My dad is in the late/end stage of dementia. Does anyone know why when I ask him to sit he locks up? To the point of having to wait 10-15 min before he relaxes again only to go through it again. Or he’ll grab ahold of my arm and squeeze. I want to believe it’s not cause he “wants” to hurt me but because he can’t express whatever he wants at the time? What will these final times be like? It’s been extremely hard already.
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"We associate shaking and muscle stiffness with Parkinson's disease, but people with Alzheimer's can also have muscular problems. The muscles can become rigid, making it difficult to move, and there can also be a noticeable tremor."
Here's a link to an article discussing the matter in greater detail:
https://www.liftedcare.com/dealing-with-body-stiffness-and-aches-with-dementia/
The end of life journey differs greatly between people. Here is a link to a lot of useful information on that very subject:
https://www.alzheimers.org.uk/get-support/help-dementia-care/recognising-when-someone-reaching-end-their-life
Do you have hospice services on board for your dad now? You may want to ask his PCP for a referral and call around to a few hospice companies in your area to come by and evaluate him now. I've had very good experiences with hospice for both of my parents; they were able to keep my parents comfortable (but not over-medicated) at the end of their lives, and out of pain completely, easing their transitions greatly. They also provide hospital beds, supplies, medicines, CNAs to bathe your dad, and chaplain services to you all at no charge (Medicare pays 100% of their fees).
Wishing you all the best of luck with a difficult situation.
If your dad is not on Hospice I would strongly suggest it. You will get a lot of help, support and advice as well as equipment, supplies and medications delivered to you.
Hospice will help you and your dad through the "final times"
((hugs))
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You may find it helpful to use Teepa Snow's hand under hand technique when assisting him, this can allow you to offer assistance without him hurting you because he's squeezing too hard
https://www.youtube.com/watch?v=iKT9YIVPREE