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skkickss Asked November 17, 2023

Granny has dementia and gangrene. Anyone have experience with this?

Hi! I'm a concerned great-granddaughter. Granny had a blood clot in her leg which lead to her having gangrene. It was the middle toe, it seem like it has started to spread to the toe next to the big toe. However a granny having dementia it’s hard to tell if/when she’s in pain. I do notice that when she’s sleeping she’s putting her leg up (like a tent) more and more? Could this be a possible sign of pain? Also everybody wanted to amputate the dead toe except for granny’s main caregiver (my grandmother). Any suggestions on how to get her to want to amputate so it can stop spreading? I've tried to explain gangrene and how deadly it can be to her however it seems like all she care about is granny missing toes, any help or suggestions is greatly appreciated!

BarbBrooklyn Nov 17, 2023
Gangrene is fatal. It is a horrible death. I watched my grandmother die of gangrene back in 1976.

Does your grandmother understand that this is fatal?

Can you get the names of some hospice organizations for him to call?

Pain can be determined by monitoring BP. Hospice can show you how to do this.

You should know that the stench is going to be awful for many weeks. Face masks, with Vicks Vapor rub under the nose will help.

AlvaDeer Nov 17, 2023
This is in the hands of the person responsible for great-grandmother. The gangrene not only kills, but it does do so slowly and painfully, with a malodorous condition that will make the home or premises where great-grandmother lives almost impossible to live in. By the time there is oozing and odor the spread may be able to be stopped. I am assuming that your great-grandmother was seen by medical, and given grandmother's unrealistic attitude that there is no talk of Hospice care?

I am so sorry this is happening. I suspect you have done all that can be done by you.
However, at this point, as to pain, watching for grimacing or groaning with pressure to the foot would be your best bet in order to know. Often in conditions this bad there is little pain in someone very elderly due to peripheral vascular insufficiency. This insufficiency cause a sort of numbness in the feet that in this particular instance may be a bit of a mercy.

Do know that surgery is dangerous not only to losing toes but to losing life at this age, and that given dreadful circulation issues common at this age, there may be no healing, a need for further amputations, and it could spell the beginning of the end no matter WHAT is done now.

I am so very sorry. If you are very involved and wish to be, attend MD appointments with grandmother and great-grandmother if you are allowed and ask questions about options. My heart goes out to you; I hope you'll update us.

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cwillie Nov 17, 2023
She either needs to choose to be enrolled in hospice (because gangrene is fatal and hospice has access to the good pain meds) or her POA needs to override her choice for no treatment because she obviously isn't capable of understanding.

NYDaughterInLaw Nov 17, 2023
My guess is that no one has POA and that your grandmother is great granny's defacto surrogate by virtue of being her daughter i.e. her next of kin. Is that correct?

If the gangrene is not treated, the bacteria will spread and sepsis will set in. Your great-grandmother will get very very sick but more than likely it will be too late even if she got to the hospital.

You need to explain to your grandmother that great-granny either gets to the hospital sooner to have a few toes removed and goes home (she does not have to go to rehab which with her dementia will only distress her) or she gets to the hospital later in full-blown septic shock, which is an ugly way to die.

If your grandmother wants her mother to have a nice quality of life at home until she dies, gangrene is NOT the way to go. That's not to say there aren't risks with amputation - general anesthesia, etc. - but at this point, the real choice is between a few toes and death by sepsis.

JoAnn29 Nov 17, 2023
Granny is up there age wise and has Dementia. Maybe the daughter feels just let nature take its course at this point. Has granny seen a doctor? If not, grandmom could get in trouble for abuse since she is the main Caregiver. This is a life threatening disease that can be cured. I agree, you call the ambulance.

cwillie Nov 17, 2023
Even if the decision has been made to not treat leaving someone to experience terrible pain and suffering is cruel and negligent in my opinion, reporting your concern to the nurses, then the doctor, and if necessary ultimately APS is the ethical choice.

NeedHelpWithMom Nov 17, 2023
skkickss,

I’m so sorry that your great granny has gangrene.

I dated someone who had a horrific motorcycle accident. The accident happened at night so he couldn’t see that a light pole had been knocked down and lying in the street.

When my boyfriend hit the pole he went flying off of his bike and suffered horrendous injuries.

While he was in the hospital he was told that there was nothing they could do to save his arm due to gangrene setting in. Without an amputation he would have died.

He was young, in his early 20’s. He was freaking out over losing his arm and in horrible pain.

He came to terms with the fact that he didn’t have any other choice but to agree to allow the doctor to amputate his arm in order to live.

He went through a lot of physical and emotional pain. It is traumatic to have an amputation.

Your great granny’s age complicates things so much more. She or her POA will have to decide whether they feel that an amputation is worth the risk. Sadly, a decision will have to be made soon, very soon.

Gangrene is extremely painful and is fatal. Removing a toe will affect her ability to balance properly.

I would seriously recommend getting information on hospice organizations because it may not be safe for her to have surgery. Or even if it is, she may not want to face the aftermath of surgery.

Hospice will address the pain that goes along with gangrene. They will also provide a social worker and clergy for your great granny and your entire family.

Again, I am terribly sorry that your great granny and your family are going through this tragic situation. It’s not going to be easy no matter what she or her POA chooses.

Wishing you and your family peace during this challenging and difficult time.

LoopyLoo Nov 17, 2023
Your grandmother is not grasping how deadly this is. Maybe show her some photos of gangrene so she can maybe see it for herself. Do you know someone in the medical field who can come by and talk sense into her?
LilyLavalle Nov 17, 2023
Or take photos of granny's gangrene and show them to her doctor? See if s/he will intervene?
olddude Nov 17, 2023
Judas freaking priest, call an ambulance and get her to a hospital. I can't believe you are trying to get permission from someone with dementia while their body is literally rotting away in front of you.
JoAnn29 Nov 17, 2023
This is a great, the OPs mother is refusing to do anything.
BarbBrooklyn Nov 17, 2023
Sk, read this:

https://my.clevelandclinic.org/health/diseases/21070-gangrene

A podiatrist is not going to treat gangrene.

If ggma isn't seen soon in the ER, she is going to die of septic shock.

Make sure your cousin the POA knows this

Then decide if you are going to call 911 or discuss with Adult Protective Services that she requires Hospice care.

Grandma does NOT deserve to die in pain. Either Hospital or Hospice.

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