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Satoshi Asked June 2022

Should I correct my mother who has dementia on matters where she is wrong?

TChamp Jun 2022
Would you attempt to send e-mails from a broken computer?

EmotionallyNumb Jun 2022
No.

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Ariadnee Jun 2022
The disease is taking over the brain. It is the disease talking now. Of course every now and then the person shines through, but that ebbs away as more and more of the brain is comprimised, taken over by dememtia/Alzheimers.
So I watch as my husband changes, tells me things that aren't true, can't find his glasses that are sitting on top of his head, and enjoy those moments when we may have a few easily shared thoughts together. It can be hard to not correct, or become overwhelmed by dementia, unless you've willingly trained in the medical profession to deal with this disease, who on earth is prepared for this?
A good friend told me this years ago, "roll with it, or it rolls over you". Unless things have gotten totally out of control, I just let go of the illusion of control and it keeps my husband's stress levels much more manageable too.

gladimhere Jun 2022
Why? Any attempts would be completely futile.

She cannot reason any longer. Whatever you say will make no sense to her and embarrass and agitate her. It will frustrate you and agitate you, as well.

Learn to live with it. Learn that her having correct information is not that important. What is important is that you learn to accept and live with her diminishing capabilities.

CantDance Jun 2022
I never try to correct my mom's distorted "reality," with one exception: she doesn't get to slander friends and family. Yes, I know it's futile, but I cannot stand by and let her make horrible accusations. When she says things like "George stole my hearing aids" or "Mary poisoned my dog," I gently say, "Oh, Mom, that's not like George. He'd never steal your things." Or, "Mom, you know Mary loved Max! Max died of old age."

No, it doesn't change her mind one iota. But it makes me feel better!

polarbear Jun 2022
Satoshi - correcting someone with dementia is an exercise in futility and aggravation.

I had tried this with my mother who had Alz. I even recorded her saying what she later denied, and she still didn't believe her own voice. It was NO use.

TChamp Jun 2022
You can correct her a million times, but she will continue making the same mistakes. Her brain is unable to learn anymore. This is something you need to accept. Her brain is slowly shutting down regardless of your attempts to help her.
sibling1966 Jun 2022
This is the sad truth. I’ve stopped trying to correct my dad on his errors. It’s pointless and hurts both you and your LO. His brain is dying and it can’t be reversed.
BarbBrooklyn Jun 2022
Have you heard of Teepa Snow? Google her and watch some of her videos.
sibling1966 Jun 2022
Teepa Snow is wonderful. Her gems were particularly helpful in trying to understand my dad’s level of dementia.
Beatty Jun 2022
Well.. each day & each topic will differ. So it will be many small decisions, rather than a yes/no answer in my opinion.

So you can go mad waisting your breath trying to correct Mother with reason.

Or you can go mad agreeing with non-sensicle statements.

Or you can accept what is, this moment, with humour & peace. Accept this new version of your Mother. Still her, but with some wear & tear to her brain cells.

A painting that came to life & took things in the night was a story that made sense to a lady I met. It still makes me smile 😊.

lealonnie1 Jun 2022
As a rule, it's not a good idea to correct an elder who has dementia when they are wrong about something. I guess it also depends on WHAT they're wrong about, though, if they're insisting that you've murdered their dog or something...........that may require a 'correction'.

I suggest you read this 33 page booklet (which is a free download) which has THE best information ever about managing dementia and what to expect with an elder who's been diagnosed with it.


Understanding the Dementia Experience, by Jennifer Ghent-Fuller 
https://www.smashwords.com/books/view/210580



Here is a list of useful tips for you to use when dealing with mom nowadays:

The “Dont's”
· Do not reason and argue
· Do not demand that they reason or problem-solve
· Do not demand that they remember
· Do not demand that they get their facts straight
· Do not correct their ideas or scold them
· Do not reorient them
· Do not think that they are being uncooperative on purpose
· Do not think that they really do remember, but are pretending not to
· Do not use a “bossy” dictatorial attitude in care
· Do not act with impatience

The "Do's"
· Enter into their frame of reality, or their 'world'
· Be aware of their mood or state of mind
· Use few words and simple phrases
· OR use no words, just friendly gestures and simple motions
· Do everything slowly
· Approach from the front
· Wait for a slow response
· Constantly reassure them that everything is 'OK'
· Keep people with dementia comfortable 'in the moment' - every moment
· Maximize use of remaining abilities
· Limit TV or radio programs which they may feel are frighteningly real
· Maintain privacy
· Provide a safe physical environment

Language Needs
· Use short words
· Use clear and simple sentences
· Speak slowly and calmly
· Questions should ask for a “yes” or “no” answer
· Talk about one thing at a time
· Talk about concrete things; not abstract ideas
· Use common phrases
· Always say what you are doing
· If they repeat their question, repeat your answer as you did the first time · Give them a longer time to process information
· Wait patiently for a response
· Be accepting of inappropriate answers and nonsense words
· Speak softly, soothingly and gently

Care Needs
· Recognize that receiving personal care feels intrusive
· Reassure with your tone and manner
· Do one thing at a time
· Talk through the care “play-by- play”
· Be aware of your body language and use it to communicate relaxation and reassurance
· Be sincere
· Use a soft, soothing touch
· Be aware of the individual’s unique triggers
· Be aware that a person with dementia may not accurately judge whether a situation is threatening to them
· They may respond to fear, pain or anxiety by defending themselves with what we call “aggression”
· If they become distressed, stop immediately and allow them time to calm down – don’t try to restart the activity right away
You need to change your behaviour to adapt to the dementia because the person with the disease cannot.

A good book to read is Living in the Labyrinth: A Personal Journey Through the Maze of Alzheimer's, by Diana Friel McGowin. Learn all you can about AD/dementia b/c knowledge is power!

Wishing you the best of luck with all that's going on.

freqflyer Jun 2022
Satoshi, one must remember with dementia/Alzheimer's the brain isn't working correctly. Thus, correcting a person becomes a never ending task. Easier to just agree as before you know it, the subject matter is totally forgotten for the time being.
TChamp Jun 2022
You're quite right. Accept reality as it's, don't allow to be mislead in believing that you can perform miracles. You can't reconnect a broken brain by using this or that method.

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