I and my husband's doctors have contacted the surrounding health care agencies and there is no available help for an in home PT to get him moving. An OT to assess his abilities and teach me how to move him so I stop hurting my back muscles, speech therapist to reinforce safe swallowing habits. He has PD and is wheelchair bound. Any suggestions for me? I cannot get him in the car any longer to go to any one of them.
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Not sure if link will work.
EquipMeOT dated 5 Apr 2021 on YouTube.
The video is long but explains & shows clearly. Especially how the person must be independant & have upper body strength.
I have been trained for this but still would not attempt to move my frail wheelchair dependant Mother in this way.
I show you this option - not for training purposes - but so you understand what your remaining real options are.
1. Transported in a wheelchair.
Are wheelchair taxis available where you live? Can be $$.
2. Non-emergency stretcher transport. May need medical authorisation. Can be $$$.
Only other option I can think IF suitable..?
3. Slide board transfer.
(You could research a video online to see what I mean if not familiar with it). A slide board is used for people without leg control but who do have good upper body strength. For car transfers the person would need to be fully *independant* with the slide board as space restricts a person being close enough to assist. I have seen it used by younger men or stronger females with paraplegia.
I have not seen used with PD.
If your husband needs PT, OT & Speech, this is a huge about of transport - much effort & cost.
What alternatives exist?
Do you have an Assisted Living Care Home nearby? With allied health services attached?
Could he obtain respite care for 4 weeks there & be seen by these services on site?
Have you discussed these issues with his Doctor or PD Specialist?
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When I had to call the EMTs to help with my mom, the first thing that they said to me was not to try and move my mom by myself because it was not worth risking injury to myself.
Plus, we are of no use to the person that we are caring for if we are injured.
Wishing you and your husband all the best.
Start looking and watching everything and anything you can find you will find what's best for your situation.
Click on the Find Care link above. Request information.
Have you contacted Visiting Nurse Services?
Call Lionsgate in Voorhies and find out if any of their PTs do home sessions
Contact local outpatient PT clinics and find out if any of their therapist do home sessions.
Or start considering that you have done all that you can for your husband at home and look into finding suitable facilities for him to live.
I am so sorry.
Given your husbands age I suspect he may be a Veteran. If that is the case contact your local Veterans Assistance Commission and they can help determine if he would qualify for any services from the VA.
If so the VA has an In Home Health Program that he would probably qualify for since you can no longer safely transport him.
And if he is a Veteran he may qualify for a LOT of services and as a spouse caregiver the VA now pays a spouse to care for the Veteran so this may be a benefit to you as well.
Side note if the Parkinson's might have been caused by his Military Service there may be many more benefits in it as well.