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Sallylynn Asked July 2022

EOL options for end stage dementia patient in Illinois. Any advice?

Mom is an 84 yr old end stage dementia patient, in a SNF, has been on hospice for 6 months, no meds, other than hospice approved. DNR order is in place, as well as no trips to the hospital if she suffers a seizure or stroke. She is totally immobile, relies on nursing staff for everything. She's what I call an adult infant.


 


Her living will stated she did not want to live this way, and we promised her we would not let that happen, yet here we are. As a family we feel there is nothing left for us to do, but wait for her death. IL is not a state that recognizes Death With Dignity. Anyone from IL been through this? Do we have any options? I (daughter) do have legal guardianship over her.

TChamp Jul 2022
According to established laws in Illinois and the rest of the United States, you're stuck. Even if Death with Dignity were available, your mother is not mentally competent to request a termination of life.

AlvaDeer Jul 2022
Death with Dignity is not allowed for dementia in any state in the union. It is available overseas through Dignitas and Pegasos, and perhaps others, but not in the United States. Because your Mom has dementia she cannot even make decisions for herself about refusing to eat, though being on hospice, should she stop taking food or fluids no one would place IVs or NG tubes for nourishment.
I am sorry, but rest assured, no state would avail Mom of any relief more so than your own now. In any state in the Union you must be of sound mind and suffer from a disease that is expected to take your life within 6 months to even begin the onerous process for EOL. I wish it were otherwise, and some day it may be, but that is some long time away.

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PeggySue2020 Jul 2022
Even states with death with dignity wouldn’t approve anyone who has a dementia diagnosis.

For me, I’d want my family to pressure hospice to give me meds like morphine. As much as possible. It may be only chemically induced euphoria, but I’d take as much of that.
JoAnn29 Jul 2022
I think Hospice has set rules they must follow when Morphine is used. Its a DEA controlled subtance that records need to be kept on. Prescriptions have to match usage. The DEA will see that a person has been given a lethial dose and question it. Where I worked the DEA requested the purchasing records of a pharmacy. They found that the prescriptions written by Drs. was less than the oxy ordered. The pharmacist was selling to addicts.

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