Has anyone had any experience with NPH (normal pressure hydrocephalus)?

I sure haven't but though I was a nurse I never worked neuro. I would only tell you that while I hope others here might have some experience to share with you, their own experience, whether good or bad will be as individual as any patient's own thumb print. I sure wish you luck and hope you will update us on your decision.
Has there been any suggestion from your neuro doc what would be an outcome of NOT doing this surgery? How complex it is? How often he has done it?
If you cannot talk a good long time with an MD about what all is involved here that would be a bad sign right there.

I hope there are others here who have experience with this unusual problem but I myself haven't at all in a long career of nursing. Do just know that others experience may not be reflective of your own in any way. Every patient is as individual as his or her own thumbprint. I sure wish you luck.