She has dementia. And a few weeks ago she wouldn’t open doors, or would choke on solid food. And now? She is more lucid? Is this normal?
it’s honestly been so annoying to take care of her and seeing her get better instead of worst is disheartening. I keep hoping she’ll die and she improves?
7 Answers
Helpful Newest
First Oldest
First
Good luck to you.
i think daniLV is just exhausted. i love my mom but sometimes i feel the same way. caregiving and then burnout is traumatic and can leave us with feelings about the person and experience we never dreamed we would have. dont be too harsh. she will rebound but right now she is feeling exhausted, im sure.
ADVERTISEMENT
Folks with Alzheimer's/dementia can live from 5-20 years, so if you're not prepared for the long haul with her care, do you both a favor and place her.
In reality, no elder suffering from dementia ever get's better; they only continue to decline and to take steps 'down' on a regular basis. You may see your mother having good days from time to time, but she's not 'getting better' from a dementia standpoint. Tomorrow you may see her acting totally incoherent and be scratching your head wondering how you ever thought for ONE moment that she was getting better.
I suggest you read this 33 page booklet ( a free download) which has THE best information ever about managing dementia and what to expect with an elder who's been diagnosed with it.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia.
The full copy of her book is available here:
https://www.amazon.com/Thoughtful-Dementia-Care-Understanding-Experience/dp/B09WN439CC/ref=sr_1_2?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468364&sprefix=jennifer+ghent%2Caps%2C631&sr=8-2
This booklet may give you a better understanding of what dementia looks like, as a big picture, and help you see what mom is going through.
If you feel burned out, perhaps it's time to look into Memory Care Assisted Living for your mom. If the funds aren't available, look into Skilled Nursing with Medicaid to fund her long term care there.
Best of luck to you.