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hauzrlisa Asked January 2023

Mom sleeps most of time, barely eats/drinks, then every few days has a full day of delirium. Meds not working. Any advice, experience?

My mother is near end of life. Battled lung cancer never smoked. She survived a full year when doctors last Jan. '22 said she had a few months. It has gone to her brain. Mom sleeps most of time, barely eats/drinks, then EVERY FEW DAYS has a full day of delirium. (She does have moments of clarity as well on other days). It started a few weeks ago. It keeps my sister and I on our toes. She'll see things, sometimes has "energy" to want to get up and walk around or try to do things. I have no experience with this. My father went quickly in 6 weeks. This is all new to me. Hospice gave us Haldol for delirium (and we have morphine) but meds are not really working. Also have Ativan. Don't think its "rallying" but not sure. Asked about getting an IV for hydration but that requires a trip to the hospital but scared she might catch something while there. Plus it will freak her out, She hasn't caught Covid, pneumonia, a cold or anything since at home with hospice. It's wearing us out physically and emotionally. Any advice, experience?? Thank you in advance.

hauzrlisa Jan 2023
Thank you for your replies. We did contact hospice. They said to just give her the haldol and use a child's medicine syringe for hydration. She was not afraid of getting Covid, my sister and I were....or any other illness.

Natasana Jan 2023
Very important that you contact hospice immediately and tell them everything you've just posted. Follow their directions.

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Midkid58 Jan 2023
Talk to your hospice provider and tell them what you've told us.

There is NO one way to experience EOL. Sounds like mom is doing what would be very normal, though exhausting.

You may need to add to the meds or up the dosage. Ask Hospice, first.

She's scared of getting COVID at the hospital but she's in the active stages of dying. That kind of seems, well, over-thought. If an IV for hydration is needed, Hospice can provide that.

I'm sorry for what you're going through. It's hard, and there's no one 'guide' as to how to handle it all.

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