My mother has depleted her funds and now I have to figure out an arrangement that can take care of her 24 hrs. In my efforts to get her SSI I learned that since she missed a hearing in 2009 she can only be approved for disability. I dont want her to go into a nursing home but I also dont have the time to take care of her with my job. I just want her to be safe but I dont know where to go from here. Any help/advice is appreciated.
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I would file for Medicaid to care for her in a Long-term care facility. If Mom is under the income and assets cap it should be pretty cut and dry. I would sit down with a Medicaid caseworker. One problem you have is Mom is under 65.
Not sure what the problem is from 9 yrs ago? Was Mom disabled in some way back then? Because if by SSI you mean Social Security she couldn't have gotten that, it would be Social Security disability she would have gotten. If it was Disability she was going for 9 yrs ago, you need to find a Lawyer who does SSD claims. He cannot ask for money at this point. He gets paid by SS from the retro money you Mom will receive. He may be able to get SSD now.
If Mom gets SSD now, if she can get Medicaid, I don't think she is allow the Supplemental too. Two government monies.
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A man from my caregivers support group just lost his wife this past July and she had early onset Alzheimer's and she was in year 21 of having it. He had cared for her at home except for the last 7 1/2 years that she was in a memory care facility.
She also went to an adult daycare center 5 days a week and 8 hours a day before being placed.
It's a tough long road that you and your young mother are on. I would apply for Medicaid for her and find the best memory care in your area that accepts Medicaid.
I wish you both well.
Please don't move your mother into your home or quit your job to take care of her. I know it sounds harsh but destroying your life and income potential to delay the inevitability of putting mom in a facility is not worth it.
Dementia sucks but it's even worse when someone gets it as young as your mother. There is a movie about that with Julianne Moore called Still Alice.
I am so sorry. This is tragically young for this to happen and it is incredibly sad. I wish you all the best of luck.