How do you continue to be a caregiver when your parent has always had some form of mental illness...in my case Narcissitic Personality Disorder. My mother has always suffered from this and now trying to be a more closely caretaker is bringing me down. No one is realizing I cannot take care of her by myself. She is crafty and her aging just makes is all much worse. More and more calls from neighbors to the police or paramedics with her stunts. They say she cannot be alone but I cannot tolerate to be around her. She refuses to go to a nursing home, so now trying to find someone who will at least come and check on her a couple times a day at least to give her her psych meds. There is no one to help me. I have been of work for almost a month on FMLA and it seems to be a waste of my time, since she can do many things by herself...(she just tore apart the patio cleaning it ...an 85 year old pushing and pulling couches and vacumns...) mental illness in an aging parent..HELP!!!!!!!!!!!!!!!!!!!!!!!!!
I am her Guardian and Conservator for a reason: to preserve her health and quality of life, and to protect her assets. But, no matter what I've done for her, it's not good enough, at the right time, etc. And she wants everyone to know that she could have done what I'm doing if it weren't for my Dad's Alzheimer's, and she could have been a nicer mother if it weren't for her rotten kids. In her mind, I'm her serf, born only to serve her. If she needs something, it's my responsibility to make sure she has it just as she demands, and in a time period suitable to her. If I get in her way, I'm a nuisance. If I don't please her, this is reason for defamation of my character to anyone who will listen.
When mad at her husband, (always) he was a no-good, mean, abusive, neglectful creep, who can't meet her needs, who worked "too much," and not worth her time, except to do her bidding. She only sees my husband as a continuation of her husband. He is to hang pictures, fix things, open things, take her places, and serve her whims. Never mind she despises his wife, and calls the police when she doesn't have her way. Never mind she writes letters to Probate Court judges trying to have me removed from authority. She has cried to her "pastor" who contacted the authorities on her behalf, with false charges of abuse, and she's running from person to person in her senior complex, trying to align her allies against me. She called the Sheriff department, who were ready to confine me. I got a telephone call from a sweet lady Guardian ad Litem, saying Mom had made allegations against me. Mom changed her mind about pressing charges so many times, that they dismissed her "charges" as illegitimate. I confronted the issue by calling her Sheriff ad Litem, who has a similar situation with her own parent. After telling my side of the story, she recommended the false charges be dropped, and they closed the "abuse case" against me. I proactively stopped at the Police Station the other day, with Mom in the car, to seek their advice, and ask for suggestions in handling a delicate issue concerning mom leaving her valuables vulnerable in her apartment with her door open. Mom had no idea why I was there, and sat in the car with my husband while I ran in. Rather than her calling them, they now have an idea of the person and estate I'm trying to protect. Mom would not stoop to call them if she had a complaint against me, even a trivial one. I cry inside at her audacity.
Tomorrow I have an appointment with an agency who say they can transport her to doctor appointments, manage her medications, and provide for her needs - all for a reasonable hourly fee. I have had two conversations with the director, and she has 25 years experience in her field, and really understands our needs. Why? Her own mother suffered from a Personality Disorder. I'm praying she can handle mine. I want to remove myself from the day-to-day equation, and let mom deal with a neutral party. This woman has several people who work for her, and will match one suitable to mom's needs.
In 3 days, mom has a follow-up appointment with the Geriatric Assessment Clinic who originally diagnosed her PD condition. They told me she "definitely needs a Guardian." I will ask for that in writing, and will follow their recomendations for further assessment. I balked before, as their suggestion required much travel for mom and me. But without that, I'm at the mercy of her PCP, who didn't see the need to follow all their recomendations. I would rather travel, and get a full assessment and further testing and diagnosis, than "stumble along," hoping mom gets the help she (and I) need for her. So my two very important appointments are coming up soon. O how hopeful I am that this will help! Perhaps I'm dreaming, but I want to put an end to the fear of someone believing her and not me, having documentation to "prove" her incapacity, not just her word against mine.
I have photographs to illustrate her hoarding and spending patterns. Should an authority ever question my need to manage her finances, these prove it was not Dad's fault their home was in jeopardy. The bill collectors were sending letters and people to get the money they deserved, and the wagons were circling. Mom wrote the Judge that she "had a checkbook for buying groceries," and doesn't need a Conservator. My pictures prove she does, but so far, no one has seen them but me. She convinced all Dad's siblings that he was the problem, to the point that they are more willing to accept his shortcomings than hers, as she berated him, defamed his character, and demanded he perform for her. Such a sad 52 years of marriage for them. Now she wants to use his declining condition, due to Alzheimer's as her "show and tell" to gain further sympathy for herself, as the abused wife, now left to fend for herself. It is only in Mom's mind that all was well with her. If she persists in her attempts to extricate herself from me as Guardian and Conservator, the whole world see the truth, and that won't be a pretty picture.
I see nothing positive in my mother at this point. She is a mean, vindictive, calculating person, bent on destroying others to achieve her wicked ends. A Jezebel, who cannot understand compassion, love or friendship. Her unknowing companions are only for her amusement, and there to listen to her complaints and provide sympathy for her "sad situation." If one disagrees, they are anathametized. Woe be to the one who crosses her, or exposes a weakness in her! Off with their head.
Positive? Hmmmmmmmmmm. I only see anger, revenge, guile, bitterness, revenge, backbiting, gossip, despising, and vindictiveness. It's a vicious, slimy world around my mother. A battle of the wills. Still, she's my mother. She has physical and emotional needs. I pay for her clubs, and magazine subscriptions. I buy her favorite foods, and try to provide her wants, as well. I have filled her apartment with her cherished belongings, to the extent possible. I provide her with some spending money, so she can attend potlucks, ice cream socials, and an occasional lunch or dinner out with friends. I bought and planted flowers in her little apartment garden, which is the showcase at the main entrance: a beautiful hanging basket, one on a stand, a hummingbird feeder, windchime, and lovely bedding plants, as she always loved her gardens. I bought her a darling table and chairs so she could entertain a guest in her apartment, and even offered to buy her a brand new recliner (that she declined).
We spent the last two years driving the 400 mile trip back and forth, at least 4-5 times per month, to attend to her medical needs, and oversee her household needs. I was there for every doctor appointment, hospitalization, and surgery. I persisted in getting her off narcotics, by finding an astute Physician (after trying several). She had home health care and physical therapy when bedridden, and prescriptions delivered to her door. You can all see how mean I am to her, right?
I cannot focus on her positive character traits, at present, because they are hidden from my view. But I can look for ways to continue caring for her needs, and make sure she has the best health care available, and social stimulation to keep her active, and vibrant. So far, it's working well for her. She no longer complains of headaches and wanting to go to ER. She no longer calls saying she "can't breathe." She no longer has bill collectors demanding bills be paid, or knocking at her door. Her checkbook is balanced, and she can go out with friends any time she wants, within reasonable budget allowances. She no longer has to worry about foreclosure, or the future. Just wish she's quit complaining about me.
I am overwhelmed by reading your post. How you get through the day is a mystery to me. It must be due to your strength of character and love of your family. I will say special prayers for you and send my best wishes as always. You are a truly wonderful daughter. If your mom can't see it, the rest of us do.
Linda
In reading your question, about how I get through the day, I don't think I have any strength of character, but just a will to survive. I think I gain strength, from the support I get from people like you, who understand, and show compassion. Love and compassion are powerful in terms of healing, and motivational, as well. And I have some wonderful friends who listen to me whine about my mom, and love me anyway. Sometimes I wonder if I'm becoming mom, because she has been so pervasive in my thoughts, and taken so much of my physical and mental energy lately. Like complaining about mama's drama has become my full time occupation.
Believe me, I'm not a wonderful daughter. I get mad, frustrated, and ticked off at her. Why can't I just be sweet, regardless of her attitude? It's like her bitter spirit breeds the same in me, and makes me feel ill. Thank God I don't feel that way toward others. No one can get under my skin like she does. I wonder how she got so much power over me? And how do I extricate myself from it? Fortunately, a day or a couple of days away from her make heaps of differences in my attitude and outlook.
I am looking forward to my meeting tomorrow morning, with an "angelic" home care company, and finding out if they can help relieve me of some of the caregiving burden. I just want to regain back my own life and peace. Just a few hours of sleep, and then I'll know more, and I am so hopeful. For my own emotional health, and for the sake of my family, we need to see some changes, and since mom is seemingly unwilling or incapable, I am praying that this is an answer to our needs.
Hope things are going well with all of you. Seems weekends are quite around these boards, for some reason. I wonder why that is? Hope it's because you have had peaceful weekends, and few troubles. Take care, all. Hope the coming week is good for you, too.
Linda, thanks for writing. You are an encourager!
You grossly underrate yourself!!!!!! You are VERY SPECIAL!! I would never have the lasting power that you have exhibited. You are not becoming your mother, but she has rather taught you through need to be a strong person. If she were different, where would you have needed to find such strength? I believe that adversity brings strength of character, and you, Sis, are strong of faith, love and character. I am glad to know you!!!!!
Linda
I am looking for direction in caring for my mom. I know I don't have all the answers, and will be meeting with someone today, who seems to have some experience and a good grasp on this situation. Her emotions won't get in the way, and she'll probably be a little more objective. I am so hopeful, and we are so needy. This is beyond my abilities, so I'm looking for answers, and a team of professionals to guide us. What a process.
Thanks for listening, and if I may ask, please say a prayer for us today. Thank you so very much, Linda. Hope your day is a good one!
You have done more than I would have had the spirit to endure.
Please try to not care so much. It is so easy to say, and so hard to do. I realize that my liFe is closer to over than I want it to be, and this is not how I deserve to spend my later years. It is a shame we do not all live close enough together to just swap parent obligations. We have been brainwashed. We have been tortured. The CIA should take lessons from these people. It was always the carrot and the stick, The carrot being the love and respect that they never had any intention of giving. (or, as I am starting see, never had the ability to give.) It is difficult to be so close to 50 and realizing that I have been held captive for all of these years. To just be waking up to the idea that I can have an opinion, that I can be me, not mini them,...To be almost 50 and just now, be having teenage pangs of needing my freedom is strange. I am just so thankful that our votes are private or I would have been drawn and quarterd by her acerbic tongue decades ago. And the hardest part is realizing, that because my father was SO MUCH worse, I worshiped my mother as a saint. I was a failure because I was pitiful. That was not her doing but mine. She was justified in her disinterest. It took years of meeting people and being away from her daily pruning that I realized it could, possibly, be her. I might be okay. I might be not so bad. perhaps, I am worthy of the respect and love that my husband and son give to me. To be told by her that they are suffering because they have to live with me, that hurts.
But knowing that others out there have dealt with this too. That helps. To know that medical science even has terms and titles for this behavior, that helps. If it were not for this site, I honestly do not know where I would be right now. My husband has mentioned how much I have grown, just by having you all to read and get comfort from. I thank all of you.
Secret sister,I hope the care giver that you get is as wonderful as the one we have. My impossibly mean father will listen to her and do what she requests. He seems to know that if he bullies her or verbally or physically abuses HER, he goes to jail or loses his care. He seems to know what crosses the line. He owns us, he rents her.
Take care of you. The prayers that you say for us are being felt. Little things that mean so much. You have helped me. I appreciate you sharing your frustrations because i do not feel so alone. I do not feel like such a freek. You grumble and gripe as much as you need to. Vent or explode. We are here for you.
Jan
Ps Please excuse all of the glaring mispellings. I am dyslexic and when I have sinus problems...everything looks right and wrong all at the same time.
My heart goes out to you. My goodness you have been through so much. From your writing, it seems so much more than me. You have a good way of expressing yourself, and I am deeply touched by your words. Here you are, struggling with your past and accompanying consequences, and trying to comfort me. I am impressed by your strength to overlook your own emotional pain, and compassionately reach out to someone else. That is impressive, and speaks volumes about you. And don't believe the lies. You are not a freak, but a beautiful lady, with a bouyant spirit, who is an overcomer, and a blessing to others. Your parents may never see that, but the rest of us can. I can relate to your pain. The question is, what to do with it! You have turned some of your sad past around into being a help to others. Thanks so much for sharing your story, and for being an encouragement. Bless you for that!
I suggest getting it out of the Library (or purchasing) and reading it, it will help explain why our parents are why they are. I know it doesn't help right away after you read it, because you are so furious inside, but it does explain a lot. I had suspicicions of why my parents were the way they were and the book re-inforced it. I have learned you cannot internalize their insults, you have to bravely shrug them off, heck, you know better deep down about what they say about you is untrue. The way it gets to us, is because they are our parents, and we so much as humans and children want approval of our parents. But our parents have sacrificed us so to seems to fulfill their needs of 'CONTROL", that is why they are so disrespectful of us and why they are so mean to us. It makes them feel better and bigger and able to CONTROL something. That is why they cannot bully outside help, as caregivers or court appointed guardians, social workers, because they know they cannot get away with it. In this book I have mentioned it enforces the idea that 'this type' of parent feels they own us...yes like serfs, slaves, etc. To do their bidding and lo if we do not fullfill then the hammer of 'Thor' will come down. I know we all know it..it's a form of conditioning they utilize when we are just tiny little children ' do as I say - OR ELSE '. The fear factor gets played on so many levels. I hope this helps a bit.
By the way the Risperdal has helped my 'mommy dearest' thanks to the heavens...I hope it stays that way.
So be brave sisters...be brave...check out the book I mentioned...it helps explain and gives some coping ideas as well.
I now know it's them. It is just difficult to shake the conditioning.
My brother has been fluffing up the bed a bit. The caregiver-who is an angel sent by God -is in tears because he is trying the 'you are not good enough' bit on her. AUGGGGGH! to the 12th power. I know she cleans up the pee everyday, but he pees all the time. I know she cleans up the tobacco spit, and food, and dishes he tosses on the floor...but he does it all the time. My hardest urge to resist is not giving her a raise every week. If he had worked as hard as we did just to get someone who would be willing to be around my father, let alone clean up after him... he wouldn't be so hot to be the king of condemnation. The word she used for my brother is 'Controling'. Thus my need to be venting today. Just when things calm down... They can't stand 'calm,' can they? It is the 'look at me' syndrome isn't it? I get the oil on the water, and someone has to throw a lit match into it.
Seems everone knows about this book but me. Next outing to the library I'll get it. But honestly, as much as I have really benefited from all that you dear souls have written about...I will have a very difficult time entering that part of my brain, reading about it.
It is like lancing a boil. we know it will help, but cutting into a wound is scary. I do not know if I have the energy to remember all of it. Sometimes, far away is better.
Piratess, Good for you to look for a way to understand them when you were younger. I just tried very hard to make them happy. It must be miserable to never be happy. SO WHY DIDN"T THEY SEEK OUT HELP?!
right. no answer. No 'why.' it just is. That alone is a huge help for me. I have filleted my brain trying to understand 'why.' I guess that's why my brain always hurts. I just need to accept what is for what it is. Sounds so easy, but it will take a lot to actually do.
Anyone who mentions their dog's assistance in the credits is okay to me. How many of you got your affection growing up from the family pet? It was difficult on those poor beasts as well. maybe they came to me because I was all they had.
When my son was in elementary school. I helped out a lot. I saw faces that reminded me of my childhood. I knew that look. I mentioned it to my son's teacher and she said that there are so many kids that JUST get food, clean clothes, and a place to sleep. and only that. It isn't neglect and there isn't anything that can be done. They can do something if they see bruising, or if they suspect sexual asault, but they can not even bend down and give those poor kids a hug. I wish , I don't really know what I wish for. I wish someone could be there for them. I wish there could be some help for the little faces just being born into this.
Three months ago, this was just me falling apart, and now it is a whole world of people trying to keep it together.
I am going to buy the book. It isn't that much. Priced to help.
They will never seek help, due to they do not realize something is wrong with them - EVER!
Yes my German Shepard - Cindy would put her head on my shoulder as I would sit on the back porch crying.
Hmmm interesting what you mentioned about your brother... was he the 'Golden Child'? Sometimes they follow in NPD footsteps.
Here is another article from a gal who dedicated an entire website to her dilema of NPD in her life:
Every abuser, every narcissist, every psychopath, every rapist, arsonist, every sociopath is after one thing: power. Power over others. This is an outgrowth of the narcissistic need to have all attention focused on them. We already understand that attention is the drug that the narcissist pursues at every moment. This is the core motivation that moves them. There are natural branches that sprout off this trunk and the desire for power over others is one of them. The intoxicating thrill of absolute power is the biggest high they can get from their drug of choice.
The extent to which an individual will pursue their quest for power is determined only by what they feel they can get away with. No small part of this is how much they fear authority or the law. The narcissist mother will not pursue absolute power to the degree that the psychopathic serial killer will. But make no mistake -- both are consumed by the quest for power over others. Unchecked pursuit of power is destructive and merciless as well as escalating. As Proverbs 27:20 says in the Contemporary English Version, "Death and the grave are never satisfied, and neither are we." The grave never protests when someone dies, "We're full up here. We aren't accepting any more death, sorry." Death is always ready to open up her insatiable arms for yet another. So is the lust that drives the malignant narcissist of all brands and stripes. Never satisfied. Never satiated. Never content. Never full.
Kathy Krajco defined what absolute power looks like:
What is absolute power? It's absolute control, possession. Surely you have recognized the lust for it in the bizarre crimes committed by psychopaths. Mike DeBardeleben, a sexual sadist serving a life sentence wrote in his journal that it is "to force her to undergo suffering without her being able to defend herself."
"Without her being able to defend herself" are the key words. It isn't enough to torment the victim: this must be done in a way that keeps her from resisting. That's absolute power, possession...
This is the ultimate in mental cruelty = making the victim bend over for it. Then the sick-o gets to pretend that the victim truly does "want it," has ceased to exist as a person (with a free will) and is but an appendage of his that he thus "proves" his absolute power over.
All narcissists do this in one way of another: they don't merely abuse, they FORCE SUBMISSION TO ABUSE. This makes them God, whose punishing wounds we are to shamefully accept as our fault. We are not to resist: we are to simply hang our heads as deserving of them.
Notice that what is required for this to work is for the narcissist to completely disarm their victims. No right to self-defense is allowed! This is what they must strip you of first before they can go on to pretend that you are submitting to them of your own free will. Like they deserve such submission and like you've freely given it. Either they will use psychological tactics to get you to feel you have no right to defend yourself, or, as in the case of the serial killer, they will arrange your physical circumstances to make it impossible for you to defend yourself and then break you down mentally.
I made an argument in this post that your most fundamental right as a living being is the right to self-defense. It is this very right which the narcissist will first try to convince you that you don't have. It is the right that the proxies and bystanders will tell you that you don't have. "Turn the other cheek" is the pious phrasing far too many victims of abusers have gotten for advice when they desperately have sought for help with their situation. It is essential that victims of narcissists are re-armed with the knowledge of their right to self-defense if they are ever going to be able to resist and break the narcissist's power over them.
Knowing that a narcissist is driven by their need for power over others, and knowing they are always in search of this headiest drug which is absolute power over others, then you'll also be aware that they must force your submission in order to feel powerful over you. All this leads straight to the fact that a narcissist must deprive you of your right to defend yourself to accomplish this. They will always do this by fraud, lies, and threats. They will bring in their proxies to help them get you to submit to that which no one should ever have to submit to. They want to be able to pretend that your forced submission is a real submission...and this can only be done if they successfully deprive you of your ability to defend yourself. Can you see how incredibly important it is to be fully aware of your right to NOT submit to abuse? I am convinced that no one breaks free of the power of a narcissist over them until they are able to claim for themselves the right to self-defense.
It is important to mention here one very tricky sleight-of-hand that a narcissist does to disarm someone from self-defense. This is accomplished by intentionally mislabeling your defensive behaviors as being "retribution" or "vengeance". They accuse you of hurting them. They pretend to know your motives and lay the accusation that any efforts you make to defend yourself are actually coming from your desire to hurt them. If they can convince you that you are being vengeful, or at least if they can convince you that others see you as being vengeful, then they can shut you down. Force your submission once again. This happens very often when a victim of a narcissist goes into no contact. The pious howling of the narcissist contends that your cutting them off is itself abusive and is therefore coming from a spirit of malice and revenge on your part. Your act of "no contact", which is as mild and non-reproachful of a way of dealing with a serial abuser that there is, becomes conflated to be proof of your cruelty, malice, and vengeance. Don't fall for such insane logic! Don't let someone convince you of having motives you don't have! Don't let the narcissist disarm you that easily!
I used "no contact" as merely one example of self-defense that can be mislabled by the narcissist. Any type of self-defense can be characterized this way by the narcissist and will be. Expect it. Be prepared for it. Don't fall for it.
As I've been writing this I've had a clear memory of my mother quite literally demanding that I "bend over for it." For the first ten years of my life spankings were dished out frequently. For a period of time when I was around five or six the spankings were daily events. My mother was nearly always in a foul temper and the slightest infraction would be severely punished. Here's how it would go.
I would be called into her bedroom. Many times both my sister and I were summoned at the same time. My mother would then, through her teeth, demand we stand at the foot of her bed and bend over for our spanking.
The reflexive reaction of someone anticipating pain on their backside is to protect that backside. The hands would go over our asses. The act of having to willfully bend over the bed was also contrary to the desire to protect oneself. I remember with perfect clarity the terrible stiffness of my posture as I had to work with all my power to force myself to bend over for what was coming. Then, if my little hands were still covering my butt my mother wouldn't spank. She would grit her teeth until I could hear them grind and demand that I put my hands in front of me. I don't know that I can describe the intense difficulty with which this was accomplished on my part. The fear of her rage escalating and punishment becoming even worse is how I convinced myself to comply.
I have no doubt now as I look back on this scene repeated so many times over in my life that my mother could pretend I believed I was deserving of every ounce of her rage and punishment because I would cooperate by bending over and not in any way resisting my punishment. She taught us from our earliest moments that if we ever attempted to run away from her when she came for us that it would be punished with overwhelming force. So, there were no chases around that bed or the house. No, every vestige of resistance was removed before she would commence pounding our asses. I have no memory of her ever spanking me while my hands were still covering my backside. She waited as long as it took to get the total compliance that must have made these sessions such a pleasure for her sadistic torture of her children.
My mother removed all other of my rights to self-defense as well, but the above is the most literal example of her demanding that I "bend over for it." My mother has for most of her life gotten most of her narcissistic thrills from the children in her power which included other people's children that were entrusted to her care. (How well do you know your daycare worker, hmm?)
She worked tirelessly to ensure that I didn't try to defend myself psychologically from her predations as well. All signs of resistance were squelched with ferocity and swiftness. I had to go "underground" in my resistance. It was a profound secret. I had to reach my mid-teens before I mounted an organized mental resistance to her cruelties and torments. All this was accomplished in the privacy of my thoughts. This is really the only place that children can resist the power of a narcissist's control. In their thought life. Never condemn a child for their compliance to an abusive parent. The parent holds absolute control over that child's life. The child is only trying to survive. The most sad thing is that many of these children grow up still convinced they have no right to defend themselves or their own children from the narcissist thus forcing subsequent generations to be blood supply for the vampiric family narcissist(s).
Remember, self-defense is directly related to the right to live. The narcissist makes their "living" by denying you have a right to live your own life. They will work tirelessly to convince you that "resistance if futile; you will be assimilated"...to quote the Borg in Star Trek. You don't have to be assimilated. Even if you are presently in a situation where it appears you have no power...you have your own mind. All self-defense starts there. In your private thoughts. Nurture those thoughts and circumstance will afford you opportunity at some point to escape because you'll be looking for those circumstances and will be ready to seize them the moment they appear.
My mother was very abusive. I do remember the spankings-with a belt. And being made to stand in a corner. My sister tells me she made her stand outside naked, saying, "if you don't like what I provide for you, go somewhere else." She also tells of our mother trying to kill her by purposefully pushing her down the stairs. I don't remember that. But I was 2 years older, and probably in school by then.
I'm beginning to wonder why I would want to be my mother's Guardian any more, as she is making my life miserable, and her complaints and accusations know no end. It's getting harder every day. The more I give, the more vicious she becomes. It is pure evil. I think I'm sadder than mad, though.
It is almost like a funeral to the soul, divorcing them from you emotionally. All you need to do is play the part of caretaker, and as you have done already, set it up for others now to take over. You have gone through all the abuse. It's amazing that no professional doctor or attorney has not suggested this sooner for you. All you did during this time was internalize the abuse. I hope I have shed an great amount of light to you gals on this disease. Please let me know if you want me to post more insight to this (by means of others "posts" that have gone before us). It has helped me immensly to understand 'their' disease and how 'they' affected us, and the psychological mechanics of what makes them tick.
Girls remember - try not to internalize their abuse no longer! My mom's psychotherpist that comes to house told me "Why do you listen". I was so ticked at him, until a couple of days later 'I GOT IT'. It trully dawned on me what he meant...why listen to the ravings of a madman so to speak.
When we took my mother in for her doc to evaluate her, both the gp and the neurologist asked if she had ever been abused. Each time she said, 'no.' each time I reminded her of dad. Each time she said "oh yea, that was bad wasn't it?" She thought that it would strengthen us and make us into stronger people. I am twitchy at best and my brother is nice and strong. yes, golden boy. But it was hard on him too, and he is suffering the affects as well, but he may not realize it. I was thinking that the reason he may pop in and fluff stuff up, is because he thinks he is helping. And as long as things are stired up, then he has done something positive. He isn't whole. I spent as much time with the sane relatives as I could. He endured the brunt of it. He is still trying to please them. I stay away, he swoops in and 'fixes' things. Which fixes nothing. The care giver always knows when he has been there, because he has taken something apart and leaves it there..non functioning. It either has to await his return, weeks- months..who knows, or we have to get it taken care of. he fixes things by making sure they are positively broken, So we will adress the issue, which wasn't an issue until he popped in.
It is important to me that they know when the line has been crossed. I keep my distance, and then something happens that I have to be involved with them again. I am involved everyday, but they do not know that. (Ignore the woman behind the curtian!) I am fortunate to be able to use my father's money to pay for his care. When that is gone, I start selling property. Oddly, He chose me for this over a decade ago. he knew I would do what needed to be done. So now here is the really big question? Nature, or nurture, or am I a fluke?
Was I conditioned to care for him from fear, control, or guilt? Or would I have done this anyway? I loved my grandparents and would have moved the world for them. If dad had been a nice guy, this would be so much easier. I WOULD HAVE TAKEN CARE OF THEM ANYWAY!
Really, I walked away from any contact with my brother for over 13 years. Then dad had his stroke and we had to interact. I just follow behind and sweep up after him. I think my angel care giver is getting a raise. It isn't my money. and it cheeses my brother off. I expect to get nothing anyway...and He's already planning how to spend it.
opps. I am showing evil tendencies again. I am going to go hug my boy. He is a great antidote.
When i moved her into my home it was the year i turned 50. I started remembering "things" from my childhood that i had forgotten. And not just my childhood but throughout the years.
Life was just plan horrid when she first moved into my home. Between her coming to terms with loosing her independence and her home, well, she didn't know how to handle this in a sensible way but only in her warped, paranoid way. And i reverted back to the way i had felt living in HER home all those years ago.
So i was almost a basket case.
That is when i earnestly began to pray for God to change me as i knew that she wasn't going to change. And that is when all the memories began to flood back. And so i realized that she wasn't a mean mom who hated me, but that she was mentally ill. And boy did that put things into perspective. i have been able to handle things so much better now.
My husband constantly told me "you are not that little girl anymore" and "this is YOUR house". And i began to take that deep into my soul and that was like a balm to the hurts and it strengthened me.
i read somewhere that if you had a bad childhood you need to go through a morning process in order to heal. I haven't done that yet but i know i need to. I think we all need to morn for the little girls we once were. We need to cry for those hurt, confused, lonely little girls. And we need to morn for the women that we never became. i know in my own life there was so much potential for greater things than what i accomplished. i am just a shadow of what i could have been. And so i need to morn for that and then put it away.
Knowing that my mom couldn't help herself i guess makes it somewhat easier to except. But it doesn't make the pain any less.
I think in time that we will be able to except ourselves as we are and thank God for our lives just as they are. I know that we are strong because of our pasts. And it is this strength that enables us to carry on. i feel so blessed to have you gal's. For the first time in my life i am able to talk about my mom. You gal's understand and so in talking about our feelings i think we are helping each other heal.
Remember to be kind to yourselves. Peace
This entire situation of dealing with NPD is almost like a jigsaw puzzle you need to put together. You need to figure out how they are and why they are that way and how you interplay into it. Childhood trauma is usually the case of why our parents ended up this way - the book "If You Had Controlling Parents" explains this beautifully. As adults now we have plenty to say that we could not as children. The best thing you can do is to continue your caregiving as best you can, that's as good as any of us can do. But realize these folks really just live for themselves, so you must to. You probably would be taking care of her, because you are a caring soul either if she was good or evil. Each of us has their own path they must follow with this disease. Its up to us on how we want to handle it or not handle it. Therefore for some for whom it is too much over the years or such abuses as sexual abuse (yes I have read some horrid accounts of NPD parents doing such - those victims come out of this in a very bad way - I have seen their writings...very sad and very very much disturbed. I am glad mine did not include that type of abuse!
Do some internet searches of other people's posts on this disease, you can see how similiar yet slight differences on how it plays out in each one's own families.
In some cases that I have read, the influence was so terrible from NPD parents that their children end up being NPD as well to their children...that is the most horrid outcome of all. I think we are lucky because we knew what they were about was wrong. I saw that from my friends parents or television parents...yeah like the Brady Bunch parents...perfect parents (so to speak). The key word is 'EMPATHY', NPD's do not have empathy! They only use it when they want something...sad very sad.
And today, I contracted with a "heavenly" home care agency to provide transportation to her appointments from now on. It will be costly, but less so to my emotional health. One thing the director told me today: "Take care of yourself first, then your husband and son; then your parents. Never forget that order. It is essential." Sounds like good advice.
How often do we do that? I'd say it's rare. I know I've given big pieces of myself away in the last year. I feel the effects, in terms of wondering "where I went" at times. I had a big job, and did it with gusto.
I've oft been asked, what would I do if another Guardian was appointed. It always comes back to this: my mom is still my mom, and I would be concerned for her welfare. Dad, too. But that's a different story; an Alzheimer's one, though just as sad. He is well cared for, and not altogether my concern, at present.
Concerning the past: I don't like the "could haves, would haves, or should haves." My life is what is was. Good, bad, indifferent. The reality is, we struggled. It wasn't great, but it could be worse. Thank God it isn't. I survived. I wasn't "super successful," but then again, who is? Outward appearances don't always reflect the inside struggle. We're all human, and we all have varying degrees of our cross to bear.
I love to get to know people, and love to be real, not surface. I detest surface, because it's so unreal and detached. I just like to hear who someone is, what they're feeling, what they like and don't like, and what brings them joy. And when they hurt, I hurt with them. You know, weep with those who weep, etc.
I think that's what I want to take with me from my past experiences. Where I was hurt, I now can empathize with those who have been hurt, or are hurting. I can really relate, and feel such a tenderness toward them. If I had only known joy, I couldn't relate. I don't know why I had to go through a difficult childhood and growing years. (Still growing, btw.) I am still learning from my present experiences, and hopefully always will be. I pray that it will make me stronger, more compassionate, and less pitiful. I am not a victim, but someone who has choices. What do I do with the lemons? Let them rot, or make lemonade? I know joy today I never had as a child, because I knew sorrow, and have something to compare it to. Friends are gifts from God. Not everyone is my friend, and that's OK.
My mom is not my friend. That's her loss. She missed my son's piano recital, but finds ways to get to potlucks, card parties, etc. When my father and mother forsake me, then the LORD will take me up. I know God knows my name and my address. If he is for us, who can be against us?
I hope some of my ramblings make sense. I don't think we have to stay stuck in the chains that once held us captive. There is one who wants to set us free. Loss can be an opportunity for something greater. I'll never be a great pianist, but I can comfort the hurting and lonely. I can encourage the brokenhearted, because I've been there.
You, dear fellow travelers, can too! You who know pain can comfort another's. I know, because you have ministered to me. I don't require a PhD to help me, but a compassionate soul. I don't need a degreed person, just an honest companion. No one needs to impress me, just be humble enough to say, "I don't have all the answers," "I'm not perfect," (who is?) or "I just need a hug today." Then you're all giants in my sight, and as Caregivers to someone, you are heroes. Think about it...as another person on these threads said, "...you do God's work."
Some days are better than others. I am on the winning side, but the ongoing abuse can plunge me at times. Lately I've been feeling so ill due to dealings with my mother. I know it's just a feeling, and feelings pass. But in the midst of them, they feel like never. Sometimes the light at the end of the tunnel is a freight train.
My favorite part of the book, besides relating to it, was: "Precisely because your parents were so controlling, you had to develop many strengths to survive when you were smallest and weakest..resourcefulness, intuition, perseverance, sensitivity..."
I think the best thing we can do for ourselves, (and each other) is to accept our own shortcomings, weaknesses, and be gentle with ourselves. I don't want to make excuses for myself, excusing bad behavior by continually blaming my parents, but acknowledge that I stand room for improvement. We can allow for mistakes without condemning ourselves. So what! No one is perfect. Why demand it? How about, we do our best, and not punish ourselves for less.
Try to correct and improve, but it's not about perfection. I don't mean to say we shouldn't try to do well, or strive for excellence. Nothing wrong with that, but don't be driven to the point of imbalance, at the expense of others, or health. Relax once in awhile. That was NEVER allowed in my family. (I should talk. I haven't done that in awhile. It's been a difficult year, taking over as Conservator for my parents.)
We need to realize that each of us has talents. You are going to have some I don't have. That's OK with me. I am not in competition with you. You will be stronger in some areas than others. I am not jealous or envious. Well, not too much, anyway. LOL But I'm not going to beat myself up for falling short. I am not particularly gifted in the same areas as my friends, but we learn from each other. We draw from one another's strengths, and sometimes help each other. And if I can cheer you on, or help you be better at something, we both win!
I am so thankful for my friends, and even for the kindness of acquaintences and strangers.
I think what's helped me more than anything, has been a wonderful Christian lady, who "adopted" me as her own. She befriended me, had me over for lunch, supper, gave me birthday parties, wonderful gifts, and loved me like a mother. She's gone with me to doctor appointments, and helped my paint the nursery for my son. She gave my infant his first bath, teaching me how to love my baby. (My mother never did.) The LORD gave me a precious gift in her, and me a brand new start (I was 42). Just Sunday, she handed me some fresh baked cookies, like a loving mother would. I'm closer to her than I will ever be to my birth mother, and will ever be grateful. I need to remember to tell her so, yet again. I have the tenderest of feelings for her, and the deepest gratitude, admiration and respect.
I don't know why I told you all that. I kind of take her for granted, I think, because she's just there. She's been in my life a little over 10 years now. She loves me when I'm mad or sad, and rejoices with me when I'm glad. And she prays for me when she doesn't know what else to do. She corrects me if necessary, but that is so rare. I think she lets God do that, when needed. She just loves. And she gives wise advice.
It is my desire to be that for someone else. I do for my own mother, but she just criticizes and complains. It hurts. It really does. She doesn't know what she is fighting. She loses every time, but thinks she's winning. How sad is that?
It is my prayer, that if you never had a mother to love you properly, and in a wholesome way, that God would send a special angel to you to help you heal. Someone who can stand in the gap for some of the hurts of your past, and tenderly dress your wounds. There is healing. Won't be 100% complete this side of heaven, but it's available to those who ask. I'll say a prayer for you. I won't know who asks, but God will. So, ask, seek, knock, and wait for his answer. It may come in unexpected ways. It is written: "Be not forgetful to entertain strangers: for thereby some have entertained angels unawares."
Neonwocky, I love your humor, so don't stop that. It's dry and wacky, but insightful and spirit lifting. My husband says, "humor is not funny." It's the lighter side of serious, but tinged with grief and sadness. It truth with a twist, and turns the macabre into melodrama and beyond. I know it sometimes masks the inner pain. But you've turned it into art. So, don't give it up, because it makes you, you. And thanks for all you've shared.
Neon, I am praying for you today, as you meet with your therapist. I hope it helps you with your past pain, and strengthens your present dealings with your mom. I can relate to the fever blisters and button pushing. Remember who created those buttons, the parent who raised us. I'm hoping that the therapy sessions are not too painful for you, but cleansing, empowering, and healing. Let us know how things go, and what you learn. And I pray your therapist is gentle, compassionate, and loving. I'm so happy to hear you are taking this time out for you, and willing to put your life and past experiences to the refiner's fire, so to speak. Praying the "Great Physician" guides and directs your therapist, as he delicately and surgically removes the dead, old, unwanted tentacles of the past. God be with you, sister. Take care, dear Neon.
Linda