It started with some memory loss and now my mom feels she is not safe at her home. She thinks my dad is a threat to her and he will also take all of her money. They have lived together for 55 years. Now he is the devil. She calls me several times a day to tell me I should kick him out of the house. She told me I have had to remove several women out of the house??? She called me yesterday to tell me she is taking all of her money out of the bank. I said "why? " She said "None of your business!!" All very strange to me.
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1. Go with your mom and dad to her initial doctor’s appointment. Take other supportive siblings if appropriate. Her doctor needs to hear all perspectives on her behavior. Your mom will not be a reliable reporter. In my situation, Our children and I had to talk to the doctor alone because my husband accused me of telling untruths about his behavior. It also made him angrier at me, like I was “telling on him.”
2. In addition to anti-anxiety medication (lexapro for him), my husband responded well to a low dose anti-psychotic, in his case it was Seroquel. This quickly addressed his paranoid behaviors and our relationship became less threatening to me. Similar to your dad’s situation, my husband thought I was an intruder and wanted me out of the house.
3. Encourage your dad to join a support group and this forum where he won’t feel alone in his situation. Read and research as much as you can about this disease and educate/support him and your mom. My husband has progressed to late stage and is in hospice care here at home. I now have outside caregivers helping me.
It’s now five years since those frightening early stages. Our children have been and continue to be a blessing to us in this heartbreaking journey. Bless you for caring and supporting both your parents!
I suggest you read this 33 page booklet (a free download) which has THE best information ever about managing dementia and what to expect with an elder who's been diagnosed with it.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia. The reviews for her books are phenomenal b/c they are written in plain English & very easy to read/understand. Her writings have been VERY helpful for me.
The full copy of her book is available here:
https://www.amazon.com/Thoughtful-Dementia-Care-Understanding-Experience/dp/B09WN439CC/ref=sr_1_2?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468364&sprefix=jennifer+ghent%2Caps%2C631&sr=8-2
She also has published a workbook entitled, “It Isn’t Common Sense: Interacting with People Who Have Memory Loss Due to Dementia.”
https://www.amazon.com/Isnt-Common-Sense-Interacting-Dementia/dp/1481995995/ref=sr_1_4?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468655&sprefix=jennifer+ghent%2Caps%2C631&sr=8-4
Another good reference book is The 36 Hour Day which has some good info on dementia/ALZ and will answer on the spot questions you have that will crop up.
Teepa Snow has some fantastic videos on YouTube about how to speak to dementia sufferers and how to interact with them to achieve the best results.
Here is a list of useful tips from the above mentioned e-book I found to be excellent:
The “Dont's”
· Do not reason and argue
· Do not demand that they reason or problem-solve
· Do not demand that they remember
· Do not demand that they get their facts straight
· Do not correct their ideas or scold them
· Do not reorient them
· Do not think that they are being uncooperative on purpose
· Do not think that they really do remember, but are pretending not to
· Do not use a “bossy” dictatorial attitude in care
· Do not act with impatience
The Do's
· Enter into their frame of reality, or their 'world'
· Be aware of their mood or state of mind
· Use few words and simple phrases
· OR use no words, just friendly gestures and simple motions
· Do everything slowly
· Approach from the front
· Wait for a slow response
· Constantly reassure them that everything is 'OK'
· Keep people with dementia comfortable 'in the moment' - every moment
· Maximize use of remaining abilities
· Limit TV or radio programs which they may feel are frighteningly real
· Maintain privacy
· Provide a safe physical environment
Language Needs
· Use short words
· Use clear and simple sentences
· Speak slowly and calmly
· Questions should ask for a “yes” or “no” answer
· Talk about one thing at a time
· Talk about concrete things; not abstract ideas
· Use common phrases
· Always say what you are doing
· If they repeat their question, repeat your answer as you did the first time · Give them a longer time to process information
· Wait patiently for a response
· Be accepting of inappropriate answers and nonsense words
· Speak softly, soothingly and gently
Best of luck!
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I suggest you take her to a geriatric doctor to get a health assessment. However, if she was like my Mom, that just increased the anxiety until I could get her to a doctor that she respected.
What does your Dad think about what is happening? Ultimately, any actions taken will affect him too.
Dementia is NOT "just memory"..it is BRAIN DAMAGE. The brain is dying and parts of it become very hard to access, memory, behavior, understandings and rationals...
She needs assistance and compassion.
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