My 90-year-old mother has dementia and can barely walk. She does fairly well at home in her familiar environment and our desire is to keep her happy and as comfortable as possible for as long as possible.
Last week she had a follow-up with her cardiologist. Although I transported her as carefully as possible, the whole episode left her disoriented and unable to even walk the next day. I decided I could not do this to her again, especially for a checkup where they just listen to her heart and send her home again.
Unfortunately, the doctors require checkups to refill her prescriptions so I'm trying to figure out what people do in this situation. She's on Medicare and TRS insurance, so I'm currently checking into the home visits but no one can tell me about the specialists.
If anyone has any experience or information that I can begin my search with, I would be more than grateful.
21 Answers
Helpful Newest
First Oldest
First
Blessings to you and yours.
ADVERTISEMENT
If there was an urgent need, the ambulance would take mom to the ER for a few tests, but she got shoddy treatment there too, I found. If it wasn't "Covid" related, they gave her the bum's rush & out the door she went after a blood test for CHEST PAIN!
You can always hire a wheelchair accessible taxi service to take your mom to the doctor, but be forewarned that it's very expensive (in my experience) and you'll need to hire the van roundtrip.
Leave mother alone to get the minimal PCP care and medication; let nature take it's course while you allow your mom to stay comfy and relaxed at home. That's my suggestion. Otherwise, you may wind up extending her life by a few months or a year and what kind of 'life' is it that you're extending ANYWAY, with dementia at play? IDK about your mother, but mine was in a lot of pain and plagued with Sundowner's and ready to leave this life for the next one anyway.
Wishing you the best of luck.
Consider getting a consultation for hospice. Contrary to what many think, they won't take her off her medications and "let her die," but you'll have the weekly services of a visiting hospice nurse and a hospice doctor who'll prescribe her meds.
The nice thing with hospice is the nurse will really get to know Mom and will be able to tell you if the meds are no longer doing their job or need adjusting. My mom was on hospice for seven months and all her heart meds were refilled every month.
Truth told, in this condition it may be time to stop with specialists. Palliative care may be the answer if you want merely the medications to prevent complications of such things as weakening pump/heart and CHF, blood pressure control (which monitoring can be easily done at home and is a more accurate measurement than a confused senior in pain and distress, and etc.
In the palliative care community the doctors are familiar with seniors who can no longer make it in.
In lieu of going that far, speak with the professional about learning to do in home BP and heart rates, about zoom calls, and let them know the problem.
Best to you. Were your Mom in an ALF facility many of them are connected with MD groups and advantage programs in which they are visited in the facility itself. This was the case when my brother was in ALF.
She also is enrolled in palliative care and was eligible due to her dementia. This offers another layer of support.
Check your mom's insurance and see what is available. You may not need to change her insurance.
Her primary can probably prescribe her cardiac meds like BP meds & lasix.
Blessed Be
See All Answers