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Caligrammie6 Asked April 11, 2024

I need words of wisdom for accepting husband’s hyper sexuality at his memory care facility. He can’t keep his hands off women.

My husband has frontal variant Alzheimer’s diagnosed four years ago. Two years ago he had a hospital stay for viral encephalitis which took him down both physically and mentally due to brain swelling to the point that he would not be released unless he had 24/7 care. I was able to place him in assisted living first but then he wandered out and needed to be placed in their memory care unit. It was there that he began his quest for physical intimacy with other female residents, culminating in me walking in on him and another woman undressed in his bed. I moved him to another memory care unit where they are better at keeping an eye on him, but he continues on his quest, kissing, holding hands, putting his hand down women’s blouses, and squeezing rear ends of residents (and staff), and attempting to bring them to his apartment. I have tried staying away for a week, but mostly I go every day or every other day to visit or take him on outings thinking with more interaction I can change his behavior. We hold hands and kiss, but it’s harder for me to want to. Previous to his Alzheimer’s diagnosis we were living in separate homes for a year due to his emotionally and verbally abusive behavior towards me (he tried to keep me away from my family). I will not be able to care for him at home even though I know that would solve the problem. His two sons are incapable of helping out (one alcoholic, one barely independent due to autism). So I’m the responsible party, trustee, and POA financial and medical.


 


Because it doesn’t seem like I can control or change any of this, I’m looking for advice on how to not care what he’s doing with the women. I find myself full of anger, stress, embarrassment, hurt, and frustration to the point that I feel that I’m not treating him kindly. I’m not sleeping well. I actually asked staff if they could let him go .. stop redirecting and let him find a companion and do what he wants so I know he is content and happy. Then maybe I can disappear into the sunset at least to where I’m just doing the necessary doctor and dentist visits, etc., and not be around so much to witness his antics or be told every little detail about them, but staff feels they can’t just let him “go.” Apparently there is a family there with a mother he’s pursuing and they are NOT happy with what’s going on. So I feel that my only solution is for me to get an attitude adjustment and I don’t know how. I’ve tried so hard to just think about him as an older brother or something and it’s just not working. I have loved this man and don’t know how to flip the switch and not be hurt. It’s possible it’s just exhaustion. There is way too much caregiving in my life with my husband’s needs, autistic stepson’s needs, and babysitting grandkids etc.


 


Thanks for any advice and hope you all have a great day. We all deserve that.

MargaretMcKen Apr 11, 2024
I think you already have the answer you need: “Maybe I can disappear into the sunset”. It seems that you feel that you need to make everything as good as possible before you head off. However perhaps you don’t need to solve any of this. You are not responsible for his behavior, and you can’t make it ‘good’. You don’t have a magic wand.

Can you cut the emotional tie, the way you would if heading for a divorce or permanent separation? You say “we were living in separate homes for a year due to his emotionally and verbally abusive behavior towards me”, so you were on the way there before he went into care. You also say “I have loved this man”, and it’s ‘have’ in the past, not the present.

Set yourself free, let the professionals deal with the problem, and walk away. It won’t make anything worse than it is now, and it will do what you ought to do for yourself. You matter too, and you know it. If you want, you can keep in touch and visit every couple of months. It doesn't need to be a bitter separation, but you really do need a separation that lets you off the hook.
waytomisery Apr 11, 2024
This ! Cali , you were already living in seperate homes because he was abusive . Be a distant advocate to make sure he is cared for . Let the facility deal with his behavior . Visit once or twice a month just to see he looks cared for . Stop trying to hold his hands etc , it’s not going to change his behavior . You are not responsible for his behavior . Do a quick visit as if you were simply a friend .
Rumbletown Apr 11, 2024
This sounds very stressful on so many levels—I’m very sorry to hear it. I’m not sure I have any insight on “attitude adjustment” for you, but I think it would be easier to adjust if these behaviors were diminished.

Hypersexuality is not uncommon in dementia, and if it is causing problems (as here) and behavioral management isn’t enough, there are medical treatments (pills and patches) that diminish sexual drive or behaviors. Does he have a doctor who could investigate these?
Caligrammie6 Apr 12, 2024
He is on meds and they are working hard to get the right cocktail. He has other health issues as well and lots of drugs cause dizziness. He’s a fall risk. I will find out about patches. I’m not aware of that. So far the docs lean towards meds used for other purposes that have the side effect of decreased libido.

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BurntCaregiver Apr 12, 2024
How disgusting but not uncommon. If you are the POA, give the memory care facility permission to medicate him to keep his dementia-related hypersexuality surpressed.

This kind of behavior eventhough it's beyond his control, makes him a dangerous predator to the women who are residents in the same memory care and it has to be stopped.

Have a meeting with the care team at the memory care and give your permission for them to medicate him at their discretion to stop the hypersexual behavior.

As for you coping with it. There's nothing for you to cope with. Your husband is in memory care not home with you. Don't let yourself fixate on his behavior because you'll drive yourself crazy.

You aren't the one who needs an attitude adjustment here. Your dementia-sexual predator husband is the one who needs to be medicated to stop this behavior. It's not up to you to medicate and baby-sit him. That's the job of the memory care he's in. It's also the job of the memory care to take him to the doctor and dentist. You don't have to do that and you shouldn't.

As for the "mother" he's got his eye on at the memory care. You can't blame her family for wanting to keep her safe. He needs to be medicated immediately.

My friend, you have a right to have some contentment in your life. Stop visiting your husband in the memory care and only check up on him through staff. Or cut the visits down to once a month. Stop babysitting for your grandkids too. You raised your children already. Now it's time for them to grow up and take care of their own families.

Where's your autistic step-son's mother? Why isn't she responsible for him? You know the state will appoint a conservator over him if he needs to be taken care of so he's not your responnsibility.

Let yourself have some kind of a life. You deserve to.

Southernwaver Apr 11, 2024
This really infuriates me because the women in memory care can’t consent! It’s a legal issue. Not to mention a moral and ethical one for the company.
Caligrammie6 Apr 12, 2024
It is serious, and the facility isn’t ignoring it. He is checked on every 15 minutes now. I’m afraid he will get asked to leave. I wish I could find an all male facility but so far no luck.
Fawnby Apr 11, 2024
I'm so sorry that you're going through this.

Medication! I hope his doctors can recommend something that works. Of course you're going to care what he's doing with other women - he's your husband. What would help me to put it in perspective is that you were living separately due to his emotional and verbal abuse. He is your abuser. ABUSER! We owe our abusers nothing. He is not worth the agony you are experiencing now. Once abused, we need to slam our emotions into a different gear. We need to learn to think differently. Yes, you loved him, but realize that he's a jerk, was a jerk before, and getting sick does not excuse him from what he did to you before.

Because we feel sorry for them, because we loved them, we give them a pass. So they, with their sense of entitlement, keep on doing it. If husband hadn't become ill, he'd probably be abusing someone else by now. Well, actually, he is. He's a sexual predator. Yada yada yada, yeah, but he's sick. That's a fact. He's still preying on women, though, and that's a fact too.
Caligrammie6 Apr 12, 2024
Much of what you stated makes perfect sense. Thank you for opening my eyes. Many meds have come/gone/changed over the last year. Doctors are still trying to figure it out.
Geaton777 Apr 12, 2024
Isn't he on any meds for his hypersexuality? If not, why not? If he is then this needs to be revisited by his doctor.

As long as you continue to accept being the responsible party, no, you cannot "just let him go" since what he's doing is assaulting people -- and even the other residents who seem to "consent" don't know what they're doing. I'd be outraged if he were doing it to my LO and his PoA and the staff were looking the other way.

Yes, you do definitely have too much caregiving going on. You need to let go of some or all of it. You are in control of this but for some reason your guilt (or something) is imprisoning or paralyzing you. You can resign from being your husband's PoA and trustee at any time... you just have to be willing to accept what happens after that and be at peace with it.

Your autistic stepson... are you guardian for him too? If so, you can relinquish this as well. None of it will feel good but it will help you keep your sanity and health. Sometimes there are no good solutions, only "least bad" options.
Caligrammie6 Apr 12, 2024
Yes there have been many medication changes/additions over the last year. He is under the care of a collaboration of doctors at our local teaching hospital who specialize in Alzheimer’s and other dementia’s, but he’s still not where they want him to be behaviorally. He just started trazodone and next up is an antidepressant to decrease libido further. Hopefully something starts working. They have to take it slow to watch for side effects, and many of the drugs can create a fall risk. No I’m not the stepson’s guardian— alcoholic brother is but he lives on the east coast. There are no other relatives here. I’ve made huge progress with saying “call your brother to help you with that.” He also has an independent living counselor 3 hours a week for appointments and shopping. I’m left with his birthday, Christmas, Thanksgiving etc. I’m going to stop that as well. His brother will never move him to NY if I keep providing.
LoopyLoo Apr 12, 2024
“I will not be able to care for him at home even though I know that would solve the problem.”

No, it wouldn’t. You and staff can re-direct him but can’t change his thinking. He needs medication that can curtail the behavior.

KNance72 Apr 11, 2024
Gosh get a therapist and take a cruise . Get some head space for yourself and Meet some new people . Hypersexuality can Play a role in Dementia , sometimes it is a Phase . If you can't get away get a massage for yourself and focus on you .
Caligrammie6 Apr 12, 2024
Therapists cost $175 a session here. I had one for a few years but she retired before the Alzheimer’s started. Not enough in the budget anymore. Checking out support groups instead. A massage sounds nice!
Hothouseflower Apr 13, 2024
You should limit your visits. The less you witness the better off you are. I understand you loved this man but that person does not exist anymore. Only his body is there. Find a support group. There were some good suggestions posted.

Rely on the facility to take him for his doctor visits. Just do as little as possible.

I would definitely meet with his team to talk about what could be done about his hyper sexuality. This is not fair to the women on the floor.

Suzy23 May 21, 2024
Calliegrammie, I am so sorry to hear this, it sounds very distressing. I echo what others have said. Cut back on your visits for your own peace of mind and well being. At a minimum, give yourself a week or two of vacation from visiting him. If I were you, I would stop with the outings and probably even the handholding and kissing — don’t do anything that bothers or distresses you that you don’t have to do. You count at least as much as he does at this point!! Preserve your own mental strength and quality of life as much as you can!

The facility has got to step it up to do whatever to curb this behavior just as they would with any other behavior that is having a negative effect on other residents. Of course this particular behavior affects you deeply and personally. But to them, it should be like any other problematic behavior like if he were stealing food, or creating hazardous or unsanitary conditions or too much noise.

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