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rshaud Asked August 2022

After being admitted to inpatient hospice care, now they want to send my Mom home or to another facility. Any advice?

She has Congestive Heart Failure, COPD, AFIB, Dementia among other illnesses. She was in rehab for 3 weeks last month and it was a nightmare. They gave her poor care and obviously just wanted her out of there.
Why can't Mom stay in hospice care?

Isthisrealyreal Aug 2022
Do you mean a hospice facility?

If yes, these are only for very end, like a week or two, of life, when a patients pain can not be managed without injections and for respite. Unless you can pay the 800 to 1k daily fee, she will need to have hospice in home or at another facility.

If money is a challenge, look for a board and care home that accepts hospice residents.

Best of luck. It is terrible at this stage of things to be looking for care. I hope you find the best care for her final days.

BarbBrooklyn Aug 2022
Have you asked the Hospice facility administrator or Social Worker why they want to discharge her?

Is she no longer eligible for Hospice?
funkygrandma59 Aug 2022
Barb a hospice facility is only allowed to keep a patient there if they believe they'll be dead within about a week. After that the patient can still stay, but will have to pay out of pocket to do so, and it is quite costly.
I know this first hand, as when my husband was first thought to be dying( I was told in 2 days)back in Nov. 2018, I opted to have him taken to our local hospice home. On about day five I was told that since my husband was improving, that I could keep him there for about $700/day, which I would have to pay out of pocket, or he would have to released to our home or a nursing home. On day 7 they brought my husband home in an ambulance where he remained under hospice care until his death in Sept. 2020.

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JoAnn29 Aug 2022
Rehab and Hospice are two different things.

Medicare only pays for Rehab as long as the person is progressing with therapy. If they hit a plateau, Medicare has them discharged. Discharge could be to home, an Assisted Living or LongTerm Care. Rehab is not LTC.

Medicare pays for Hospice care not the facility. If you want to move her to a facility under Hospice care then she will have to pay privately. Or you can apply for Medicaid to cover the facility, but this can take 3 months to receive funds.

You can bring her home with Hospice care but...the family does most of the work. And depending on her prognosis family may have to be there 24/7. A Nurse will come 2 or 3x a week and so will an aide to bathe her. How many hours the aide is there will depend on how many aides they have on staff.

freqflyer Aug 2022
rshaud, your Mom should be able to have Hospice care where ever she resides.

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