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mccollum1 Asked December 2021

My mother (93) is in a nursing facility. I am meeting with hospice NP today. What questions should I ask? Mother has dementia.

She also has a contracted hand that is painful to the touch.
It is difficult for cna to dress her. I have also had to ask them to start oral hygiene. Her weight is fluctuating ........up and down. Her legs and feet are swelling again. I have to remind them to put her ted hose on for the edema. I am always told her vitals are good but no therapy. She depends on cna for all adl's. Could this mean that her body may be shutting down? She still eats pureed food. My mother was able to tell me that "they don't talk to her" so I know she gets lonely. My mother is also partially blind.

AlvaDeer Dec 2021
Who recommended Hospice for your Mom, Mccollum?
Do you understand that Hospice is "end of life care" and that the ordering MD must believe that death is imminent or expected within 6 months?
Do you understand that medications to TREAT toward a cure will no longer be administered and that care will be palliative care primarily, with comfort the goal?
Do you understand that medications may be administered in levels to keep person comfortable even IF those medications may hasten death?
I ask these questions because your post to us doesn't seem to mention that Hospice IS end of life care and this should be discussed by POA or health care advocate under directive with both Hospice and the ordering MD. This will be your opportunity to discuss EVERYTHING you can think of with the hospice agency and I hope that all goes well. You will be providing the contact person for hospice. If that is you, yourself, make it very clear under what circumstances you wish to be contacted. Include, for the plan of care, all the things you have mentioned above.
Wishing you the best, and hope you will update us as you and your Mom move into this transition.

funkygrandma59 Dec 2021
If your mother is about to go under hospice care they will have a nurse to come check on her once a week to start, and aids to come bathe her at least twice a week. They also offer volunteers to come visit her, and perhaps in my husbands case, even a massage therapist who comes once a month. There are many different things they offer as well, all covered 100% under moms Medicare, so make sure you find out what all is available through this particular hospice agency. They will supply all needed equipment, supplies(diapers, pads, creams etc.)and medications, again all covered 100% under moms Medicare.
I wish you the best in getting things set up for her. You will like having extra sets of eyes on your mom.

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Daughterof1930 Dec 2021
While my mother was in NH she developed a hand contracture that was awful. We took her to a hand surgery specialist who did a quick outpatient procedure to loosen the tendons causing the contracture. She healed from it easily and was more comfortable after that.
As far as shutting down we were told there are 3 signs the end is near, stopping communication, stopping all eating, and sleeping a deeper than normal sleep. I wish you both peace

PeggySue2020 Dec 2021
I'd ask whether under hospice benefits, she can have a dedicated person come in to visit with her, perhaps wheel her out, and so forth. For the loneliness.

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