is really crazy about your dad living another 3 years! I told her yesterday that I had to leave in a few days and will be going to see her in a few hours so I will tell her how I feel again and that my heart is with her. Thank you
Countrymouse Sep 2021
So, how is your grandmother now?

The 2-5 day prediction, nearly three weeks ago, was clearly wide of the mark. Presumably there has been a review of your grandmother's condition since then. Is she still in the hospital? What is her medical team saying?
Rgraham99 Sep 2021
She stopped having any food or water a couple days ago - she is very weak, and I can tell she does not have much time. That 2-5 day prediction was based on the fact that her intestine was fully blocked. But after 1.5 weeks I asked the doctor what us going on how could you be that far off? They said well the blockage must have shifted. That’s all he could say. This is a small rural community and they don’t even have an MRI machine so it seems they can’t really confirm much of anything and they said she is too elderly to operate to remove the mass because it would either kill her or she would survive but the recovery would be too much for her age. So they said our only options were to take her home for hospice care or keep her there in the hospital. There are no hospice or long term care facilities here that have any openings for her. I asked her if she could come home if she would want to and she said no- she doesn’t want a family member to have to take care of her like this.

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MargaretMcKen Sep 2021
Yes, going home is the right thing to do. There is nothing special about ‘the last days’ or the last hours or minutes. You’ve given her as well as yourself the gift of special time now, which is much much better than sitting by the bedside as she lapses into unconsiosness at the end (believe me about that). Say your goodbyes to your grandmother now, and keep thinking of her as the days pass at home.

It sounds to me as though your mother has probably lived through ‘end of life’ at least once before, and knows how much work and worry is involved. It’s so different for you, the first time. Yes you “feel really alone and very misunderstood”, but you may also be misunderstanding your mother. If your mother has been heavily involved in grandmother’s care, she may be feeling a bit of relief that you can’t relate to at all. Stay together with her, and just know that it’s different, not bad or unfeeling. Have courage! Margaret
Rgraham99 Sep 2021
Thank you for your response. That’s the thing is my mom wasn’t heavily involved in any of my grammas care- it was all my uncle and then me the last 4 weeks she was gone with the colostomy bag. But she has not suffered for long. She was very healthy leading up to getting colostomy bag - the only things she had were self catheterization and some incontinence. Anyways yes I know my mom has suffered the loss of many friends and her father and grandmother so she has definitely been through it. But it is just unfortunate that rather then being gentle and understanding that this (other then my grandpa) is my first real loss she is pretty dismissive. But that is also just her personality- so all in all I just need to do what’s best for me. Thank you for telling me that it’s best I not stay to witness the final days and hours. I didn’t think of it that way.

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