We are supplementing her diet with ensure plus. We are cutting up her food and feeding her small bites of favorites like salzbury steak and mac n cheese. We give her sweet things like apple sauce and strawberry flavored electrolytes. As well as cookies and desserts. We have started feeding her 5 small meals each day and two snacks. She sees her doctor about every 12 weeks.
When is it time for us to start a feeding tube? What percent of weight loss is an indication of needing a feeding tube. Her advance directive indicates no aggressive means of life support. Does this include feeding tubes?
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Call your mom's doctor for a hospice referral and to ask his/her opinion if now is the right time for such an evaluation. Hospice will bring in a hospital bed for mom, all the supplies she needs, and it's all billed to Medicare. You'll get help bathing her and she'll get medication to keep her comfortable as well. I had hospice services for both of my parents and they were phenomenal. Neither parent had any pain or suffering at the end of their lives, and for that I am forever grateful.
This is a difficult time for you as well, and my heart goes out to you. I watched my own mother decline with dementia for years; the last year was very difficult. She too dramatically cut down her food consumption and went from a very hearty eater to someone who pushed the food around on her plate. She even turned down cookies which was a shocking thing to witness. I watched her go from a vibrant, full of piss-and-vinegar woman to a mere ghost of who she once was. I was grateful when God called her Home, truthfully. It was finally the end of her misery and mine too, watching her decline on a daily basis. Please be sure to look after yourself during this stressful time, too. Wishing you the best of luck.
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One of the hardest hurdles for families to overcome is accepting that their loved one no longer wants nor indeed needs food and eating.
I urge you to educate yourselves on the dying process. A good source of information is this easy-to-read book:
https://www.amazon.com/Dying-Natural-Passage-Denys-Cope/dp/0978750659
Let your mother indicate when and how much she wants to eat. Never force food on her.
Reading this was very helpful. My husband had become lethargic and wouldn't eat. We had been trying to force him to eat and he ended up with pneumonia (probably due to aspiration). We now believe he was lethargic due to meds building up in his body. We are lucky because he has bounced back from it and is back to his "normal". If he gets to the point again where he doesn't want to eat, we will not force him unless there is a medical reason for him not eating.
When the body begins to shut down the need for food and eventually fluids diminishes then is gone.
To place a feeding tube when the body is not going to process the food or calories can cause many problems.
Contact the Hospice of your choice they will help mom and you through this difficult time. The goal of Hospice is to keep the patient comfortable and pain free.
Feeding tubes are an aggressive means of support.
I know this is difficult to watch.
Please know that your mom does not feel hunger as you or I would.
Not eating does not cause her pain or discomfort. (to feed her might)
She should be fed only what she willingly will accept.
Everyone is different but may I suggest your friend Google Roadback Foundation this was my first step back from h*ll.
The second thing was to cease eating vegetables in the Nightshade family.
Very best of luck.