My husband has Parkinson's disease. I have an aide coming in 2 hrs daily, Monday through Friday. She has been with us for 2 years. Besides all of the emotional thoughts of placing my husband into an assisted living facility, there is the concern about how long before the funds run out. I have been verbally given a different amounts since the first written letter when we started using his benefits. I have requested this information twice before.
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I do not set up accts if I can help it. But this is the way of the world.