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Ckamelian Asked January 16, 2024

I dare you to try to make any sense of her.

Ok I'm having a breakdown I am on the verge of being in the red zone I cannot make my mother cooperate I know. I can't make her comprehend what or why I want her to do something I feel like I am seething molten rock inside and I just want to effing get away before I scream something I regret . These are the times I feel like I really don't like her , because right now I don't. Right now she's really pissed me off , so ya I know she is sick. Some say she can't help herself I say some things she can . Ok I'm calming down now , thank you for listening... I will feel guilty about this later I know , but on the other hand I am human I forgive myself in that capacity .

BertieBanks Jan 18, 2024
Good to hear you feel better Ckamelian. Keep venting when needed and it's nice of you to want others to feel less guilty when they feel like doing that too.

The daycare sounds just right but do take everyone's advice and keep moving forwards with whatever care and support is needed. I've learnt a lot from the experience and kindness of the listening folk here. If you move forward little by little you will not feel so guilty (though you will feel sad) when a nursing home becomes the choice you know in your heart is needed because you will know you've done everything else you can along the way. Just wanted to send a hello and say make sure you look after yourself. And that you sound like a very caring daughter. And keep posting!

CharlieSue Jan 16, 2024
Mom was declining mentally in her apt, and her legs were going from a car wreck years ago. One day she called me and said "I'm in trouble", and it was game on. Seems she had fallen 5 times in 2 days, and had been picked up and put back into her chair. The last time she couldn't stand up and was stuck in the chair; she finally called me. Two years plus on, she has been in a lovely NH right down the street, using a wheelchair and Hoyer Lift, and says they take very good care of her. Lately a couple of complaints, which turn out to be her mind casting back to issues from many years ago that I remember, so her memory problems have taken another turn (she is diagnosed with dementia). I see her often; the help is really nice, the facility is clean and smells GOOD, and there are activities and good food. Someone even shops weekly for the residents, so when I can't get there for weather or something, no worries, and NO stress.... There ARE some good facilities out there - just say'in.
BurntCaregiver Jan 17, 2024
@CharlieSue

Thanks for posting this. You know it's so nice to hear about a person and their family having a positive experience with a NH, AL, MC, or rehab.

You're right, there are good places out there. It may just take a little research to find one, but not impossible.

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Dupedwife Jan 16, 2024
I’m so sorry that you are suffering from burnout. You need to take a respite break away from your mother before you end up getting sick from the stress. I know you said that you will never put your mother in a facility, so the other alternative for you is to have in-home care for your mother so you can get help to take care of her.

It’s clear that you are overwhelmed and stressed out, so I am urging you to seek help for your mother. Check with the county in your state where you live to see what programs they have for the elderly and what help they can provide for your mother.

Hoping you find relief from your stress.

waytomisery Jan 16, 2024
A few times I took things out to the garage to smash them . Very satisfying . Now I see there are actual places you can go to smash things . They are called smash rage rooms .

Ckamelian Jan 16, 2024
Thank you everyone , I feel cared for ...thank you very much . Yes it can get overwhelming and frustrating but I promised her a long time ago I'd never put her in a home . I know she doesnt remember that promise but I've worked in homes before and no matter how crazy it gets here , I'd rather her be here than there. I understand there may come a time but it's not yet . On the other hand I did find an adult day health place i take her to on Mondays and Thursdays from 12 to 445 and I have someone else im going to work something out with for some time off too. I guess I also wanted others to know they aren't alone in feeling angry, frustrated, just pissed off . That it's ok . :)
BurntCaregiver Jan 16, 2024
First of all NO ONE has a right to make someone promise not to put them in a "home".
No one has to give up their life often sacrificing their jobs, homes, marriages, and making their children suffer because a needy, elderly LO doesn't want to go into care.

No one wants to go into a nursing home.

If you're happy having her with you then, God bless but I'll tell you the plain truth here. I worked in homecare for a long time and when one person is doing everything it creates the perfect conditions for elder abuse.

I have seen good, loving, moral people who were dealing with a demented elder 24/7 come undone. No one has an unlimited supply of patience.

I worked in a house a couple times a week for a good and kind woman who's husband moved his mother with dementia in so she could babysit her and take care of her 24/7. She tried so hard and took so much.

One day I noticed that the MIL had a handprint on her face when I came in. I knew what happened and I didn't report her. I called her husband and told him that he needed to place his mother in memory care. He understood and a few weeks later he did it.

I worked for another client who the DIL was the caregiver. She actually became a good friend of mine. I showed up for work one day and she was in the garage sitting in the car with the motor running. She was okay. Her MIL was then put into care.

It's time to place your mother before one of you becomes a statistic.
JoAnn29 Jan 16, 2024
Time to place Mom. I could not handle the unpredictability of Dementia. I took what Money my Mom had and placed her in an AL. When the money ran out I transferred her to LTC with Medicaid paying. It was so nice just to visit and not at 65 dealing with an adult child.

Geaton777 Jan 16, 2024
So that others have a fuller understanding of your situation, this is from your profile:

"My husband and I live here with my mom, she has dementia ,maybe late 5th early 6th. stage. I am her only caretaker, besides my husband, there is a restraining order against my sister for 5 years . We had a caretaker before, I had a job before ,then I had shoulder surgery . Complications with my arms arose , our caregiver quit . I tried to hire someone else , they were a no show , that was the only day I made it back to work after surgery. So now I take care of mom , instead of working and to say it can be a challenge is an understatement."

Have you contacted social services for your county to see if your Mom qualifies for any in-home services?

Have you tried working through an agency for a companion aid, at least 1 day a week to give you a break? There's a lot more management when it comes to privately hiring. Most of the times an agency can send a sub.

It's really hard to revise how we view our parents, after a lifetime of interaction with them. My 94-year old Mom lives next door to me. She always had somewhat of a challenging personality but this past 1-1/2 years she is cognitively changing a lot. Even though I KNOW it's her dementia causing her to do and say upsetting things, I often continue to react to her as if she was herself from 20 years ago.

Yes, lots of forgiveness and mental/emotional work. May you receive peace in your heart on this journey. Bless you for taking care of her.
Ckamelian Jan 17, 2024
Yes! I keep finding myself trying to reason with her and arguing with her then I realize wait! You'll never win this , never ,she doesn't even know what I'm talking about ! God to be in her place ,I can not imagine.
funkygrandma59 Jan 16, 2024
When caring for your mother gets to be just too much for you, just go outside and scream at the top of your lungs. You'll be amazed just how much better you will feel afterwards.
Or as one of the "good Christian" ladies in my caregivers support group would do when her husband pushed her to the edge, she said that she would go out in her garage and let out all of the cuss words she could think of, and then go back in the house(feeling much better)and continue on.
You got to do whatever it takes to release the pressure valve.

Beatty Jan 16, 2024
Too much time together with anyone can drive us mad, right?

Nothing wrong with leaving the room & screaming into a pilllow now & then.

Return, smile.
Let it go.
Do something else.

Any plans to get some balance back into your life? Get more caregivers for your Mother? Get back to work?

Cashew Jan 16, 2024
Venting is important.
Before my Mom passed, I was her caregiver. But, I had paid caregivers from an agency come in a couple of times a week. Because, I needed away time. It seems like you need a respite. try hiring caregivers through an agency if you cannot find a dependable one on your own.

Just remember Mom's brain is dying. There is no way to know what areas of her brain are getting enough juice to function. Between the two of you, you are the only one with the physical ability to adapt to whatever her brain is doing at any given time...She's beyond adapting and is just trying to hold onto her rapidly eroding connections to this world

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