We have only been dealing with AD for a few months and it is progressing rapidly. She does not seem to have any issue remembering others but continues to alter my identity from husband, boyfriend or deceased father. Currently using Therapeutic Fibs to move her back to my correct identity. Looking for help or tips to manage over the long term.
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Avoiding stress for them is #1.
Thank you for all you did for her, and for contributing your experience and suggestions. It's very, very important. I hope you're doing better now, getting some much-needed rest and a bit of serenity knowing you did well by your wife.
I was out with my Mom. Ran into a woman she knew. Woman asked Mom how her kids were. The look my Mom gave the woman was "what!". Then she said to the woman..."I have no children". Not sure who Mom thought I was.
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Why do you need to correct her? If it is advanced dementia, you flow with where she is.
The focus and key when comunicating with a person inflicted with dementia is to keep them calm. You tell them whatever works. You do not argue.
Saying you are currently using "Therapeutic Fibs" tells me you are (perhaps) in your head. Flow in present time. Relax. She may know you one minute and not the next. If this gets to be too much for you, take a break. It must be heart wrenching at times for you - depending on how she responds / interacts with you.
You must learn to get over being truthful as if she didn't have advanced dementia. She does. You talk / communicate with her is ways that work FOR HER.
Take care of your own feelings.
If she has advanced dementia, she will not remember from moment to moment, day to day.
Let go of expectations.
Cry.
Find support / network
Do things you enjoy.
Research Teepa Snow - do her webinars. They will help you a lot.
If she is at home, get caregivers in.
If she is in a facility, make time for you to do things that bring you some joy (gardening, golf, museums, painting, boating).
Gena / Touch Matters
Maybe if you ask about her husband and discuss him, something might click.
My mother knows my cousins who visit a visit a few times each year. She occasionally calls my husband by name. It’s all so odd.
It's interesting to me that 'Cap Gras Syndrome' can also extend to pets.