I’m my father’s conservator. He lives alone with about 20 hours of caregiving. I live 9 hours away. He has dementia and mental health issues, and a large deep basel cell cancer on his face that is getting deep and close to the inner tissue of his cheek. His MD and a surgeon say he will have a hole, eventually, in his cheek where drool and food will escape and it will be extremely hard for him to eat. He’s 80 and otherwise physically pretty healthy and very mobile. Mentally he has no ability to comprehend what is going on, except to assert that he does not want surgery. He had the BCC excised twice in the past but has been adamant about not letting anyone cut on him again.
When I asked how on earth I would do this against his will, the doctor suggested giving him a sedative at home before driving him to the outpatient appointment— which is 2 hours from his home at a hospital.
My dad has not showered in 8 months, has terrible hygiene. Caregivers cannot get him to change clothes or bathe. He is very combative and mean when agitated. He would have to be drugged off his butt to get him to walk into a hospital. I don’t think he would even take a pill for me or anyone. ( He takes no meds at all, has alway distrusted doctors and is paranoid, thinking people are trying to kill him— and this was before dementia).
When he totaled his car 4 years ago and was in hospital with a head injury he had to be restrained and drugged and have a sitter 24/7.
I just don’t see how this surgery is possible. And if he did go in and get it done, how would he recouperate at home with his refusal to bathe? The surgeon said he could go to rehab for two weeks but they wouldn’t keep him if he doesn’t want to be there. So clearly that’s not an option.
I’m sick to my stomach about this and overwhelmed. What would you do?
When I took him in for cataract surgery - also in his 80s and with moderate dementia - the doctor and I went over and over the process ahead of time and I managed the drops since Dad couldn't. The doctor talked to him just before surgery and still, after the procedure, he was surprised by it all, thinking he was just getting his eyes examined.
OH-- btw--- he will need to be in a place where they can bathe him and change the bandage on his face--- and he may have to be restrained the first few nights to keep him from scratching it.
Duggan B. can not be legally charged with neglect any more than they could charge me with neglect for his father. Just sayin.
She was very gracious in the reversal of what had been her original reaction, prognosis and plan (or lack there-of). I'm so thankful she consulted an expert. I am grateful that she and her staff and his regular MD, his caregivers and case worker, and the court investigator are all kind to him, caring and not grossed out by his hygiene issues. He does the best he can. I do the best I can.
We all need to understand that memory care facilities and assisted living are for people that have money- not very poor people. My dad will eventually be in a nursing home or mental hospital ( via Medi Cal)--but not until he is failing in other areas. There are a lot of people checking in on him. Being a conservator is not something one takes on lightly. There are a lot of hoops to jump through and checks and balances.
I thank everyone for their response and input. We're all in this together.
Good to hear all those involved helping your dad are kind and kind and caring as they should be.
Also concur on the idea that not everyone can go the AL/MC route. Too many immediately suggest placing people without considering that many can't afford the cost (even worse are those who say NH because people have to meet certain needs to be eligible for that - needing specialized nursing care, dementia isn't enough - and it is even more expensive than AL or MC! On top of that are those who say Medicaid will pay - not always the case there either!)
Although we didn't have to go the guardian/conservator route, I do understand that management of their care takes effort and sometimes a lot of work! Our mother is in MC (thankfully she can afford it) and although I have 2 brothers, all the financials, medical care, paperwork, contact, etc, goes through me. Some months are better than others, but it is still a lot of work!
Blessings to those who have to tackle all these things AND provide the hands-on care! For many reasons (esp any physical care) I can't care for her myself, even if we could hire help, but ensuring she is safe and cared for is something I can provide.
Hoping things go well for you, as best they can given all the issues.