I posted last week about an incident with him and his intrusive comments and behaviour. Most of the comments were helpful, a few weren’t but that’s ok. I’ve already explained the situation with my siblings and their refusal to put him into care, a point that was reinforced by my sister when I spoke of the incident to her, she didn’t really want to know, except to justify his behaviour and turned it around on me. So I guess I know where I stand and I’ve now gone no contact for the time being with her.
Telling my father to shut up and mind his own business worked for about a week, then two days ago I had to go out for the morning on an important errand and when I got home about midday, I get from him” I thought you’d be home earlier” I said “ why is that your business, I said I’d be home by lunch” Unbelievable!!! Then I get the passive aggressive attitude because I said something back to him.
So is this a dementia thing? Short-term memory loss? Or should I buy a stopwatch for him?
10 Answers
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As for how I speak to him…I try my hardest not to talk “mean” to him, but he manages to push all my buttons. We seldom ever argued before & he had never insulted me or said anything mean. Now, everything is my fault and not only does he say rude, mean things to me, he says insulting things about my family & even his own kids. I know it’s not “him” saying these things, and I try to forgive him but it crosses the line and really makes my blood boil. Sometimes I have to unleash & dish it right back. You can only ignore it, excuse it or walk away from it so much. He gets hyper-focused on something & WILL NOT LET IT GO. No amount of humor, re-direction or distracting him works. It has turned ugly a time or two, but fortunately (?) he doesn’t remember it minutes later. Unfortunately, he’ll restart the conversation minutes later. It gives me a do over, but they don’t always end any better. We’re all doing the best we can. Some days go better than others. The time is getting closer that I will not be able to leave him alone. However, in our case I think having a companion aide come in will be a better option than me leaving my job & being with him 24/7. That would not be healthy for either of us.
But a short note with "back about X time" may be useful.
As short term memory fades he won't remember what time you said or where you are. He will just know you aren't there & will get anxious being alone.
Then his anxiety spills into anger at you when you return.
My advice is to look past his anger, look to what is behind it. If he is getting fearful to be left alone, doesn't know what to do, it is time for 24/7 care.
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I simply say "I'm heading out now" and I quickly make my exit. Yes he does sometimes call. I just reassure him I'll be back in awhile, again not committing to a time or being apologetic in any way.
I wonder if you could do a reset...?? It's stifling to have an elderly parent still parenting you, even if it's dementia.
You are an adult you do not have to leave a schedule or itinerary for your
Dad. Whether it is dementia or just an elderly parent that has always had a sick need for control I don't know. I don't think this has come out of nowhere because
these sort of things are family issues. I can relate to your frustration of not being treated as an adult. You have to learn to not respond. It gets you no where. You must leave the room. Go to the bathroom and don't come out for awhile. Don't let people shame you for honesty. I'll tell you the worst thing I have ever said to my dad. I told him to . He was arguing about my driving, he was shouting in my ear trying to grab the steering wheel and telling me how much he couldn't stand my husband. So I pulled to the side of the road and told him to and get in the back seat. This all happened in front of my child.
I dropped him off at his car and just drove away. A few days later the phone rang off the hook with a lot of you are a horrible daughter messages left. But my son said to me " Mom, I am proud of you. You finally stood up to him. Grandpa is just not a very nice guy." All of this to tell you we all have bad days.
Of course, I'd have never done that to them when they were in their right mind either, nor would I speak to any elderly person like that.
Where is the compassion??
No matter what I do for this man, or kindness and compassion I show him and I might add am still showing him, vit shouldn’t exclude me from feeling anxiety and stress at his behaviour or for coming on this forum and venting as many others have done with far worse situations than mine. Are you this pious and judgemental in your answers to other posters on this forum? Who do you think you are?
Let him be passive aggressive, it can't hurt you if you know he's doing it.
You should remind him of the agreement to stop trying to be the man of the house, that's your husband's position and he needs to respect that.
Personally, I would always tell him I am going to take care of something for my DH and I will be home around dinner. He thinks that you should obey your husband and serve him, so use it.
If you think about it, short term memory is required to LIVE every single part of every day life. Without it, we're lost and floundering around, going out into the garden and wondering why we're there,? In reality, loss of short term memory is a huge and life altering event that impacts a person in every way imaginable. In ways that are inconceivable to us, who have our short-term memory intact. It can seem annoying or that they're doing stupid things on purpose TO irritate us when they ask certain questions or seem to forget certain things, but it's their brains misfiring or their brain damage that's to blame instead.
Your father is confused about most aspects of life now. Time is another thing that's of utmost confusion to him, most likely. He has no real concept of it anymore. You were gone for 3 hours, for instance running errands, but to dad, it may have seemed like you were gone for 12 hours, due to his lack of concept of time. He asks you a question, you give him a snarky comeback which alerts him to the fact that he's confused, and wham, he's back at YOU with a passive/aggressive comeback b/c he's scared AND confused. He's also lost his filter, thanks to dementia, so he's likely to become more aggressive/argumentative, etc. My mother was always an argumentative person, but as her dementia worsened, every single thing I said to her was turned into an argument. If I said black, she said white. If I agreed it was white in an effort NOT to argue, she'd insist it was blue. Truly a no-win situation :(
Buying him a stopwatch isn't going to fix anything b/c your dad has dementia and time is now a confusing concept for him too. Writing things down on sticky notes may work for him for a while; it depends on how far down the dementia path he is right now. The caregivers wrote notes and left them all over my mother's room in her Memory Care. Big LARGE notes in BOLD writing: PLEASE CALL FOR HELP BEFORE YOU GET UP JOANN. She ignored the notes and/or she did not comprehend what they meant and thus, she tried to get up alone every morning and fell out of bed at least 40x. All in all, she took 95 falls. She was in the moderate phase of dementia when notes lost all value and meaning to her, about the same time she stopped reading books and magazines b/c she could no longer understand the words.
Learn all you can about dementia and what it means to your father's quality of life, and to you as his potential caregiver.
I suggest you read this 33 page booklet (which is a free download) which has THE best information ever about managing dementia and what to expect with an elder who's been diagnosed with it.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
It takes a special kind of patience & level of understanding to care for and live with an elder who's diagnosed with Alzheimers/dementia. I know I am not that person myself, which is why my mom lived in a Memory Care ALF where she got a great level of care by truly wonderful teams of caregivers. As dad progresses down this path, you will have to decide if you can continue being his caregiver or if he needs Memory Care placement himself, I suppose, or perhaps in-home caregivers to help out on a regular basis.
Wishing you the best of luck with all you have on your plate.
You need to tell her that he needs to reside elsewhere.
Why is that not possible?
Otherwise, you need to simply ignore his rude comments, or reply rudely yourself.
I thought you and your husband told him to keep his opinions to himself or he'd have to reside elsewhere? Why hasn't that happened?