Anyone have experience with palliative care?

Yes Palliative Care, I used this with mother. This is additional care with what other care you may have. ( does alot ) mother was in nursing home and this was additional care that didn't interfere with her immediate care. Then later hospice as she declines. They work hand in hand once hospice.
Palliative Care did assist her eating bathing medication company read / music with her. It's just additional assistance that others would do .
Hope this clear. If you have Internet look it up . Great information.

God bless

Palliative care focuses on helping you to live your "best life." The goal is comfort - not healing from a disease or injury - with the least amount of discomfort. Most aides can help with home tasks and personal care tasks. Make sure to get all the help that you need now.

We cannot seem to find palliative care (at home) in my mom's county. So frustrating!

anna739: Perhaps you should pose your questions to your palliative care team. As far as the socks, my mother used a device with chords/ropes on each side that you step into and pull up on the chords.

Once a week visits, took vitals. Offered advice when asked. No hands on care. That was dads palliative care. Enabled person to person evaluation. Then we continued virtual appointments with dads doctor

This simple gadget helps me a lot:
(copy and paste)

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Thanks so much for all of the informative answers. Palliative care person hasn't called yet but I'm looking forward to their visit. Pain is pretty bad. I can't use codeine products and am hopeful of something else to help.

My husband was under palliative care for two years before transitioning to hospice care on the advice of the palliative care doctor and his PCP. The wonderful palliative care doctor visited every month, or more often if needed. She prescribed meds when needed and in consultation with his PCP. When my husband required bloodwork, she wrote the order and arranged for an in-home service. When he needed a scan to detect the extent of a blood clot, she wrote the order and arranged for an in-home imaging service. These were very important steps because my husband has lost his mobility, and it's difficult to leave the house for appointments. I can't say enough good things about our experience with palliative care, and it sounds like it would be a good fit for you too.

It is very difficult to get a prescription for pain meds today. If you are on palliative care, you get them.

I'm very interested in answers as well, as we just got a referral for palliative care for my 86-year-old mom who has spinal stenosis among other issues. It is my understanding that they do comprehensive care separate and apart from hospice oriented care. In essence, they improve your quality of life, but my question is how is that done differently than what we have now?

Both my parents were on Palliative and Mom was on Hospice and is now back on Palliative care. the company is not associated with the AL and I have been very happy with the care. palliative Care means my Mom gets a visit every two weeks from a nurse who manages her meds, renews them and can treat any medical issues that crop up. they are the extra eyes someone like my bedridden mother needs

I wouldn't be "googling" anything in this case but asking direct questions of the palliative care company/team that you want to use! Especially about pain meds if they claim to be writing prescriptions.

I am assuming you fully understand what palliative care is? If not, this visiting medical person will describe it for you. You may also need a referral to a pain clinic to manage pain and pain medication.

I have some spinal problems as well, due to compression of the spine and 81 years of living combined with old nurse's back. I never took anything strong than motrin and other NSAIDS for it, and now for 9 years have taken NO pain meds because I had diverticulitis and NSAIDs are a no no for it. While there is pain, I honestly can say it is no worse than it was when I WAS taking medications.

Do google palliative care so you understand what you are looking at, and be certain you have documented what you end of life wishes are for your care (advance directive).

Wishing you the best.

I have a team of 3 palliative care people I meet with monthly who provide assistance with symptom management of stage 4 cancer, emotional support and spiritual care. One is an M.D., one a nurse and the other a licensed social worker. Palliative care is intended to last longer than hospice which is 6 months, normally, and to offer curative treatments that hospice does not. A palliative care team looks for answers to help us cope with our illness/disease in the best way possible.

Good luck to you