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amitebird Asked December 16, 2023

My sister is moving to my town and buying a house. Her husband has Alzheimer's. What should she look for in a house?

He should not drive already, gets lost. He's very frustrated, so we are expecting him to go down more soon; can't read, only watches tv but wants to go to store all the time. We are wondering about what is to come, bathroom is to be restored, should we put in certain toilets, showers, etc.? Appreciate any input.

BarbBrooklyn Dec 16, 2023
Has she considered, rather than buying a house, which involves lots of upkeep both inside and out, renting or buying a one level apartment or townhome? Or a Senior Independent Living Community,?

Dementia is progressive and she will need outside help soon.

Ask her to reconsider the idea of a house.
Katybr Dec 21, 2023
Very good advice, however, a senior community is soooooo expensive and where I live, everyone and their mother is moving here because it's #1 retirement county in the country because it's so "affordable." BS. It's NOT affordable to those of us that already live here. These places are marketing to NY, NJ, CT, West Coast to those that have multi-million dollar homes to sell and "buy in" for $500,000 and pay $4000/month to live! On top of that, if your spouse is disabled like mine, then they transition them to AL or Skilled Nursing for a whopping $20,000/month! Insane! That's "affordable"?
Stay in the home you're in unless it's so huge and a money pit to keep up. If that's the case, then, go to a small rancher in an over-55 community and try it out. But, in the long run, your spouse will need a ton of care and he'll most likely have to transition to a care facility. Terrible situation. I can understand where you are completely. I AM there and my home is massive with too much upkeep, but, the alternative is going to an over-55 (not) or retirement community where it's a 5-6 yr. waitlist for a small apartment! Nuts!
Fawnby Dec 16, 2023
In an over-55 community such as the one where I live, the buildings are already handicap-ready. The builder here included extra shower rails, wider doors in case of needing a wheelchair, no second stories in the homes, and so on. Yard care is provided by the community.

This is one of the most active-living places I've ever seen, and it's wonderful that if one partner needs the handicap features in the home, they're already there, and the active partner doesn't have to worry about having them installed. Also, she (it's usually a she) has a support group around her, and she can continue to play pickleball, board games, and go hiking while her husband is at home with his caregiver. There's a lot of that.

Anyone who sees what's coming down the road on the spousal dementia highway is well advised to find a place like this if at all possible. It's not cheap, but there is peace of mind. It's doable for many people. They sell their big houses elsewhere, buy in and never look back. I've never heard one person complain that they missed the Hummel figurines that they had to sell to do it.
Hothouseflower Dec 16, 2023
Someone actually buys Hummels? I couldn’t get rid of mine. Right now they are in a plastic bin in my parents garage.

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newbiewife Dec 16, 2023
A single level condo, or one at least with a first floor bedroom and full bath, would be better than a single family house. It's that much less for her to have to worry about as all exterior maintenance and grounds upkeep is the responsibility of the condo association. My husband and I moved into one of these, a cape-style end unit, to be loser to family after he was diagnosed with Parkinson's. We had to leave the community we'd lived in for over 50 years, but it was just 2.5 hours away so we saw friends from time to time. Medical care is a lot better here too. Sadly, my husband passed away last year, 5 years after our move, but I'm certainly happy to be close to family under the circumstances. And I love the condo community too.

againx100 Dec 16, 2023
Has she already put an offer on a home? How old is she? Taking care of a house is a LOT of work. I would definitely skip over that. I would move into assisted living, maybe in a 2 bedroom unit. There is a couple I know that did this in my mom's AL. It is working out well for them. The wife has support for her husband and they will be able to be together there for quite awhile since someone else is doing the cooking and cleaning and meds, etc. etc.

With him being bad enough to get lost where he lives, he should NOT be driving. Advise your sister to disable his car so he can not drive anymore. Before he kills someone.
amitebird Dec 17, 2023
She is 66. He is 73. Thanks for saying about the work involved in a house. Of course I know this, but I am 72 and avoiding my limitations myself. I'll check into it.
MJ1929 Dec 18, 2023
"Putting in" a special shower or any other major remodeling will take far longer than she has to spare, plus it'll cause great stress and anxiety for her husband if they're trying to live there while work is going on.

We're currently remodeling a single story house that's been torn out to the studs. We're only in our very early 60s and in perfectly fine health, but we're remodeling it to grow old in it. That means a
6' x 6' curbless shower with handheld sprayer, blocking between the studs anywhere there may be grab bars in the future (all toilets, showers in both bathrooms), toilet with bidet in the master bathroom, and ADA compliant doorways with minimum 32" openings. The house also has no stairs whatsoever to get in or out. There are other projects as well, including a new kitchen.

It took four months just to get the permits, and there have been numerous unforseen delays in the whole project. If we're lucky, we'll be able to move in February.

We submitted the plans to the city for permits on December 20, 2022. Today is December 17, 2023.

This has been a long and extremely stressful project, but we're fortunate to still be living in our current house until this new one is finished. The budget has almost doubled, too.

Needless to say, I'd only recommend such an undertaking for the healthiest and most patient people, and even then this has solely tried both.

MeDolly Dec 16, 2023
The only input I have is that, when she moves she should consider what she will need to live alone. I wouldn't spend a lot money restoring for him, just restore what needs to be done.

He will get worse, much worse and if it were me I would consider placing him nearby, she can visit him daily if she likes, but she will still have a life.

Best of luck to her.
cwillie Dec 16, 2023
Upgrading to an accessible bathroom and and laundry as well as considering entrances that can easily accommodate wheelchairs, walkers or scooters is something that will benefit any senior in the long run.
JoAnn29 Dec 16, 2023
Why is she moving from where he is the most comfortable. Those suffering from Dementias don't do well with changes. You are taking him from what is familiar to what isn't. It may be time to place him if he is getting too much for ur sister. You think he is frustrated now, wait until he finds himself in unfamiliar surroundings.

A rancher is always best I think. Make sure the bathroom he uses has the proper bars. A shower bench and a hand held shower. A shower that is easy in and out. No way for him to be able to get out of the house. Sell the car he drives before the move. My GFs Mom and Dad shared a car. So she sold it and bought a new only she could drive. He lost his wallet. She told him without his license he could not drive. He excepted that. When she found the wallet, she hid it and his keys. He never asked to drive again.
amitebird Dec 17, 2023
Very helpful. They moved from a huge house to another town to help their sons with school, both have problems, one is deaf with ADHD, other has continuing health problems from childhood cancer and depression. There is no way they can stay there without any help. Okay, okay, okay. I am the big sister, she is seeking me out and I have always been there. Plus, I am no spring chicken - my husband is 85 and a handful (nothing new). But thanks for the help anyhow.
AlvaDeer Dec 16, 2023
I think you are looking at your sister moving near you and needing to put her hubby in care. So other than shower grab bars and etc, if he can walk, I see no need for special items other than to insure place isn't too large or with too many stairs. This is progressing to the point where care should be considered in your area whether Board and Care or Memory Care. Your sister will need your support in seeking an elder law attorney for advice and options about division of assets and etc.

Sorry, but the fact is that the caregiving soon may no longer be possible as in home without taking the spouse before her loved one. Just too much to ask of anyone of a certain age unless she can afford a whole lot of in home help, and that's just not always financially feasible.

I am so glad she'll be near you as she'll need a lot of support and advice. She knows her hubby and his capablilities, so as far as that goes she will be a much better judge than we are.

ElizabethY Dec 16, 2023
I agree with others who recommend weighing carefully how she can best be supported. A move to an IL/AL/MC facility might provide her with more social support and physical support (yard care, meals, cleaning services) as her husband's needs increase. When his care requires 24/7 vigilance it wouldn't be unreasonable to consider a moving him to AL or MC.
Because he doesn't have a working memory he's going to struggle with any move. Basically every new location and every person is going to seem unfamiliar to him for a while, because he can't remember them, and he'll need time to develop a routine. You can imagine how confused he'll be on a day to day basis, and so it's not unusual with a move to see some worsening of the disease as they adjust. Because the disease progresses, some people may never return to a pre-move baseline.
Caregiving for Alzheimer's is hard. Her move neeeds to be made with a plan in place that allows her the most opportunities to take advantages of services and respite breaks.

Grandma1954 Dec 16, 2023
Has she already found a house?
If she can find one that is "Handicap accessible" or of "Universal design" that would be great.
But look for a house with few if any stairs. So Ranch home or a home with a main Bedroom on the first floor. Or room that could be made into a bedroom later, but it should have access to a good size bathroom.
Bathroom should have walk in shower, Roll in or Zero entry shower would be best.
Wide hallways.
Wider doorways. Or there are "Wide throw or Swing Clear hinges that allow a door to fully open. It gives a few more inches of clearance when the door is open.
If possible the ability to easily put a ramp in the garage if there are steps into the house from the garage. (It will reduce the 2 car garage to a 1 1/2 car garage and a 1 1/2 car garage might be a bit tight. )
If there are steps into the house front and back a ramp there might help as well.
If he is at risk of "escaping" think about placing a gate at any porch or deck steps. And make sure there is a latch that you can place a lock on.
I would also make sure the yard is fenced and the gates can be locked for the same reason.
amitebird Dec 17, 2023
She is still looking, but has a problem staying focused on what is needed, opposed to what they want right now. Thanks for all the tips.
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