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IAmTryingStill Asked March 2, 2024

No available in-home help. Any suggestions?

I and my husband's doctors have contacted the surrounding health care agencies and there is no available help for an in home PT to get him moving. An OT to assess his abilities and teach me how to move him so I stop hurting my back muscles, speech therapist to reinforce safe swallowing habits. He has PD and is wheelchair bound. Any suggestions for me? I cannot get him in the car any longer to go to any one of them.

Beatty Mar 2, 2024
https://youtu.be/_dcUemgT6Go

Not sure if link will work.

EquipMeOT dated 5 Apr 2021 on YouTube.

The video is long but explains & shows clearly. Especially how the person must be independant & have upper body strength.

I have been trained for this but still would not attempt to move my frail wheelchair dependant Mother in this way.

I show you this option - not for training purposes - but so you understand what your remaining real options are.

Beatty Mar 2, 2024
Transport options for non-ambulant people are (to my knowledge) as follows;

1. Transported in a wheelchair.
Are wheelchair taxis available where you live? Can be $$.

2. Non-emergency stretcher transport. May need medical authorisation. Can be $$$.

Only other option I can think IF suitable..?
3. Slide board transfer.
(You could research a video online to see what I mean if not familiar with it). A slide board is used for people without leg control but who do have good upper body strength. For car transfers the person would need to be fully *independant* with the slide board as space restricts a person being close enough to assist. I have seen it used by younger men or stronger females with paraplegia.
I have not seen used with PD.

If your husband needs PT, OT & Speech, this is a huge about of transport - much effort & cost.

What alternatives exist?

Do you have an Assisted Living Care Home nearby? With allied health services attached?

Could he obtain respite care for 4 weeks there & be seen by these services on site?

Have you discussed these issues with his Doctor or PD Specialist?

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NeedHelpWithMom Mar 2, 2024
Please don’t risk injuring your back any further. The last thing you need is to be laid up yourself due to a back injury.

When I had to call the EMTs to help with my mom, the first thing that they said to me was not to try and move my mom by myself because it was not worth risking injury to myself.

Plus, we are of no use to the person that we are caring for if we are injured.

Wishing you and your husband all the best.

Isthisrealyreal Mar 2, 2024
I would recommend watching YouTube videos to learn how to move him without hurting yourself.

Start looking and watching everything and anything you can find you will find what's best for your situation.

BarbBrooklyn Mar 2, 2024
https://www.agingcare.com/local

Click on the Find Care link above. Request information.

Have you contacted Visiting Nurse Services?

Call Lionsgate in Voorhies and find out if any of their PTs do home sessions

Contact local outpatient PT clinics and find out if any of their therapist do home sessions.

IAmTryingStill Mar 2, 2024
Thank you all for your input

NeedHelpWithMom Mar 2, 2024
Call Council on Aging in your area. In our area they provide transportation for seniors via shuttle buses with wheelchair ramps.

Or start considering that you have done all that you can for your husband at home and look into finding suitable facilities for him to live.

AlvaDeer Mar 2, 2024
Sadly it does sound to me as though you are approaching the need for in facility care.
I am so sorry.

Grandma1954 Mar 2, 2024
I am going out on a limb here, mainly because it is me and I suggest this a lot.
Given your husbands age I suspect he may be a Veteran. If that is the case contact your local Veterans Assistance Commission and they can help determine if he would qualify for any services from the VA.
If so the VA has an In Home Health Program that he would probably qualify for since you can no longer safely transport him.
And if he is a Veteran he may qualify for a LOT of services and as a spouse caregiver the VA now pays a spouse to care for the Veteran so this may be a benefit to you as well.
Side note if the Parkinson's might have been caused by his Military Service there may be many more benefits in it as well.
IAmTryingStill Mar 2, 2024
He is not a Vet. I know that if he was it would be so much easier.
JoAnn29 Mar 2, 2024
It maybe time to place you husband. You just can't do it anymore. See an Elder Lawyer about splitting your assets. DHs split going towards his care and then applying for Medicaid. You remain in the home, have a car and enough of your monthly income to live on. An Elder Lawyer can go into more detail.
IAmTryingStill Mar 2, 2024
A facility is not in the future as long as I can function. Our assets are split 3 years now. Medicaid planning has been done at that time, but, he worked his heart out getting out home and maintaining it for 30 years and he can not be invited to leave. I just needed guidance. Thank you for your input.
cover9339 Mar 2, 2024
Have you contacted your local city and/or county Aging agency?

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