My mom's been on morphine + other drugs and hasn't ate or drank anything in almost 9 days. Why won't this end? It's becoming hell for me. Me and my sister have been watching over her in 12hr shifts and every one gets harder and harder. I find now I'm past the point of sadness and am angry now. Angry she won't pass on, angry my mom has to suffer like this, angry me and my sister are being put through this hell for SO LONG. Even the nurses here seem bothered by it. At this point I'm here more for my sister than my mom. I don't think she will let mom die alone and I can't leave her here to do it by herself.. I just don't feel like this is right anymore and it now just disturbing. I don't think my mom would want us here watching her die like this.. I just want to move on..
But in many cases of the elderly slipping away our loved one is not aware of their surroundings. Yes I know, some senses may be working, hearing touch and so on, and there may be the short rally, but usually there's no recognition.
It's very hard to predict the exact moment of death and be there. People practically kill themselves trying to accomplish it.
I think we should redefine "Dying Alone". If you have spent time, talked, held hands, provided comfort for your lived one during the final days they did not die alone, even if you weren't there at the exact moment. There is no shame, no dereliction of duty here.
Sorry you have been going through this. I lost my mom in June.
The bed next to her was empty and the staff let me use it (she was in a NH). I laid down & fell asleep to the sound of her labored, shallow breathing.
At 3am I abruptly woke up as I didn't hear her breathing, went to her and she was gone. It must have happened just a minute after as my mom was still warm to the touch. I sat with her for awhile, called my brother and told him to come, and we spent some time alone together, the 3 of us.
I felt guilty for years as I missed her last breath, until I came to this site and found that many loved ones do pass when the family takes a break. I honestly feel now that my mother wanted to spare me the memory of seeing her pass. Now I am actually grateful for it.
Who knows...maybe that's your mom too.
Do whatever you feel in your heart, but I no longer feel that we actually need to be physically present at the moment of death. In a way, I feel like I was actually obeying my mom one last time in allowing her to chose what she thought was best for me to live with after she was gone.
What you are going through is so emotionally and physically exhausting. I wish the best for you and your family during this very difficult time.
I thought about what might relax mom, she seemed to be hanging on desperately. I played Opera music that she loved; sil found Big Band music, we you tubed Broadway musicals and American Songbook. I don't know if it helped mom, but it sure helped Us!
I would seek medical advice from hospice and I would takes frequent breaks. It doesn't matter if you're there at the last breath. You've been there for the journey to the door.
Let your sister read some of these responses if they resonate with you. Thinking of you at this sad time.
My late Dad waited for me to leave the room for a few hours before he passed. He did have his long time caregiver there, but it isn't the same as one's own grown child. So Dad did me a favor, I didn't need to witness his last breath.
Nine days on morphine without any food or water is an exceedingly long time and not the norm. Four or five days is pretty typical in this situation.
I can understand why you are beside yourself. If it doesn't feel right and you are disturbed by it take a step back. You're allowed to do that as is your sister. I used to work in hospice and if I saw my patient's families going through what you are going through I would strongly advise them to get away for a day or two and let whatever happens happen. Do some things around the house. Catch up with friends. Take a nap. Have a glass of wine.
You have a phone. Someone can call you if necessary. Do what you have to do to take care of yourself. And if you can't walk totally away because you want to be there for your sister then maybe discuss shorter times at the bedside. Twelve hours is long, long time.
Dying is such a personal thing....regardless of how we, as "survivors" feel, a person passes in their own due time. This may FEEL like it's about you, but it's not.
Have you spoken to your mother (whom I believe is just hovering between this world and the next) and TOLD her she can go? Told her you love her, and that you'll be ok?
Give her some private time. My grandmother just kept hanging on b/c mother wouldn't leave her side. The nurses at the hospital sent mother home to sleep and grandma passed quietly in the am, alone. Just like she wanted.
We did encourage grandma to "let go". She was talking to her husband, who has passed 36 years earlier. She talked to him all day. I remember asking her how he looked and she said "Oh, he looks WONDERFUL!". I told her "Next time he comes, just take his hand and go, it's OK, We're all fine. I'll watch over mom, she'll be fine."
I do believe that once grandma had permission to "go" and knew we were all OK, and she was alone, she did in fact take granddad's hand and walk through the door into the next life.
Daddy passed with the whole family present. We had said a family prayer, told him that we all loved him and said he could leave us, and the suffering would stop. It was sweet and beautiful. No more pain.
Your mother shouldn't be in pain--if she is, make sure she's kept on enough morphine to keep her comfortable. Maybe you are projecting YOUR pain of her dying on yourself...hopefully she is peaceful, and this process just takes time. Also, if she has an IV running, that will slow down the dying process.
I'm sorry for your pain--this is hard. Take care of yourself in this difficult time.
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